Aphrodite82

---

I went to my doctor last year complaining of sharp pains in my ovaries and a sudden on set of a stabbing pain, he referred me to the Gynae who did a intervaginal scan which showed I had multiple cysts all over my ovaries, he concluded that one of the cysts was quite large and that he wanted to do surgery so I went back to my doctor who disagreed with the surgery and told me it was a very drastic and severe approach so the surgery never happened.

2 weeks later while travelling across town I crippled over in pain and could hardly walk (rang my bf) and got to my doctor straight away who sent me to hospital where they confirmed that I was internally bleeding from the cyst rupturing. So I had an emergency Lapioscopy to remove all the cysts and the burst one.

I then went back again 6 months later for a check up after having the same pains again to be told that I had multiple cysts all over my ovaries again (by this time my old gynae had left and I now had a new female gynae) she checked my bloods and my hormone level and insulin + tyroid tests came back fine except my prolactin which in the last 6 months has elevated to 41.3. The gynae said I didnt have PCOS just by the fact that my blood tests all came back fine.

Now a year later Im getting the stabbing pain again, get crippled over and feel like theres a pulling in my ovary area every now and again.

The Symptoms I have are:

Numerous Cysts on my ovaries
Enlarged Ovaries
Ive suffered from bad skin for over 12yrs
Im excessively Hairy (back, stomach, chin, upper-lip, jaw line, & toes)
Regular periods although very heavy and very painful (every 21-24days)
Pelvic Pain
Excess weight around the abdomin
Oily Skin
Hair Loss (Falls Out while washing it in the shower)
High Prolactin Levels (41.3mg)
Past Ruptured Ovarian Cyst (was the size of a 50p coin before rupture)
Cysts Removed Feb06, new multiple cysts found Aug06
I have a Family history of gynae problems on my mothers side raging from suspected un-diagnosed PCOS (had all the symptoms I have) which led to a full hysterectomy at the age of 29 (that was my mother) and my grandmother who had a full hysterectomy (my mothers mother) both also had suspected uterine cancer.

Does it sound like I have PCOS, my gynaecologist is s**t and because I live in a middle eastern country there not exactly forth coming about any of this and just keep fobbing me off!!! Im 26 this year have been in a relationship for 5yrs and would someday like to have kids!!! But my gynae leaving all of this undiagnosed and just saying I have cysts is leaving me highly worried! Because my blood tests came back normal my gynae says I dont have it but my gp doctor and a family friend who is a womans clinic nurse reckons I have? I have another appointment with the gynae on tuesday to find out what the hells going off, but what should I say to her? Shes just over all useless about all of this!!!!

HELP HELP HELP!!

sk81

Dear Aphrodite82, first of all, I'm really sorry to hear about your problems, it must be quite scary to have a cyst rupture and to experience so much pain! From the description of your symptoms, it does sound like PCOS, however, you said that your blood tests came back normal. I'd ask for a second opinion, if I were you, and if it's not too much trouble for you, maybe also repeat the tests? Even if it does prove not to be PCOS, you should be given medication to help with the ovarian cysts and the intense pain they cause you, as well as treatment for your bad skin and extra hair. I hope that very soon you'll have a definite answer!!

Merrylou29

We may have the same problem. I have all the symptoms of PCOS yet my blood results all came back in the normal range except for my prolactin levels. I don't know what that means either. I would make sure to tell the doctor about your family's previous history with hysterectomy because you don't want to go down that road. Good luck.

__________________

Aphrodite82

I got my prolactin results back yesterday and after 8 months of my prolactin gradually going up to 41.3, yesterdays results showed that it had gone down to 28.0, the nurse I went to see was extremely happy about it and because shes an expert in womens problems she said that it was more than likely due to the Yasmin contraception pill I was on, I came off it In january.

So now Im off that, my prolactin has dropped alot since then but I still have a Gynae appointment on thursday. I have already told my Gynae about my past history of problems in the family and still with no luck they refuse to do anything about the cysts. So hopefully this time she might start taking note if not I havent got a clue what to do.

This morning I had terrible pain in my lower abdomin and still have a dull aching pain. Bloody Gynae better do something!!!! Cause its getting rediculous!