Hi... I was diagnosed with endo about 10 years ago and have had numerous surgeries to address endo. In my first surgery they found 3 grapefruit size endometriomas with my ovaries stuck to my back and my entire abdominal cavity consumed with endo. A laparoscopy wouldn't work to remove the endo so I had a laparotomy. Now they have some new techniques - specifically, the da vinci system that can be used to excise the endo and the recovery time is much quicker as the surgery is much less invasive.
I have had some great docs and not so great docs over the years. You deserve to find someone that will recognize the level of pain you're in, be compassionate and give you adequate pain medicine!
Check on some of the other online endo groups for information on a doctor that is more responsive and experienced with endometriosis. (Check the boards on
www.endocenter.org)
Each time I come across a doctor that barks at me to have a hysterectomy or tell me there is nothing that can be done... I fire them - i.e., I decide that I can't work with them. I know from other endo patients that a hysterectomy is not the answer and that there are other doctors out there who will listen and do what it takes to make sure my pain is manageable.
Sorry I'm getting so fired up... I've lost a lot of respect for doctors over the years by being admonished, discounted and misdiagnosed. I swear I'm going to plan a revolt!!!! Wanna join me!
Good luck... if you have any questions feel free to send me a message. ((Hugs))
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Diagnoses: PCOS * Vit D Deficiency * Endometriosis * Hashi's * IR * Elevated Prolactin * Lupus Anticoagulant Syndrome
Meds & Supplements: levothyroxine 137mcg * metformin ER 2000mg * welchol 2500mg * microgestin * effexor XR 150mg
vit d 50000 IUs/wkly * fish oils * allergy meds * aspirin 81mg * cinnamon * vit b complex * vit c * magnesium