72 Hours and I can't face the world

fire4aphrodite · 11-05-2004, 04:49 PM

73 hours ago I was planning my wedding. 73 hours ago I was looking forward to having babies. 73 hours ago I was on my way to my doctor for what I was hoping to be a easy visit.

72 hours ago she tells me I have PCOS.

72 hours ago I burst into tears and couldn't breathe.

72 hours ago I had to tell the man I'm going to marry the same news.

72 hours ago I didn't even want to go home.

72 hours ago I couldn't look in the mirror.

That hasn't changed. I am at work and I can't even think straight. I wonder how this will effect us having children.

I'm terrified and I don't know what to do or how to even begin to deal with this.

GOVOLSGIRL · 11-05-2004, 05:11 PM

hi there. first of all, welcome. you will find lots of support and great information here. you are among friends.

Secondly, I would say that most of us understands what you are feeling right now. It was pretty devastating to me to learn that I have pcos. I cried and cried and cried after I was diagnosed. It stinks that you have it, and it will take a while for you to process it all, BUT, there are much worse things than PCOS.

The good news is now you know what's going on with your body. It would be much worse for you to go on none-the-wiser, and try to have a baby for 5 years before you realized the trouble. PLUS--so many women on this board have gone on to have successful pregnancies. I suggest you read the pg and mommy threads. they are encouraging! I am sure you wil lbe a mommy one day too.

This is a crappy diagnosis and I know you must be devastated. Just hang in there. You are not alone. The sun will shine again

Jashobeam · 11-05-2004, 08:16 PM

PCOS doesn't have to seem like a diagnosis of cancer. Many women with PCOS live healthy, long lives, many have children and find comfort from knowing there is a place like this to Rant, Talk, Laugh and Cry with women who know exactly what you are going through.

I know it can hit you like a ton of bricks, but it's not near as bad for many women as you may think. I have been living with PCOS for almost 20 years, but have only known for 2 years. My husband has been very supportive and we have drawn closer through this. Many women with PCOS end up PG with a change in diet (low-carb) or with medicines. There are 7 women in my family with PCOS and all of them have at least one child. We think my aunt may have had it way before PCOS was known about and she didn't have children. Today there are many options for treating the different symptoms of PCOS. You are not alone, and it's not hopeless. Please visit the chatroom at night and talk to some other PCOSers about their experiences. Tell them your story and they will listen and tell you what they have been through.

Step one is to talk to your doctor about what meds you may need to have and what tests they may need to run. You may have mild PCOS. There seems to be different levels. My sister-in-law has severe PCOS, but has two lovely children.

I hope this encouranges you that you are not alone, and there is hope for a long healthy life.

CathyWood · 11-05-2004, 08:23 PM

Hi Welcome to SC. I am sorry about all that you are going through. I hope that you will be able to go through your wedding. Relax and take it easy. We are here for you and won't let you down.

DancesWithTubas · 11-06-2004, 12:25 AM

Hi there,

It's understandable what you're going through! You were cruising on your way to marriage, and then this blind-sides you. We are TOTALLY here to help you through it. Try to focus on the happiness of your upcoming marriage. This has not changed who you are! You are not PCOS! And it is not a death sentence for having children. When I was first told about it, I thought that I would never have kids. (I'm not sure if that's what's upsetting you, but that's what hit me first) A lot of the literature and some doctors, just the statistics out there, sound really dire and unfriendly. But in reality, with proper treatment it's totally possible! You know what I just found out literally 10 minutes ago? I was talking to my mother, and found out that she was diagnosed with PCOS when she was young...but this was way back when it was called Stein-Leventhal syndrome and they didn't understand it as well. But even so many years ago, without ANY treatment, she was still able to have three children. They were rough pregnancies, but there are three of us! And now that we know more about this and have such effective treatments and therapies, women who can't get pregnant on their own have plenty of options. And just in treatment in general you have a lot of options. Educate yourself and it won't seem quite so scary. And we're here to support you!

Good luck in everything!

(((Hugs)))
Dances

samsam79 · 11-06-2004, 01:26 AM

Hey. I can relate. I just got marrie a month ago. this is so difficult! i found out exactly one month after i was married. any help would be greatly appreciated

burbuhas · 11-07-2004, 08:08 PM

Don't give up and don't be hard on your self, PCOS is not the end of the world. I was given the dx 15 years ago, I was 17 and scared to death. I was given a RX for BCP and sent on my way.
Not much was know about PCOS back then, there are so many different options right now. Alot of cysters have had great sucess with just changing there diet or with different medications, or natural remedies, the main thing is to find out what will work best for you. I use to think that PCOS ment that I would not be able to have children. I use to get so depressed, and it was very hard on my marriage because I felt that I was keeping him from having a family. So I went through years of trying everything I could possible think of to have a child. It wasn't until I finally came to terms with not being able to have children that I finally got pregnant. I focused on getting my PCOS under control and getting me better. My dr. put me on metformin and avandia. I was able to get my cycles regulated and my acne cleared up and my mood swings leveled out, I started loosing weight and I was feeling so much better about myself. Anyway the point to this is that after 9 years of ttc we finally did. I now have a one month old little blessing. It is very possible! I also wanted to let you know that I have two sisters and they both have PCOS and they both have two beautiful children. I wish you the best in your search for the right treatment for you and I wish you nothing but happiness in your up comming marriage, hugs