the 100th Dr appointment-no answers..I'm about to explode!

strongernow · 01-25-2006, 03:56 AM

I am so depressed right now, I just wanna give up more and more..I feel like the only place I can turn to is here, no one else listens to me fully and the ones who do have no advice to give me, give me a blank stare and just turn me to someone else. I had yet another doctor appointment today, I think it was about my 10th this month. For others who havent read my posts to sum things up:
I have been sick all my life with Fibromyalgia and migraines,gastrointestinal problems because of all the meds I am sure, and the past three years now I have had lack of AF, and increase of PCOS symptoms for the last year. I have been to 4 doctors for the PCOS symptoms now and one was a reproductive endochrinologist..he did all the bloodwork and told me it was all pretty normal (testosterone was borderline high, estrogen kinda low)and sent me on my way, never bothered to check for cysts and told me my hairloss didnt seem to be related to hormones so sent me to a Dermatologist. Well I went to this Derm last week and she told me the same thing, that if my hormone ranges were in the normal range (but I did have low estrogen) then she didnt know what to do, my scalp looks ok and I told her about the constant burning, acne, everything else. She said the Spironolactone I am taking should help eventually and she too sent me on my way. Well the burning and hairloss increased during my AF (which was induced by provera last month and then I got my first on my own this month) so I went back into see her today. She said she was at a loss of what to do since it doesnt look like its genetic and gave me a steroid for my scalp to help the burning..and also the number of a hairloss specialist (3 states away from me at that!) because she cant help me she told me in so many words. Well this is driving me crazy!!! Why cant these doctors help me or tell me what is wrong with me?! I am not making anything up, my hair is falling out like crazy, I have hursitism, acne thats now cleared up by Spiro, no AF, I am tired all the time, I am constantly dizzy, I have insulin resistance signs and my test was on the high side yet they told me it was normal. I feel like I am being passed off, I am at a loss of what to do or think, I want to just give up on myself. I am trying so hard to finish my last semester of school, with a head of hair and energy to do it. I am trying to do so much in my life and this is makeing things so hard and difficult to even wake up and function each day. What is my next step?
I dont know who else to go to, I dont wanna go bald..I am doing everything I can with researching and supplements and hundreds of dollars a month on products..this is litterally killing me...and it doesnt help that no one is there for me to help, not even doctors..

BlueAngel22 · 01-29-2006, 08:30 PM

I'm so sorry you are going through all of this! *hugs*

Catwoman2005 · 01-30-2006, 04:09 AM

So sorry you are going through this... ((((HUGS))))
Post as much as you need, you feel better when you get things off your chest...

01-30-2006, 06:26 AM

Oh darling, you have had it tough. Big hugs going your way.
It must be so frustrating having all these symptoms and no one who seems to take responsibility for you.
Im not sure what to suggest. Have you tried any of the recommended doctors on this site? I'm not sure where its posted - one of the other cysters may help me out here - but there is definitely list of PCOS friendly doctors based on the recommendations of other cysters.
Also with the help of my therapist, and I'm not saying this is the case with you, but she showed me how to be much more assertive with my medical needs. I always thought I was kinda assertive but she's really shown me how to be strong assertive and state exactly what I need & want when dealing with the medical profession. The problem is after you go to so many doctors who basically turn you away you DO start to think its all in your head & it completely wears you down. So I guess what I'm saying is keep standing your ground.

Moonshoot · 01-31-2006, 04:37 AM

Good Grief!!!! I feel so bad for you. And I thought I had a hard time getting a dx, but once I was dxed, I was given Met right away. All I can tell you is that you are going to have to keep looking for the right doctor. You should check under the recommend a doctor board and see what you can find. If you can't find one in NH, I am sure you will find a rec for NYC. If you find one on this board, you might even call the doctor and *insist* that the nurse ask him if he will give you Met/other help if your fasting levels are X amount/the high range of normal. Explain what a hard time you are having and far you have to travel, etc and you don't want to waste your time if you are not going to get help. I did this when I went to a new OB for my second pg. I wanted to make sure he would let me take Met while I was pg. I called to make an appt, but told them I had to have an answer beforehand. I actually heard the nurse ask him right then and there.

I wish you the best and hope you find the strength to keep on. Don't give up until you get what you want.

strongernow · 01-31-2006, 06:26 AM

Thank you all for your wishes and support. I have another Dr appt this wednesday with my primary to tell her either we get to the bottom of this (and tell her its making me sick and suicidal because of the extreme hastle and no answers) or I go to another clinic.
I would be at a holistic doctor right now if it was covered under HMO but the wonderful Dr my Aunt goes to for that doesnt.
Lindy- I dont want or need to be on Met, I am not insulin resistant, it was still in the normal range but a bit higher. I am not sure if this is all even PCOS or something else but I do know it involves my hormones a great deal and I am not losing my thick lustrous hair suddenly for no reason. I am going to tell her I want them to do all the tests for everything to rule it all out, I will be demanding this time and let her know that I wont tolerate a 10 minute appointment that I am paying for to be passed off to someone else to do the same. I will let you all know what happens..thank you again for being here to talk

Moonshoot · 01-31-2006, 05:16 PM

Okay, I hope that works. I know you don't want to be on Met, but keep in mind that it is a viscious cycle. If you don't get your insulin under control, there is no hope for your hormones. Your insulin will continue to climb and your hormones will get worse. My doctor prescribes Met for the high end of normal for most of his patients. You can prevent your numbers from getting higher and further damage to your pancreas and your system. Insulin and hormones are connected in PCOS.

I really hope you can get back on track and keep your hair.

SnowFlower · 01-31-2006, 06:38 PM

Just wanted to give you hugs