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Old 03-08-2003, 11:41 PM   #1 (permalink)
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Default Anybody else with LOCAH (late onset conget. adrenal hyperplasia)?

I've been a "lurker" but now, with a recently new diagnosis, I am seeking company and hoping to find it here since there is some overlap with LOCAH and PCOS. I am 32, known I have PCOS for ~10 years or so, but recently had my endo diagnose me with LOCAH (via ACTH stim test)...thus complicating my baby-making dreams.
So I'd love to hear if there are others out there, particularly if you've succeeded in having a baby.
Also, how long after beginning treatment with dex did you conceive/ovulate.
Me--I NEVER get a period unless I take 5 days of prog (no period, no O, right?). Now taking low dose of dex and glucophage 500mg/day. Month two. And praying.
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Old 03-09-2003, 12:46 AM   #2 (permalink)
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Click on the search button above and run a couple of searches:

1) "locah" - this will return many threads from cysters with the disorder...just reply to any that you find interesting to make the 'conversation' 'current' again.

2) "adrenal hyperplasia" - be sure to LIMIT your search ONLY to the "Research Articles" forum. This will return "research" on "locah". (interesting stuff...I ran a search earlier.)

Kat
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Old 03-09-2003, 06:44 PM   #3 (permalink)
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Hi

I've got locah as well as pcos. You can pm me if you want.

((hugs)) Eva
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Me 36, dh 31, son 6 years. Married 9 years.

Dx: PCOS, LOCAH, HS, Lichen Planus, IBS, raised bp, raised cholesterol

Spiro, Metformin, Bendrofluazide, Amlodapine, Atorvastatin, Prednisolone, Multi Vits, Co-Proxamol, Corsodyl

She is buffeted by the wind but she does not sink
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