For years I have struggled with TONS of different symptoms from hearing trouble, pain,bad skin/acne, excessive hair problems, mood swings, irregular periods and blood sugar problems along with a huge number of others. I've been to doctor after doctor, AFTER DOCTOR for these symptoms, most of the time for some of them but not all and I actually had one doctor ask me if I was SURE I was having these symptoms and I wasn't just making them up?!!! But what I'm wondering is how through the years no doctor has been able to link it all together until NOW. This problem is pretty huge among women so why are most doctors so oblivious or unfamiliar with PCOS?? If someone had diagnosed this the 1st time or even the 2nd I wouldn't have been paying for ultrasound after ultrasound and CAT scans and sitting in ER's for HOURS because I've been in so much pain. (In the last 2 years alone I have spents well over $2000 in just co pays and ultrasounds alone!!) Part of me is relieved that I've finally found a doctor that can treat my immediate pain as well as help me long term and in the future when my guy and I get ready to get married and have kids but the other part of me is angry that I've had to fight so hard for so long for one freaking diagnosis!! Is anyone else feeling this too, or is this just another mood swing??
Hi! I feel your frustration, even though my problems have been occurring for only about 9 months now (since going of BC trying to have a baby). I have been having problems with missed periods, pain, thinning scalp hair, anxiety, and difficulty sleeping. My last doctor wanted to refer me to a psychiatrist and that really angered me. I feel she was not taking my symptoms seriously and since I am trying to conceive I was really frustrated. I finally went and saw and OB/GYN specialist at a large teaching hospital and they are working me up for PCOS. I was told by my other doctor that women with PCOS do not experience pain. What are your pain symptoms? I have burning, sharp pain (it feels like in my ovaries) when I am suppose to be getting my period. I don't get a period, but the pain lasts about a week. You have a right to be angry, but I am glad you are finally getting treated properly, especially if you want kids in the future. Good luck to you!
I was told by my other doctor that women with PCOS do not experience pain. What are your pain symptoms? I have burning, sharp pain (it feels like in my ovaries) when I am suppose to be getting my period.
That doctor is smoking crack. Polycystic Ovarian Syndrome is just that, cysts on or in the ovaries. Sometimes causes cyst and also causes the ovaries to be enlarged causing pain. My doctor has kept me on 650 mg of Darvoset because I've stayed in pain for the last 6 months. My pain feels like a sharp stabbing pain, in the pelvic/ovarian region, a doctor described it best when he said it feels like a hot sharp knife stabbing me in the ovaries. It get so bad I stay doubled up in bed on some days. I'm finally having surgery to have my pain resolved, but if yours is only once a week taking medicine should be able to regulate it I would think. I'm not a doctor but that's just what I've been told. Hope this helps!
__________________ Diagnosed with PCOS March 2009
Me (24), my DBF, Tommy(24) plus 1 fluffy cat (Maggie) and 1/2 puppy dog (Maddie) my 6 lb yorkie.
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Optimistically planning a wedding (January 16, 2009) and family (Hoping for 3 beautiful children.)
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I have the opposite problem everything I go to the doctors about they put it down to PCOS if there was something seriously wrong they would never know, I have to force them to test me properly.
I am glad to hear that you have found a doctor at last because they are far and few between.
__________________ PCOS is my Bugbear
I have had it now for 7 years
I am not on any meds at present
My Designs
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I have the opposite problem everything I go to the doctors about they put it down to PCOS if there was something seriously wrong they would never know, I have to force them to test me properly.
I can agree that would be very frustrating!! So on the opposite ends of the spectrum we have both been fighting against the incompetence of clueless doctors! How do these guys and gals get a license if they just throw random answers at something?! Sorry, I've been going through an angry mood streak lately. Its funny I go from being happy, to complete anxiety, then anger over all of this. But yea, I'll stop rambling now.
__________________ Diagnosed with PCOS March 2009
Me (24), my DBF, Tommy(24) plus 1 fluffy cat (Maggie) and 1/2 puppy dog (Maddie) my 6 lb yorkie.
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Optimistically planning a wedding (January 16, 2009) and family (Hoping for 3 beautiful children.)
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THYROID ISSUES WHICH leads to
hormonal embalance leads to
reproductive issues such as
ovulation problems which leads to
pcos which leads to
hirsutism
enlarged uterus and discharge caused by pelvic congestion from pcos
excess androgens, excess testosterone which leads to
enlarged clitiros, hair loss and the world simply turning to crap.
i wish i knew what comes first in order to treat this syndrome properly. i'm just kinda guessing here because no one seems to know. i mean afterall, it IS a domino effect so something has to go wrong FIRST to set all this in motion. what could it be? there is an answer. maybe a kind of birthdefect that manifest after ....something. what? i'm going to find out what IT is.
poor diet, diet pills, stressful childhood. i've had all of the above but....we're missing the trigger for all of this.
i mean afterall, it IS a domino effect so something has to go wrong FIRST to set all this in motion. what could it be? there is an answer. maybe a kind of birthdefect that manifest after ....something. what? i'm going to find out what IT is.
poor diet, diet pills, stressful childhood. i've had all of the above but....we're missing the trigger for all of this.
But perhaps there can be a great number of different causes and in varying proportions which can lead to the same or similar end result.
I agree, it is a "which came first" routine that gets very frustrating. It's nice for me to finally have a sense that they are at least coming from the same junk. Is that weird? Like I don't have to have any "guilt" for them since there's a reason it's all happening.
I stand corrected. SOME women have pain and some women don't. In the same way it was wrong for your doctor to generalize it and say that no women have pain I was also wrong for me to say that every woman does. Because you have PCOS doesn't mean you have ALL of the symptoms meaning the ovarian cysts, pain, hirtsuim (sp?), ect. but PCOS-this syndrome is recognized primarily through the Poly-CYSTIC- portion. I think this is why so many doctor's take so long to diagnose it.
__________________ Diagnosed with PCOS March 2009
Me (24), my DBF, Tommy(24) plus 1 fluffy cat (Maggie) and 1/2 puppy dog (Maddie) my 6 lb yorkie.
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Optimistically planning a wedding (January 16, 2009) and family (Hoping for 3 beautiful children.)
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PCOS-this syndrome is recognized primarily through the Poly-CYSTIC- portion.
Only by people who haven't read any actual research or diagnostic literature on pcos.
Quote:
Originally Posted by smshelton24
I think this is why so many doctor's take so long to diagnose it.
It takes a long time to diagnose because (among other things) it's a diagnosis of exclusion, and there is no clear diagnostic 'formula' for doctors to follow.
__________________
Hey, SoulCysters! Need to eat more veggies, but can't find recipes??
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Only by people who haven't read any actual research or diagnostic literature on pcos.
It takes a long time to diagnose because (among other things) it's a diagnosis of exclusion, and there is no clear diagnostic 'formula' for doctors to follow.
Thats so true Kat. i have an excellent RE in Chester Pa, Dr Elroiy. I went through a series of test and he wouldn't diagnose me until the very, very last test. It took a little over a month, but he stated, it was a process of elimination.
All these symptoms are LINKED?? 
i had to change dr surgery to get help in the end.
