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Old 02-07-2006, 04:56 AM   #1 (permalink)
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Default Conflicting diagnosis- Help

hello, I am looking for some advice

History:
I have had 2 cysts removed from ovaries. A year after the opperation I had persistant abdominal pain, spotting heavy/light/absent menstruation and breast discharge and additional load of miscellanious symptoms. Bloodwork showed (from recollection) high Androstenedione and TSH levels. Also high blood pressure was evident. The doctor diagnosed PCOS and Hypothyroidism, this was 4 years ago.

Present GPO Bloodwork now shows TSH @5.4 elevated Progestrogen but normal Androstenedione & T4 which my present Doctor is confused by
Even though symptoms of Hypothyroid have increased, I have 2/3 of the symptoms on the Hypothyroid checklist ... Http://www.soulcysters.net/showthread.php?t=53369 and I am sleeping my life away. my new doctor is confused by the results and thinks that I don't have PCOS and I don't have Hypothyroidism as she feels the elevated TSH for myself could be "my normal" level

If the doctor is confused that makes me twice so I have been forwarded to an endocrinologist.

As I am presently dumbstruck, has anyone any advice as to the correct questions I should be asking this new doctor in order to get a propper diagnosis?

Thanking you,

Dag
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Old 02-08-2006, 05:19 AM   #2 (permalink)
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i would be sleeping my life away with a tsh like yours. i think an endo will be able to help you more....

are you on meds or???
i know ther are people on here that can help you more than i can... but i will say to believe in yourself!!! also you might want to check out www.thyroid.about.com

one thing i would do if you arent already is getting all copies of your lab work...

i hope some of the "experts" on here can help you more!!! i hope you feel better soon!!!!
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Old 02-08-2006, 08:17 AM   #3 (permalink)
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Well, at least your confused doc has referred you to an endo. You need to have a free T3 and a free T4 test done (you only mentioned T4, and it is likely that was a full T4, not a "free" one) in order to see how much thyroid hormone your body is actually using. You can have normal T4 but low T3, meaning your body isn't converting T4 to T3. T3 is the "metabolism" thyroid hormone, and when it's low you can feel like crap. Your TSH is high, meaning your pituitary is working overtime to tell your thyroid to produce more hormone, and since you have symptoms it probably means that either you're not converting to T3 and/or your free T4 is actually low but your doc didn't bother to test it (the free T3 and free T4 should be at least midway in the lab range, but upper quadrant is optimal).

A normal or elevated progresterone level is not enough to rule out PCOS either. There are many other tests and signs to take into consideration, and an endo will be better able to help you with that.

Good luck in getting the treatment you need,

Linda
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Old 02-09-2006, 08:10 PM   #4 (permalink)
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Thank you both you have been very helpfull.

At this point in time I dont have much faith in the medical profession as I just found out my Doctor made an appointment with a specialist that dosn't exist. (give me patience )

None of the three separate bloodtests tested for T3. I believe that allot of doctors refuse to test this as it is timeconsuming and expensive. I will request a copy of the labwork as you advised.

My partner found a very usefull site regarding labwork, I'll post the link later ( he's out shopping for groceries whist I snooze )

Once again tank you both

Dag
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Old 02-10-2006, 02:02 AM   #5 (permalink)
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Heres that link, it is very good

http://www.labtestsonline.org/
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