I have not yet been formally diagnosed, but my research and test results leave no doubt in mind that I have PCOS. My LH:FSH ratio is 3:1, I am overweight, have always noticed blood sugar problems, battle with depression and now realize what those strange hairs on my stomach really are!
I am having a VERY difficult time with my anger lately - the more I read, the more I realize that I had symptoms for YEARS (high triglyceride level, weight gain, etc.) was being monitored by doctors (including endocrinologists) and NOONE until my OB/GYN did my LH:FSH levels as part of another test even SUGGESTED that I have PCOS.
In that time, I have had my gallbladder removed (due to hormone use or PCOS?), have had a blood vessel rupture in my eye and now have a permanent blind spot (also PCOS related? ) and have had to endure MILLIONS of comments such as "you have such a pretty face" or "I really like you as a friend, but I'm just not attracted to fat women" and comments from my family about how I just do not have my weight under "control."
I have also been hospitalized for depression - where they forced me to see a dietician and suggested I might be a Compulsive Overeater (the dietician decided I wasn't and was flabbergasted at how little I truly ate - I think he thought I was lying...) Then my employer refused to allow me to come back to work once I was released....
I wonder how different my life would have been had someone run the right test YEARS ago - what I would be doing (though I do love my current job) and whether a lot of the emotional pain and trauma I've gone through in the last ten years could have been avoided.
I know I can't change the past, but I'm having a very hard time accepting that at this point.
Did anyone else go through this when they were first diagnosed/first realized that they had PCOS?
I can totally understand that kind of anger. I once thought of suing my endo for continuing to give me bcp's when clearly I was having much worse symptoms on them then off. But i finally came to the conclusion that my anger was upsetting me the most and all that anger cannot be good for one person. Try to focus on now. Take the steps now to get to a better place. One thing at a time. That energy will help you out so much more. I send my highest hopes and prayers to you.
I've had symptoms since puberty. At my VERY FIRST gyn visit, he felt cysts on BOTH ovaries. But he never said anything about PCOS, just said we'd keep an eye on the problem. And I had excess hair growth then, too.
From there, flash forward to another gyn who, when I asked to be tested for PCOS because I have almost EVERY symptom, actually told me that "PCOS was made up by fat women who don't want to work at losing weight!" She said if I'd just eat less and exercise I'd be fine. That was last year - I'm still looking for another gyn after that. I did file a complaint with the insurance company against her, but she's still with them, probably causing other patients to run from her office in tears.
I've got calls into a few Endocrinologists who can actually do the testing and will (hopefully) take me seriously! So I definitely feel your pain. I wish there were more docs knowledgeable about PCOS - it's really hard to screen them, and it makes a painful situation even worse when you're forced to deal with idiots!
Very good point about living in the now - and unbelievable that a doctor told you PCOS was made up by fat women!
Had a phone conversation with my doctor about my lipid levels - I get the feeling he's never heard about PCOS - will bring literature to my visit next week. He was talking about losing weight - no, I've never heard THAT before!!! At least I know my OB-GYN has diagnosed PCOS in the past.
My frustration is compounded by the fact that I am living in the Czech Republic and not too sure if I'll even find the right doctor to help me - have made an appointment to see my old doctor in London over Christmas with the hope (and knowledge, from internet research!) that PCOS is better known in the UK and I will be able to find SOMEONE to treat me there. My London doctor has done an excellent job of sending me to specialists in the past....
So, just using the health professionals here to run the tests so I can bring them with me to London.... unless a miracle happens and my doctor here sends me to someone who's heard of PCOS
Anger And Frustration 
