PCOS Message Board - View Single Post - For those with pelvic pain or non stop bleeds

Pattyannruss · 04-10-2003, 04:24 AM

My ordeal started 2 years ago.Here is my time line......

Jan 2001- No AF

Feb2001-No AF

March2001- Dentist sends me to a specialist thinking I could have oral cancer due to odd look of mouth. Turned out to be because of my hormones. During AF time I got real sore spots through out.
(Looked like vericous veins)
Found out I'm allergic to Vicodine.

April2001 -seen new GP for lack of AF,extreme weight gain and menopose symptoms. -DX PCOS.

May2001-confirmed test results, given Mercette and GlucXR and told to do Low carb. Started feeling a nervous break down coming.

June2001 -Some kind of allergy HIVES started.
Stopped all meds.

July2001 -Allergies continued. Trip to ER.

Aug2001-Still have the HIVES, Appt with allergist,after 2nd trip to ER. Had allerdy med changed 4 times by now.
Test results showed internal infection/bleeds. I told them about PCOS. He asked about US. I didn't have one yet. He suggested I get one. Back to GP. She ordered it.

Sept2001-Hives still. US results..Came back normal, no cysts!??

Oct/Nov Feeling like crap all the time. Lots of "colds" "sinus infections"

Dec2001-Started GlucXR again. Hives went away within 2 weeks!!

Jan2002-Upped Gluc to 1500mg--Major anxiety attacks started.
Took a month or more to figure out it was the GlucXR.
Given Welbuterin, but made it worse(Not good for anxiety-told that 10 months after the fact--oh how we learn with our DR's)

Feb2002--Can't handle no AF and all the symptoms. Taught DR about Yasmin(Thanks to this site) Did really well on it. Almost no side effects.

March2002--Severe infection(strep) Cough for 3 months, numerous antibiotics because it would not clear. Very sick all the time. Pelvic pain began.

April,May2002 same old thing..Fatigue, pelvic discomfort,sexual pain, AF changed.(Heavier and more painful)

June2002--Asked to be checked for all possible infections.
(Having a hard time with cronic pain and presure.
Increase in urinating.) Treated for Bacterial Vaginitis.
US ordered....Results...NORMAL??

July, Aug2002--Can't stand the pressure. But dealing with it.
PMS is horrible. AF very painful.

Sept2002 2nd US--Still complaining of pain.Anxiety is getting worse..Found out Welbuterin can make anxiety much worse.
Tried several antidepressants with failure on all.

Oct2002--Finally got results..CT,IVP and new US ordered.
Mentioned how "often" I am peeing. UA taken...FLAMING UTI!!
Figured that is what I suffered with since June.It was so bad I was peeing large mounts of tissue!(sorry)
DX with Epstein Barr Virus!!(Basically I was suffering with Mono like symptoms for 8 months)Cause...Strep infection. Reocurenences can happen for 12-18 months.(Catch "colds" and sinus infections all the time.)

Nov2002--results back...CT showed 'possible' fibroids,Adenomyosis(form of Endo that attacks the uteris) and a tilted uteris.
Still fighting monthly UTI!! Painful sex.

Dec2002 I get mad enough to make my own appts.
Called a Urologist. He set up a test. While waiting to go in, I found info on the net about Endometreosis and how it's effects can effect your body. I was shocked!! I had all the symptoms! (Which are very close to ovarian cancer) I spoke to the Urologist about it. He did the test and told me to follow up with my hunch.

Late Dec2002--Made appt with a new GYN/Surgen

They got me in the first week of Jan2003. I took all my resulsts and he told me I did my homework. I had a Lap(surgery to DX Endo) on Jan22nd2003. All above was confirmed.
Decision is made to have a total hysterectomy.
I am sooo done with all this crap!!

Feb2003--Pain is so bad now I have asked for pain medication.
Having dificulty standing. No relief. Pain meds started kicking in enough to take the worse of it easier.(I was going to work while taking Percet!!)
Pressure still dificult to handle. I felt like I was 10 months PG and ready to deliver but constipated!!(how's that for an example?)

March 18th2003--Finally! Surgery day!
Total Vag Hysterectomy. Ovaries removed as well. Dr said since I have been fighting PCOS, it would be better to take them.
Findings...My right tube and part of ovary was totally blown from Endometreosis. Scar tissue was severe as well.

I am now 3 weeks post op and I am on day 17 of antibiotics because of a flipping UTI!! Sucks! That is worse than the actual surgery pain!!

I go back in next Weds for another check.
I will also ask for extra time off from work.

Other than that, I still am doing better than BEFORE surgery!
I am trying to enjoy my time off from work and I feel I have healed better than expected. I still have at least 3 weeks to heal from the surgery but it can take up to a year for my body to adjust to everything.

But it sure explains the "internal bleeds/infections"
Can you believe my allergist found that?

The type of BCP can effect you highly. Endo grows much faster with higher estrigen pills. I don't know yet if this is what flared mine or if it was a coencidence. So if you d have Endo, make sure you get the right kind of BCP.

Those who have a treatment for endo or a hysterectomy also have to becareful because the endo can come back, especially with the wrong kind of BCP/HRT.

I wanted to share my history so those of you who suffer can make a few better choices for YOU!

Check out all posibilities!!

You don't have to suffer. There are so many treatments available.

Good Luck,Happy Hunting!!

Patty

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