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View Poll Results: Have you ever doubted your diagnosis?
Yes, sometimes 8 21.62%
Yes, all the time 1 2.70%
No, I'm sure my dr was right 28 75.68%
Voters: 37. You may not vote on this poll

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Old 12-03-2007, 06:47 AM   #1 (permalink)
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Question Diagnosis

I couldn't sleep so i've been catching up with my PCOS reading, and i've come across a few articles that basically say that not everyone that has been diagnosed with PCOS has it and that having a few of the symptoms is not really indicative of actually having PCOS. I know most of us struggle to get a diagnosis. But now I wonder, how many of you have ever thought that they were misdiagnosed? Since i have nothing else to do, i'm starting a poll
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Old 12-03-2007, 11:34 AM   #2 (permalink)
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I voted yes, sometimes. I've never been tested for Cushing's, hypothyroid, etc. so sometimes I wonder if those could be the reasons for my problems, but I have way too many symptoms of PCOS to really think I don't have it.
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Old 12-03-2007, 11:48 AM   #3 (permalink)
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ive got pcos and late onset cah
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Old 12-03-2007, 01:12 PM   #4 (permalink)
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5 Types of PCOS
http://www.soulcysters.net/women-eve...ight=diagnosis
Diagnosing PCOS in women who menstruate regularly
Ovulatory Polycystic Ovary Syndrome A New Disorder
Making Pcos Less Confusing
http://www.soulcysters.net/pcos-mark...ight=diagnosis
http://www.soulcysters.net/handy-ser...o-gyns-113156/
PCOS: Get a Diagnosis
Other hormone disorders!
http://www.soulcysters.net/guide-und...ts-pcos-63885/ (http://www.inciid.org/faq.php?cat=co...arymed&id=2#81)
Preparing for Your PCOS Consultation: Questions to Ask Your Doctor
http://www.soulcysters.net/signs-pco...ight=diagnosis
Myth - There Is A Test For Poly-cystic Ovary Syndrome
http://www.medreviews.com/cme_progra...q.asp?nav=6#02
Ultrasound alone does not diagnose PCOS - Patient Oriented Evidence that Matters
Diagnostic Criteria Refined And Risks Spelled Out For Polycystic Ovary Syndrome
Study suggests hirsutism is a more common sign of PCOS than menstrual dysfunction
The Newbie Road Map
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Old 12-03-2007, 04:22 PM   #5 (permalink)
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When I was first diagnosed, I was the one who brought all the PCOS symptoms to my family dr and told him I thought I had it. He ran some blood work and agreed. I lost insurance after that and over the years I have wondered if some of the symptoms were due to other conditions that I might have. Finally, after having an ultrasound and blood work ran by my current gyno, I'm confident that I do have PCOS...even if I've gotten my hormone levels in control now.
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Old 12-04-2007, 01:59 PM   #6 (permalink)
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I'm a lucky cyster who has fairly mild symptoms, other than horrible pain and irregular cycles. I would question the diagnosis, but I have had just about every test in the bood run. PCOS also explains a lot of things that, although not technical symptoms, seem to go along with PCOS.
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Old 12-04-2007, 03:57 PM   #7 (permalink)
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I'm 100% sure my dr was right. I believe sometimes I'm more sure about my dg than doctors.
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Old 12-04-2007, 05:02 PM   #8 (permalink)
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I never really thought much about it, since I wasn't TTC and on BCP, so my cycles were clockwork. But after I gained 30 lbs when I stopped BCP, I went to a gyno and he doubted the original dx. He ran some tests (haven't had the follow up appt. yet), but in my ultrasound yesterday the tech showed me the cysts...so I guess it's for real.
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Old 12-05-2007, 12:19 AM   #9 (permalink)
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I knew my doctor was right on the diagnosis because the first thing he did was run the blood test on me, I also had many simptons such as the irregular periods, the overweight and the insulin resistance.
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Old 12-05-2007, 12:00 PM   #10 (permalink)
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I never doubted my Dx (granted, I was only officially diagnosed two days ago ...

Really I thought some of my symptoms were just body stress after an injury a year ago, but since it has taken so long to get back to normal I thought I'd have tests done. My dr referred me to gyno, gyno ran tests and referred me to endo -- endo says yup, PCOS.
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Old 12-05-2007, 12:29 PM   #11 (permalink)
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I doubted the first doctor's diagnosis after learning more about it. But when we started TTC my dr did a blood test to look at the ratio of the hormones and she confirmed PCOS. I also had a sono done and the tech looked at my ovaries and said, "Oh, look at that - classic PCOS ovaries". So, I voted "NO" - my doctor was right on the money.
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Old 12-05-2007, 04:45 PM   #12 (permalink)
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I did doubt at first, but the Met has worked so well, I figure he's probalby right..

I'm thin, never been tested for IR
lab work comes back mostly normal
I have cysts in my ovaries (string fo pearls)
no excess hair and I don't think hair loss,
mild acne
irregular periods
trouble concieving

So... not exactly text book, but I believe it now.
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