http://helping-sarah.blogspot.com
Hi! I'm Sarah's mom, Lina. I've set up this blog to help document Sarah's new journey. Let me start and share some of Sarah's history with you, just to get you up to speed.
Sarah was born almost 2 1/2 years ago in a small Iowa town. When Sarah was born, they discovered a large blood clot in her brain. We were very luckily that this was caught and with a 4 hour surgery, the blood clot was removed. Sarah was sent home after 3 weeks in the NICU. Unfortunately, Sarah suffered much brain damage that she was diagnosed with cerebral palsy and epilepsy. At 2 1/2, she is unable to walk, talk, crawl or feed herself. However her beautiful smile and loving gestures make all the extra work we do for her worthwhile.
This is the start of Sarah's journey for some type of recovery. Sarah's dad and I have been researching stem cell treatment for CP. At Duke University, they were able to use stem cells from banked cord blood (this is blood that was saved during the delivery from the placenta) to help those children with CP. Many were able to talk or walk for the first time. However, I never saved Sarah's cord blood so we had to find something else.
After much consulting with Sarah's doctors here as well as the experiences of other children, Sarah's dad and I have decided we would do this for Sarah. Even though, most likely, she won't be a typical child after all this, her chance of having a better quality of life is great.
We have started this, so we can share Sarah's experience with everyone. Perhaps some of the information we learn along the way can help another family going through this.
http://helping-sarah.blogspot.com
Hi! I'm Sarah's mom, Lina. I've set up this blog to help document Sarah's new journey. Let me start and share some of Sarah's history with you, just to get you up to speed.
Sarah was born almost 2 1/2 years ago in a small Iowa town. When Sarah was born, they discovered a large blood clot in her brain. We were very luckily that this was caught and with a 4 hour surgery, the blood clot was removed. Sarah was sent home after 3 weeks in the NICU. Unfortunately, Sarah suffered much brain damage that she was diagnosed with cerebral palsy and epilepsy. At 2 1/2, she is unable to walk, talk, crawl or feed herself. However her beautiful smile and loving gestures make all the extra work we do for her worthwhile.
This is the start of Sarah's journey for some type of recovery. Sarah's dad and I have been researching stem cell treatment for CP. At Duke University, they were able to use stem cells from banked cord blood (this is blood that was saved during the delivery from the placenta) to help those children with CP. Many were able to talk or walk for the first time. However, I never saved Sarah's cord blood so we had to find something else.
After much consulting with Sarah's doctors here as well as the experiences of other children, Sarah's dad and I have decided we would do this for Sarah. Even though, most likely, she won't be a typical child after all this, her chance of having a better quality of life is great.
We have started this, so we can share Sarah's experience with everyone. Perhaps some of the information we learn along the way can help another family going through this.
http://helping-sarah.blogspot.com
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