Originally Posted by Cushiemama

Both you and Mishee both sound like you have Cushings. Having had cushings (and a prolactinoma) I can tell you it isn't easy to diagnose. Your hormones cycle, so you can have low, normal or even high results. It's catching those high results that's hard. And if you don't catch the highs in one or two tests, docs rule out. They think Cushings is too rare. It is NOT. It has many similar symptoms as PCOS, but Cushings is treatable. I am a year out from surgery and I feel better than I have since I was a teen. I've lost 60 lbs, no more oily skin, no more extra hair, no more anxiety...

I was overweight all over. I never had my weight just in my stomach. I never had the hump and my stretch marks never were any color other than pink. I was in denial that I had anything more than PCOS too. But I was wrong. And after I went across country to see a specialist in Cushings, he diagnosed me AND treated me. I wasted over a year seeing docs locally and having them test me for Cushings. The tests that DID come back high, they just said I was stressed or something.

With Cushings you have to be your own medical advocate. Please please google Cushings Help Message board and ask the gals there your questions and they will give you a ton of information. I'm not trying to push anything, I just want people to get help. I've seen too many people feel so bad and not get the right help. A few tests do not say you have Cushings or that you do NOT have Cushings for that matter. You need a LOT. Blood tests at 8am, 4pm and midnight (to determine diurnal rhythm), 24 urine tests at all times of the month, salivary tests and even an MRI and/or CT scan. (The MRI would be for your pituitary gland and the CT for the adrenal glands.)

PM me if you have any more questions or concerns. You shouldn't have to go on feeling like you do. Cushings is treatable and you CAN feel better. The longer you go on having it, the more it does to your body and the harder it is to feel better.