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Old 01-20-2009, 06:36 PM   #1 (permalink)
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Default 5 years without a menstrual cycle

My Story!

I too, like most of you, started my cycle at a early age!(11yrs) I started "developing" early and was so tiny and boney but....when I hit puberty, I blew up. My hormones went on overload! I started having irregular cycles when I was 17. I, of course, was too embarassed to tell my mom but one day we both were in separate locations and saw program on tv about PCOS. We made an appt to see a gyno. We told him about PCOS and wanted to know what he thought, but nothing else was discussed. My prolactin was high and he ordered a MRI to see if maybe a had tumor on the pitutary gland. He had us all freaked out, but no results. He sent me to a RE and she diagnosed me with hyprolactinemia. This was just telling me that my body produces too much prolactin, which is the hormone that produces milk for the baby, so my body thinks its pregnant all the time. She prescribed ortho bcp because of the acne on my body and to regulate the cycle, aldactone, and bromocriptine. She basically told me that I would have to take meds for the rest of my life, but I would be able to have kids with help.

I was young and was started to enjoy my life as an adult and stopped taking my meds when I was about 21! I had irregular cycles without bc for about 2 years, but stopped cycles all together. I was planning my wedding when I started having blurred vision. Diabetes is in my family, so I schedule an appt. I was told to regulate my diet and I could control my insulin level. I did that for about 3 months and lost about 10 lbs before the wedding. I fell of the wagon after my wedding and I have been extremely stressed with work.

I am now 28 and my husband and I have had unprotected sex for 5 1/2 years. We are not TTC but did not prevent it either. Throughout this time I have not had one cycle. My new years resolution was to be stress free with work and life. I was making plans to see a RE after the first of the year. I was ready to take control of my health and out of the blue I had a cycle in Dec. It started when my cycles normally, if you coulc say normally. Anyways, It lasted 3 days at heavy, which again was normal, but then I really didn't stop for a few days after that. I would call it spotting. So I was happy that I finally had a cycle on my own. Well I did my research and found a specialist that handles PCOS. My appt was schedule for Monday, but then I started my cycle on Saturday. So now this is my 2nd cycle out of the blue since 5 1/2 years ago.

I went to my appt and he is concerned that since I have not had any cycles for this long that my lining of my uterus is thick and can be cancerous. Has any of you heard of this? I'm not saying that he is wrong, but just wanted to see if anyone else was in my situation. I know that since I have neglected my health, I am to blame, but I am ready to take responsibility.
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Old 01-28-2009, 11:54 PM   #2 (permalink)
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i have heard that going to long without a period could lead to major problems like cancer, but i didn't know it could grow in the uterine lining!!
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Old 01-29-2009, 03:37 AM   #3 (permalink)
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wow 5 years? i went 2 1/2 but not 5 wow!
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Old 01-31-2009, 03:19 AM   #4 (permalink)
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Well good news!!! Pap Smear came back perfect!! No Cancer!! I've definitely have learn my lessons and will not go longer than 3 months with a cycle!!
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Old 02-01-2009, 12:27 PM   #5 (permalink)
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I'm on year 6 without a cycle. I sometimes hear my friends complain that they wish they did not have a cycle, but I think to myself, you're lucky to be having one. I was on Met for about a year, then stopped, but tried to get back on last year, but the side effects are just horrible, so I went on, then off, then on then off again, but I made a decision that I will get back on the Met again and this time stick with it, and also try to get some motivation were exercise is concerned, I tend to be a couch potato.

Glad to hear about the psmear results, it must have been nerve racking until you got the results.

Joey
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Old 02-06-2009, 01:17 PM   #6 (permalink)
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My cycles had completely stopped back in 2005. It was like that for about a year until the doctor put me on birth control and thats it. When I read about the uterine lining becoming thick and the cancer stuff, I freaked out big time!! Good to hear everything is ok with you though.

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Old 02-07-2009, 02:44 AM   #7 (permalink)
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yeah for pap smear coming back normal!
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Old 02-12-2009, 01:52 PM   #8 (permalink)
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Hello Everyone,

I am new to this site but did the google and found it and have been reading a lot and thought I would join.. here is my story started my first cycle about 11 years old it was always heavy and lasted 7 days, I had my first child in 2000 and went on birth control after my periods were 4 days and were light, in 2003 I got pregnate and had twins when they were a year old 2004 I stopped having my period I took tons of pregnacy test and even went to the doctor thinking I might be prego, but no I went years with no period my mom told me to go to the Dr. there was somthing wrong so finally getting the courage I went to my normal family physican took some blood work and he said they all came back normal even my pap test he told me to exercise more and watch what I eat I am about 50lbs over weight... he precribed me Provera 10mg for 10 days and then I would have a period and to do this every other month so I have atleast 4 periods a year.. so I did this and it worked but knowing still in the back of my head being young only 27 at the time it wasnt normal to stop having your period so I found another doctor a gyno dr. and she ran tons of blood work, and had me go for a ultrasound and they all came back normal except my ultrasound showed some cyct but my DHEA levels were elevated so she did more blood work to check me for cushings disease and that came back normal.. she prescribed me spironolact 25mg 2x a day and been on that for 2 months and still no period ???should I go back on provera ?? help
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Old 02-12-2009, 02:06 PM   #9 (permalink)
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hey just to let u all know its worth a script of provera or something because some drs beleive that going without a cycle for 1 yr seriously increases the risk of cancer because its thr tissue building up that is not designed to be there that long. x xmy longest was 2 years though
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Old 02-14-2009, 12:16 AM   #10 (permalink)
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OMG! the same thing happened to me! i was having alot of troubles and my doctor freaked me out when he said i probably have a tumor on my pituitary gland! he checked for prolactin and I'm still waiting for the results. I'm pretty sure i have PCOS because it runs in my family, however many of the symptoms overlap so we're still waiting! glad everything was good for you!
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