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Old 05-25-2005, 11:57 AM   #1 (permalink)
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Unhappy cysters with endometriosis, please tell me it gets better!

I really feel as if my problem is just endometriosis and I don't really have PCOS. I need the women that have endo to tell me it does get better. I have an appointment to schedule my second laproscopy this Friday. The pain is really bad, my prescribed pain meds don't even touch it, they just take the edge off. When I was diagnosed 3 years ago it was a moderate case, stage 3 according to doctor. I think that it is much worse now. The pain is worse, and it is all over my abdomen and back. I think it has spread. I ordered a book, Coping with Endometriosis, and there is so much more that can be affectedt that I didn't know about. I am really scared. I have always had stomach problems over the last 3-4 years and they never linked it to the endo but that is what it is. I am always tired. I really need a doctor that specializes in treating endo but I am new to the area where I live. I am currently going to a clinic and I am so afraid that they will tell me it will be 2 months out before they can do the surgery. I need it now. Ugh! Please tell me it will get better. Anyone with this that wants to be a penpal with me?
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Old 05-26-2005, 12:54 AM   #2 (permalink)
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I am sorry for your pain.

I too know what you are going through. Endo is a painful issue that most things don't help.

BUT.....There is HOPE!
I did get relief from surgery, but not total.

I have several links in my siggy that can be of use to you.

Endo is a hormone triggered health issue that effects the reproductive system. When you have endo, it can spred to any organ in your body.
But mainly it stays with your reproductive organs,bladder and colon.
The severe pain you are feeling is actually from the scar tissue the endo caused.(Scab,bleed,scab, scar tissue forms) That scar tissue then attaches it's self from one organ to another. Just like a spider web!
When muscles contract it pulls on the adhesions and that causes the pelvic pain.

What I am about to tell you you may find unbelievable, but it works.
PELVIC FLOOR PHYSICAL THERAPY

They can help stretch them to relieve the pain.
It will be painful at first, but after a couple weeks, you will see a big diference. Also remember each surgery, you are more likely to develope additional adhesions. So every 5-10 years you may need a "tune up".

More info you really need to know is that .......

Estrogen FEEDS Endometreosis
Progestin FEEDS Andeomyosis

So if you have both(like I did) BCP/HRT will cause more pain.

Let me know if you have any other questions.
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Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

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Old 05-26-2005, 09:42 AM   #3 (permalink)
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patty ann russ, you suggested in my post about this that i try these excercises and although i haven't been diagnosed yet but i have to say they help beyond belief, its like stretching an aching muscle you can feel it when your doing it but as you do it gets less painful. you're a life saver, i dunno how i'd have gotten through my uni exams without relief but you've given it. thank you!!
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Old 06-01-2005, 04:47 PM   #4 (permalink)
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Post well, got my surgery....

I got my surgery scheduled. It isn't until August, guess I will bear with it until then. Maybe I will get pregnant before then. I am not seeing a specialist or anything. I don't know any in this area where I moved. I am having the surgery by a doctor at my clinic. I hope he is good. I am nervous of what they will find when they do the surgery. Thank you so much for your support. What types of stretches are used for pelvic floor therapy? I work at a place that has different types of therapists and they couldn't really tell me.
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Old 06-01-2005, 04:59 PM   #5 (permalink)
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Quote:
Originally Posted by leahdione
I really feel as if my problem is just endometriosis and I don't really have PCOS.
I have felt that way before. The endo pain becomes primary in one's mind when you are in much pain. I had laproscopy about a year ago for my endo and I'm taking seasonale so AF doesn't visit as often. That has helped me tremendously. I don't know for how long. I do get little pains occasionally and feel some discomfort but its better than it was. I'm thankful for that.

I would like to know more about the stretches mentioned. I've noticed that it really helps me to stretch particularly involving my abdominal muscles. I just don't know any particular move that would help best.
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