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Old 05-06-2008, 10:49 PM   #29 (permalink)
ImKiki
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Hello ladies. This is my first post. I was just diagnosed March 3rd... TOTAL shock to me, altho in learning more and more about this, it all makes sense. Things I've complained about for years, and no Dr would do anything {Lack of knowing I'm sure} just saying, well, not much at all..

I thought I had finally found a group about 2 1/2 years ago that could give me answers. I confess tho, at the time I thought it was just screwed up hormones, and they had been for years. OK, well, yes, that's true. Who knew...LOL Anyway I was also hypothyroid.. During my time with them I kept stressing I wanted my hormone numbers to be high in range, not just 'acceptable' for my age or lab ranges. As time went by, my hair was still falling out, I was still very tired, just not feeling well at all, and gaining weight, no matter what I did! At one point I started spotting, then that progressed as time went on, to bleeding very heavy, passing clots, and not when I should have been..

They did an ultrasound {I've also complained for years about the pain in or around my ovaries.. No one even blinked} and said I had fibroids, but they aren't big. Thinking as I'm older, they are growing smaller.. Okie dokie.. They made no changes in my thyroid meds, or Progesterone.. I knew something was still wrong..

I finally got fed up, tried one last time to get them to listen to what I was saying. They took blood, and said the exact same thing, with one new thing.. They wanted me to do this Bio Meridian machine thing {out of pocket no less, as it's not approved here in the US} Then and only then, would they look deeper into what I wanted.. Ummmm, I don't think so!!!!

I went to the Suzanne Somers website {remember, I just thought it was messed up hormones and nothing else} looking for someone in Colorado, that had a great Dr.. A lovely poster gave me the name of her clinic, that she's very happy with. I emailed back and forth with one of the office staff and found out my insurance would cover their 'VIP' physical. A requirement.. I wasn't thrilled at having to do this, but OK. We all need this type done anyway.. It covers everything!

When I went back for my appt. to go over results, my NP. was telling me things I kinda knew, but when weight was brought up, I did get the, you need to exercise, and saying I was probably eating more than I realized... And she was wanting me to come back and do some sort of blood test. Sorry can't remember what it was called... All I could think about was, I DO workout, and if you only knew about my eating {I suffer from ED} My hyopthyroid was also now full blown Hasimotos.. Side note, she is switching me to Armour!! My other Drs have always refused...So when she's done, I asked about my hormones, which was what I was there for in the first place.. She didn't have the paper, and went to track it down... As soon as she came back in the room, she told me to forget everything she had just said. I had PCOS, and had for YEARS.. I blurted out, how can I, I have kids.. And we had no trouble having them, in fact, neither were planned, they came with in 14 months of each other... I had even gotten pregnant as soon as we were married, but lost the baby... That was all I knew about PCOS, the trouble conceiving...

I went home and started to read, but was so upset, I just went into denail. I took everything she told me to, but that was it.. I broke down a lot..

So here I am, reading everything I can find, and joining sites.. I've found out so mcuh. All my complaints all these years are all part of it.. The pain, the wonky periods. Tho they were regular, they were irregulary, regular and super light. No complaints tho! My misscarriage was most likely caused by that. At 19 I had a uterous full of precancerous cells that they had to burn out.. To name just a couple.. I have never had a big weight problem, but that was probably due to the ED.. Now, I'm fat, fuzzy, thinning hair, and know I'm not complaining to hear myself complain...

I've told my parents and a few friends, and they all seem to think it's no big deal. I don't blame them, as it's not a 'well known' thing... My husband and daughter are great. .Husband is a nurse, and is making sure I do what I'm sposed to do, taking my meds., etc.. I'm sure my daughter has it too.. But she has no insurance at the moment, and we can't afford to take her in right now. Hopefully she'll have insurance soon, and she's ready to go find out as well.. She's been great, knowing if she does, we can do something, and she hopefully will be able to have kids, when that time comes...

I'm so sorry to have gone on and on.. Believe it or not, I even left stuff out...LOL 2 months is not enough time for me to digest all that I was told, and am learning about this and more... But it is a kind of therapy to have written it out.

Thank you for reading IF you made it all the way thru.. If not, I sure don't blame you...ROFL

So that's my story....

**I'm sure there are typos, sorry, it's all a part of the wonderfullness that is me...ROFL

She more than doubled the tiny amount of Progesteron I had been on, and started me on Met..1000 twice a day, from the get go..

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