Originally Posted by soccerwidow10

I came to this site because of a thread on medication that I take....I had no idea that some of you suffer from this like I do.

I was diagnosed about 6 years ago and I started having signs around the onset of puberty. I have always had it but, was embarrassed to talk to anyone about it.

I started getting the cysts on my breasts a few years backand about a year ago I started getting them on my armpits.

I have not had to have any surgeries but....bathing suits and sleeveless shirts are a no no!! Well, if the bathing suit has a long enough skirt I can get away with it.

Before diagnosis, I thought I had it because of being fat, sweaty and just plain disgusting. HS is a very emotionally devasting disease. I still have low self esteem at times because of it. My DH is very understanding.



When my diabetes is under control the "down there" ones aren't as bad. But, my breasts are always sore and yucky. I think it is because they are big(D), Florida is humid and sweaty, and well, they only "air out" at night.

Thanks for sharing and listening to me.