deesmum

Just joined today and found this thread. Am and undiagnosed PCOS person - 51 now and that is all behind me. Don'teven want to think about all the years of hearbreak, infertility unexplained painful heavy periods etc. Am sure they must have known about PCOS back then.
Now worse still I have passed it on to my beautiful daughter - now 27. REading through many many posts on here today brought me to tears. Looking back she started at aged 6 with early puberty and needing to use deodorant. I read today that that is a precursor for PCOS. She was treated with high doses of hormones to reverse it and diagnosed with precocious pubertry and it was lleft at that. She has been under an endocrinologist all the time. As a 16 year old we saw the endocrinologogist countless times with increasing hirsuitism, heavy painful periods and depression. No real clues as to what it could be!!!!
At 19 I did some research and diagnosed her myself and trotted her to the GP and demanded tests which confirmed that she had sever PCOS.
Now at 27 she shaves once a day - spent thousands on laser to no avail, still struggles with depression, weight, heavy painful periods (very anaemic). Last year was diagnosed with endometriosis and had surgery to remove this - was very extensive.
We have gone to several GP's but no-one seems willing or able to look at the whole picture. She has tried met but it makes her depression much worse as does most types of oc.
She has just married an absolute darling of a man and they want to have a family.
I just feel so bad that we both have slipped through the cracks with the medical profession. Why are GP'sjust not up with the play?
Reading today I think Auckland is the place to go. Great idea to list good GP's and specialists. My daughter's GP does take advice from Megan Ogilvy attached to Fertility Associates who is a PCOS expert.
I am going to pass this site onto her - she will be relieved to know that she is not the only one who thinks her body is out to get her!!!