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Old 03-28-2008, 09:42 AM   #1 (permalink)
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Default Antiphospholipid syndrome/blood clotting issues

Hi can anyone give me any first hand experience of this disorder, I have not been diagnosed with this, but I'm wondering..

My symptoms: 1 mc
blood clots in bruises
migraines
bad circulation(feel cold all the time)

Thanks Clare
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Me 34 Dh 37
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Old 03-28-2008, 10:57 AM   #2 (permalink)
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My best friend was just diagnosed with one of the subsets: Lupus anticoagulant. We only discovered it after she suffered a minor stroke (at 26!) a few months ago.

You have the same general symptoms that she had, but they also fit 8 billion other diseases. If you've only had one m/c, it might be hard to get the docs to listen to you---but since you're already dealing with fertility stuff, obviously, you actually have a chance to convince them to run the tests.

Definitely worth it if you can catch it early, my poor friend is on coumadin "indefinitely".
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Old 03-28-2008, 11:11 AM   #3 (permalink)
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I have had 5 losses and was diagnosed with Antiphosphilopid syndrome(aka Hughes Syndrome) after my 5th loss.

I need to be on baby asprin daily (ttc, while pg, or even if not ttc). If we do get pg then I will more than likely go on heparin shots daily. Also, bcp's are out of the question.

I know that most Drs will only run these test unless you have suffered multiple losses. I also agree that the symptoms do not really mean anything because I don't feel any of those.
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Old 03-30-2008, 07:26 PM   #4 (permalink)
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Thankyou both girls for sharing. I'm not really convinced I have this and agree that my symptoms could be anything (maybe just pcos!!)
thanks again, I might mention it to my doc just to see what she thinks but I'm not too worried now.
Clare x
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Me 34 Dh 37
Married 07/22/2000
TTC 6 years(with breaks)
Diagnosed PCOS 06/06
Moderate endometriosis
Glucophage 1500mg
Lap/dye left tube clear 11/07
OV-Drilling 11/07

Clomid 50mg
feb ov right prog 47
march ov left prog 64: bfp 6 week m/c
june ov
july ov

Injections
september ov right p 68
october ov left p

ectopic 08/2003
m/c 12/16/2006
m/c 04/26/2008


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