PCOS Message Board - View Single Post - D-Chiro Inositol research

Kittycat · 05-23-2002, 04:29 PM

I participated in the 9 month clinical trial for D Chiro Inositol and I can tell you it is going to be HUGE. I was not expecting the results I had from taking it. I am really ticked off at this point at the drug companies that have tried so hard to keep this whole thing under wraps so they will make a "profit" from it. This "drug", (which isn't even really a "drug', it's a substance the body is supposed to make on its own) will be used to treat Type II and PCOS. The part that ticks me off is that what they've known of it for years! It has been kept from us so they can federalize it and make huge profits. If there is a "cure" for Type II and PCOS and it's a natural substance that has no reported side effects, shouldn't it be made available to the public?

Let me tell you alittle about my own experience first of all. I am 30 years old tomorrow and I have always had one period per year or less. I have gone as long as 3 years without ever having a period. The most periods I had on my own before the study was 2 in one year. (Not counting those I induced with provera). I have high testosterone so I have symptoms associated with that as well. I have been ttc for 4 1/2 years and took a break last year to participate in the study. (I really needed a break from ttc!) As for ttc, I am clomid resistant- no amount of clomid will make me O, and my doctors speculate that I have never had an ovulatory cycle in my life. My hormones are extremely wacky as well. I moved on to injectable meds and hyperstimluated on the lowest doses possible. Then I graduated onto wearing a PICC line in my arm that pumped gnRH into my system every 90 minutes. I wore this thing for 45 days and never ovulated even thogh they tripled my dosage.

Upon taking the DCI I was convinced I was on placebo for the first 2 months because I felt nothing. Then during the 3rd month, AF came. I fgured it was my annual AF. But exactly 30 days later AF was back! Then 30 days later AF was back again and so it continued for 7 months ina row. I also noticed hormonal symptoms. My breasts even changed! and I could feel the hormonal cycles taking place every month (which I had never had before). My skin also began to change and became more supple and clear. I had taken a GTT before starting the study and had fainted at the 2 hour mark because of hypoglycemia.(Along with severe sweating, nausea and shakes) I lhad learned at that point from my results that I am hypoglycemic. During the course of the study I had 3 more GTT's and felt fantastic the entire time. I was not hypoglycelic during the study. At the end of the study, my sonogram showed that I had far less cysts than I had before.

DCI is a substance that the body normally makes. Upon testing normal people and Type II diabetics they found that normal people have much more DCI than we do. (Both PCOS or TypeII) We excrete too much of it and we probably don't make enough of it. It is now believed that PCOS and Type II are caused by a deficiency of DCI, and they have found that supplementing with it corrects the problem.

I wanted to add that I had no side effects the entire time and was able to take my pills on an empty stomach or with food, didn't matter. I'm off it now and not doing so well. AF hasn't showed up since I went off the meds and even though I'm low carbing I am still not feeling very good. I think my body is trying to adjust back to not having the meds. What I wouldn't give to be back on it again! Hopefully it will be approved and available by 2004, but it's hard to say.

I wish, oh how I wish, that the pharamacy companies cared more for people's well being that about making money but that is simply not the case. DCI sould be readily available for those of us that need it. I am outraged when I think of the fact that these facts have been known all this time and we have been here suffering all along. I wish there was something more I could do, but in the meantime, I wait. Like everyone else.