Hi, I thought I would add in to your questions
-Have any of you experienced infections in your uterus due to Endo or PCOS?
I have not had any infections. Although I do run fevers a lot and have inflammation problems, but that does not necessarily mean it is related to Endo.
- If you have pain due to endo, does your lower stomach, around your uterus, swell or get bloated? Is it retaining water?
I retain water very easily. I notice days where I am in a lot of pain I am bloated. However I've discovered this is b/c of the way my body deals with pain. When I'm in a lot of pain my body kind of goes into "anxiety" mode. I develop a fever, get anxious and in turn I swell. I have had panic attacks and oddly during and after one, my abdomen can swell very large. Odd, huh?
- Have any of you had surgery? Did you develop Endo again? In the same spot or in a different location?
I have had lap surgery. But only once, so I can't really answer your question here. All my endo could not be removed as it is inbedded in one of my ligaments of my uterus (that part is known). I did not want any damage done to my uterus (no babies yet), so they had to leave it alone.
- When you were diagnosed with Endo what type of doctor did you go to to seek treatment? An Endocrinologist? A Gyno? Or a Fertility Specialist?
I have seen so many dr's. Honestly, the best dr is the one that cares the most for you and puts your quality of life first. I found this in my gyn.
- If so, did the same symptoms come back? And what did you do about it?
Since all my Endo was not removed, I have had to have treatment since the surgery to control the growth. I tried BCP (Yaz included) and hated all of them. Like you, I was crazy on them. I also bled right through them and had NO pain relief.
- Are any of your tubes, ovaries or uterus deformed due to Endo?
One of the ligaments of my uterus is greatly disfigured. I wish a dr years ago had been more aggressive in finding the endo. I am now on Lupron to try to get pain relief from the Endo that is still in there so hopefully I can start trying for a baby again. I am also on Lupron so the Endo does not continue to grow when we start trying so we can halt the damage that is being done.
Big Hugs
