I'm so sorry to hear your experience with Dr. Keefe. Unfortunately, that is the way she is I think.....I went to her for 2 appts and stopped for VERY similar reasons. She seemed to forget things between appointments and when I tried to explain how I eat very low calories and don't lose weight, she implied that I should reduce my calories even more! It was all just really frustrating, and I ended up going to a different doctor after that. The new doctor didn't do anything for me either (except try and put me on bc, but I asked him how that would help me in the long run....and he thought better of it
). Finally, I got in to see Dr. Hilgers, and he was the first out of 7 doctors to figure out I had insulin resistance and to get me on Metformin. There are things though I think he has misinformation on because he claims that met can cause hypoglycemia....pharmacologically it cannot. I'm a pharmacy student and in ALL my classes about these type of drugs met is a "special" drug because of this. He also put me on this thyroid med I really really don't think I should be on. When I at first explained to him that I didn't want to take it, he got really really offended and went off on my fiance and I about how we weren't letting him be the doctor. Excuse me, I have a right to research my own health, and NO WHERE is "Wilson's Syndrome" considered a thyroid disorder....it doesn't exist.
So I have very mixed feelings as well about PPVI Institute. They did ultimately do more for me than anywhere, but in the end it seems like they are somewhat arrogant and don't want to listen.
Now that I know a few things about my condition, I've gone to a different endocrinologist and she has really helped me with a few things. We just increased my met dose to 2,000mg a day (YAY!) and she's looking into my thyroid levels to see if it is okay to stop the unnecessary T3 med. The only thing that has gone wrong is I realized she prescribed me the original Met and not ER. I didn't realize this till today when I've been having to run to the bathroom to be sick 2x already.....I wonder if this is partially because I needed to split the dose (again I didn't realize this was the ER version till this morning). So I'm going to try that today.....I really hope I don't keep feeling sick this week because I'm on vacation in the Caribbean! I get motion sick/sea sick as it is
Anyways, that was my experience.....currently feeling slightly frustrated with PPVI institute as well....I know many who have had a good experience though....so I don't know....