Complex Hyperplasia with Atypia (severe)

Retsbreh · 10-13-2009, 11:47 AM

Well, I think my fertility journey is over. I am scheduled for a full hysterectory in a couple of weeks. I had a D&C done around September 4th and they found a SEVERE case of Complex Hyperplasia with Atypia. I was immediatly referred to a Gyn Oncologist and he said that everything needs to go. He said that I could try Megace but he didn't think that it would work in my case. He said that there is a 50-50 chance that it will develop into cancer and there is at least a 20% chance of it already being cancer. Those odds are too high for me to ignore. Our fertility journey started over 12 years ago. I have put my body through a lot for the hope of having a beautiful child just like my husband. I believe that God is trying to tell me that there is a child out there that is waiting on me to adopt him or her.
I can honestly say that I am not as worried about the hysterectomy as I am concerned about my husbands feelings. He says that he is ok and they he just wants me to be ok. He says he is fine with adoption and that there are a lot of children that need good homes. I just feel like I am cheating him out of a child. I am sorry for the rant but i just needed to get my feelings out in the open. Thanks for listening!

CiltiusAltiusFortius · 10-13-2009, 07:02 PM

Retsbreh, we don't know each other but I read your post. I am so sorry that you are going through this. It's such a blow and a scare at the same time. Don't know if any words can help right now, but the fact that you care so much about your family and motherhood surely mean that you will be a wonderful, caring, generous mother to a child or multiple children should you and your husband choose to adopt. The world needs more people like you. Praying for your health.

Retsbreh · 10-13-2009, 07:22 PM

Quote:

Originally Posted by CiltiusAltiusFortius

Retsbreh, we don't know each other but I read your post. I am so sorry that you are going through this. It's such a blow and a scare at the same time. Don't know if any words can help right now, but the fact that you care so much about your family and motherhood surely mean that you will be a wonderful, caring, generous mother to a child or multiple children should you and your husband choose to adopt. The world needs more people like you. Praying for your health.

Thank you so much. I am so worried about him. I am scared about the surgery also but I am more worried about him. Thank you so much for you very kind words. I love this website. I don't usually comment much but I do watch and read. It has been a big help.

Christinag · 10-19-2009, 01:00 AM

Retsbreh, I just wanted to say that I'm sorry you are going through this and also to say that don't just take what your doctor says as that's it. I actually was diagnosed with endometrial cancer. I have 1 child but was in the process of starting fertility treatments when I was diagnosed. I was told hysterectomy was the only way. In my heart I just could not accept that was it. I just knew that was not for me. I did A LOT of research on megace treatment and still do and decided to give it a try. Luckily, my gyne onc gave me this option first and did not push a hysterectomy because of my age and megace has a good success rate in women in child-bearing age. I have now been on megace for 4 months. I just had my 3 month d&c a few weeks ago and the results were great! While I still do have some cancer cells left, there was as my doctor put it "a tiny amount left and only in one spot". Before it was scattered throughout the tissue. There are a lot of success stories out there. It's a little hard to find in our age range but there is success. If in your heart you are truly ok with a hysterectomy and feel that's the right decision- go for it. I just want you to know that there is another option and sometimes doctors are too quick to push the surgery.