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Old 08-25-2007, 06:50 PM   #16 (permalink)
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Thanks for the links. I'm off to the basement to my desktop to print them out now.
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Old 08-25-2007, 06:56 PM   #17 (permalink)
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When my old doc, who I ran screaming from, told me that as a diabetic I was in the same heart risk category as a person who had had their first heart attack I thought he was full of it....an easy thing to think because he was a complete idiot.

But it didn't take long to find out that on that note, he was correct. Being a diabetic means that I have to keep my cholesterol levels lower than the normal ranges....they have to be right in there with someone who has had a heart attack already.

Luckily for me cholesterol has never been an issue, although the standards changed last year and I haven't quite met them yet...I'll get there. But it's very standard for Type 2's to be put on a cholesterol medication just as a preventative measure.

My ob/gyn dx'ed me with PCOS the minute I said I was Type 2 and having trouble conceiving. He confirmed it with u/s, but he explained to me that the same insulin resistance that caused my T2 causes PCOS. Which is, obviously, one of many opinions on the market.

I've known about the inexplicable link between diabetes and hypothyroid....now add in PCOS.....and I have all three conditions like many women do. Definately linked.

But it becomes a which came first, the chicken of the egg kind of question.....

And if they are all three linked....then wouldn't it be a wise move for any woman who has one of the three dx'ed already to aim for the standards of all three? As a kind of preventative measure?



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Old 08-25-2007, 08:09 PM   #18 (permalink)
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Quote:
Originally Posted by Saille View Post

My ob/gyn dx'ed me with PCOS the minute I said I was Type 2 and having trouble conceiving. He confirmed it with u/s, but he explained to me that the same insulin resistance that caused my T2 causes PCOS. Which is, obviously, one of many opinions on the market.
Tis true: Insulin resistance in PCOS is not a feature of PCOS per se
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Old 08-25-2007, 08:21 PM   #19 (permalink)
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As I mentioned, I was diagnosed with high cholesterol in kindergarten. Was this the first sign that I was heading towards pcos? If I had gotten it under control early, could I have avoided other complications? *shrugs*

When I first began PCOS treatments in my late 20's my first lab to change was my cholesterol. The bad got worse, and the good got better. Over a period of time, it normalized...
Kat,

Were you actually in kindergarten when Dx'd with high choloesterol, or are you using this term to emphasize that you were pretty young?

I am asking because I had a friend whose DD was Dx'ed with high cholesterol a few years ago, and she was pretty young, probably 2nd or 3rd grade. I think her docs came up with some thyroid or adrenal problem that she would "grow out of". Would they consider PCOS at such a young age?

I noticed that you said that your cholesterol levels have normalized over time. Would you say that it is mainly due to the diet, exercise, and cleansing that you have done that have put your PCOS into remission, or other treatment?

If this is the case, if putting PCOS, as a whole, into remission could help with ALL PCOS related symptoms, wouldn't it be better to seek treatment of PCOS as a whole, rather than just focus on the treatment of each individual symptom?

I, personally, am afraid to take new drugs like the statins, because in the drug commercials, there is always a long list of side effects, including liver damage, and I am always seeing advertisements from lawyers about class actions lawsuits that have been filed against the makers of some of these new drugs, because they have caused stroke, heart damage, etc.

Of course, the fact that I have usually been preparing to TTC, TTC, PG or breastfeeding has also kept me away from the statins.
I was Dx'd with high cholesterol a few years ago, before I was Dx'd with PCOS, but it was when my PCOS symtpoms were at their worst. My GP wanted me to start taking a statin, but since I was TTC (even though it was not very successful thanks to the PCOS) I chose not to.

I will be sure to keep an eye on my cholesterol levels after this baby is born. It will be interesting to see if my cholesterol levels have changed, now that I have put my PCOS into remission.
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Old 08-25-2007, 08:52 PM   #20 (permalink)
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Originally Posted by lachicarubia View Post
Were you actually in kindergarten when Dx'd with high choloesterol, or are you using this term to emphasize that you were pretty young?
I was actually in kindergarten. I recall the doctor explaining to my mom that she should stop feeding me eggs, and I said, "But I LOVE eggs!", and the doctor looked at me and said, "You don't want to die do you?" I said, "No." and she said, "Then stop eating eggs." (She scared me so badly, it's probably why it's one of the few childhood dr appts I recall.)

Quote:
Originally Posted by lachicarubia View Post
I am asking because I had a friend whose DD was Dx'ed with high cholesterol a few years ago, and she was pretty young, probably 2nd or 3rd grade. I think her docs came up with some thyroid or adrenal problem that she would "grow out of". Would they consider PCOS at such a young age?
Since PCOS is a syndrome, not a 'disease' per se, the Dx might not be PCOS, but the person might be seen as high risk for pcos. (but i'm not a doctor, so don't quote me on that...)

Quote:
Originally Posted by lachicarubia View Post
I noticed that you said that your cholesterol levels have normalized over time. Would you say that it is mainly due to the diet, exercise, and cleansing that you have done that have put your PCOS into remission, or other treatment?
Cleansing didn't have anything to do with it. I think it was dramatic change in diet, dramatic change in exercise, and now that I think of it, probably the fact that I took flutamide. (see here regarding Flutamides effect on lipid levels: The Effect of a Pure Antiandrogen Receptor Blocker, Flutamide, on the Lipid Profile i )

In the beginning of my overhaul, my bad cholesterol got worse, and the good got better, and then it all got better.

Last time my cholesterol was checked, I was 'better than normal'. But I want it better than 'better than normal'.

Quote:
Originally Posted by lachicarubia View Post
If this is the case, if putting PCOS, as a whole, into remission could help with ALL PCOS related symptoms, wouldn't it be better to seek treatment of PCOS as a whole, rather than just focus on the treatment of each individual symptom?
Of course. But the primary (foundation) of any treatment isn't anything that pcos patients need to 'seek' from doctors - strict healthy eating and lots of physical activity - they shouldn't be seen as 'only for weight loss'. they should be viewed as critical for proper body function.

Quote:
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I, personally, am afraid to take new drugs like the statins, because in the drug commercials, there is always a long list of side effects, including liver damage, and I am always seeing advertisements from lawyers about class actions lawsuits that have been filed against the makers of some of these new drugs, because they have caused stroke, heart damage, etc.
Zocor isn't all that new. All drugs have side effects, and they're required by law to disclose them in commercials. I'm not advocating it, but just sayin'.

That said, I never take 'new' drugs.

7 doctors all said no to me when I wanted to take flutamide, but after reading the research and the track record in Europe I felt it was worth a try since traditional US meds weren't working for me. Flutamide wasn't then, and isn't now FDA approved for use in women.
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Old 08-25-2007, 09:03 PM   #21 (permalink)
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Thank you! I read the whole thing.
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Old 08-28-2007, 08:43 AM   #22 (permalink)
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I was thin when I was diagnosed, I was 16ish. Boy how the weight quickly found me once I turned 19.

Orignally posted by KatCarney
[I don't know about you, but I was diagnosed with high cholesterol in KINDERGARTEN...by then, mine was over 200!)]

Kat-my DD has elevated cholesterol too. Her total cholestrol was 208, she is 7 years old. Her HDL was to low, 34 and her triglycerides where high also. She has been diagnoses with Central Precocious Puberty. Her pediatric endocrinologist said that early puberty can cause increased cholestrol. She also said it is also related to my familial history of PCOS. Did the MD's do anything for you when you were in kindergarten? They are watching my DD levels...my whole family have CVA etc.

ps...how do you insert another cysters quote into your own reply?
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Old 08-28-2007, 09:03 AM   #23 (permalink)
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Thanks for showing this, i've been reading it and just bookmarked this.
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Old 08-28-2007, 10:06 AM   #24 (permalink)
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I was 8 when I was told I had high cholestorol. I have not had a chance to read the whole thing yet, did the articles say anything about D-Chiro-Inisotol? My Dr. seems to think that drug will be a wonder drug for PCOS.
I am worried about my daughter, and what ian do to protect her.
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Old 08-28-2007, 11:49 AM   #25 (permalink)
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Did the MD's do anything for you when you were in kindergarten? They are watching my DD levels...my whole family have CVA etc.

ps...how do you insert another cysters quote into your own reply?
When I was in kindergarten, my mom was told to stop feeding me high cholesterol foods. No meds, or anything.

To quote, look in the lower right corner of any post. If you want to quote several people in a thread (like I have in this one), click the MQ button in each post you want to quote. When you get to the last one, and you're ready to write, hit QUOTE. If you only want to quote one person, just hit QUOTE in that post.

Quote:
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I was 8 when I was told I had high cholestorol. I have not had a chance to read the whole thing yet, did the articles say anything about D-Chiro-Inisotol?
No. There are several threads about this down in Alternative Remedies. The drug that was being developed w/ d-chiro was abandoned several years ago.
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Old 09-03-2007, 12:32 AM   #26 (permalink)
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The studies are back on d-chiro-inositol. There is a study going on right now with obese PCOSers, focusing on whether or not they have increased renal clearance of the chemical DCI compared to the normal population. It was a miracle for me, but I don't know if we'll ever see it FDA approved or mass-marketed.
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Old 09-10-2007, 06:02 AM   #27 (permalink)
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crossing my fingers my levels are low. I am still wait for the day I will be told I have it.
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Old 09-11-2007, 10:59 AM   #28 (permalink)
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The other articles now require you to be logged in (at least they did for me).
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Old 09-22-2007, 11:14 PM   #29 (permalink)
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And after reading those articles about cholesterol being such a critical thing to lower, it makes this article even more important: http://www.soulcysters.net/pcosers-s...sterol-219012/
Speaking of PCOS and Cholesterol, see here:

PCOS doctor favors a cholesterol test as screening tool for PCOS

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The other articles now require you to be logged in (at least they did for me).
I think all articles at the NYTimes site are now freely available.
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Old 09-23-2007, 12:07 AM   #30 (permalink)
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Wow! Thanks for the info. I am so glad that they are finally beginning to figure this all out.
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