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View Poll Results: Have you ever doubted your diagnosis? | |
Yes, sometimes
|     | 8 | 21.62% | |
Yes, all the time
|    | 1 | 2.70% | |
No, I'm sure my dr was right
|    | 28 | 75.68% |
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12-03-2007, 06:47 AM
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#1 (permalink)
| | Registered User
Join Date: Dec 2005
Posts: 977
My Mood:  Points: 3,794.15 Bank: 954,380.14 Total Points: 958,174.30 |  Diagnosis
I couldn't sleep so i've been catching up with my PCOS reading, and i've come across a few articles that basically say that not everyone that has been diagnosed with PCOS has it and that having a few of the symptoms is not really indicative of actually having PCOS. I know most of us struggle to get a diagnosis. But now I wonder, how many of you have ever thought that they were misdiagnosed? Since i have nothing else to do, i'm starting a poll 
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12-03-2007, 11:34 AM
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#2 (permalink)
| | Documentarian
Join Date: Mar 2007 Location: New England
Posts: 908
My Mood:  Points: 18,305.79 Bank: 153,897.57 Total Points: 172,203.35 |
I voted yes, sometimes. I've never been tested for Cushing's, hypothyroid, etc. so sometimes I wonder if those could be the reasons for my problems, but I have way too many symptoms of PCOS to really think I don't have it.
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12-03-2007, 11:48 AM
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#3 (permalink)
| | UK Mod
Join Date: Mar 2004 Location: South Wales
Posts: 13,721
My Mood:  Points: 44,484.07 Bank: 4,689,344.50 Total Points: 4,733,828.58 |
ive got pcos and late onset cah 
eva
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PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Colefac, multi vits,
Me - 41, hubby 36 son 11. Married 14 years
She is buffeted by the wind, but she does not sink.
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12-03-2007, 01:12 PM
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#4 (permalink)
| | Blessed
Join Date: Oct 2004 Location: Piedmont Triad of NC, USA
Posts: 17,436
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12-03-2007, 04:22 PM
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#5 (permalink)
| | Proud Mommy! :)
Join Date: Nov 2007 Location: Louisville, Kentucky
Posts: 846
My Mood:  Points: 130,154.17 Bank: 274,846.95 Total Points: 405,001.12 |
When I was first diagnosed, I was the one who brought all the PCOS symptoms to my family dr and told him I thought I had it. He ran some blood work and agreed. I lost insurance after that and over the years I have wondered if some of the symptoms were due to other conditions that I might have. Finally, after having an ultrasound and blood work ran by my current gyno, I'm confident that I do have PCOS...even if I've gotten my hormone levels in control now.
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12-04-2007, 01:59 PM
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#6 (permalink)
| | Registered User
Join Date: Sep 2007 Location: Michigan
Posts: 68
Points: 1,663.84 Bank: 76.71 Total Points: 1,740.55 |
I'm a lucky cyster who has fairly mild symptoms, other than horrible pain and irregular cycles. I would question the diagnosis, but I have had just about every test in the bood run. PCOS also explains a lot of things that, although not technical symptoms, seem to go along with PCOS. | |
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12-04-2007, 03:57 PM
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#7 (permalink)
| | Registered User
Join Date: Nov 2004 Location: Europe
Posts: 374
Points: 3,667.41 Bank: 11,306.62 Total Points: 14,974.03 |
I'm 100% sure my dr was right. I believe sometimes I'm more sure about my dg than doctors.
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Me 30
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DH 31
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Dx:
pco, endometriosis, bp
Taking:
NPC
50mg Soy cd 5-9
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12-04-2007, 05:02 PM
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#8 (permalink)
| | Better Than I Deserve...
Join Date: Jul 2003 Location: B'ham, AL
Posts: 1,168
My Mood:  Points: 19,423.48 Bank: 768,807.65 Total Points: 788,231.13 |
I never really thought much about it, since I wasn't TTC and on BCP, so my cycles were clockwork. But after I gained 30 lbs when I stopped BCP, I went to a gyno and he doubted the original dx. He ran some tests (haven't had the follow up appt. yet), but in my ultrasound yesterday the tech showed me the cysts...so I guess it's for real.
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LJ (27) ~n~ Big Mac (27) Butterfly Pasta Noodle expected Early April '09 Dx PCOS - 2001 *** 1000mg Met *** BCP free since 2/07
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I have PCOS...but PCOS doesn't have me! | |
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12-05-2007, 12:19 AM
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#9 (permalink)
| | Registered User
Join Date: Nov 2007
Posts: 18
Points: 245.10 Bank: 0.00 Total Points: 245.10 |
I knew my doctor was right on the diagnosis because the first thing he did was run the blood test on me, I also had many simptons such as the irregular periods, the overweight and the insulin resistance. | |
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12-05-2007, 12:00 PM
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#10 (permalink)
| | ...and she sings, too!
Join Date: Sep 2007 Location: Austin, TX
Posts: 155
My Mood:  Points: 50,981.97 Bank: 585,773.45 Total Points: 636,755.42 |
I never doubted my Dx (granted, I was only officially diagnosed two days ago ...
Really I thought some of my symptoms were just body stress after an injury a year ago, but since it has taken so long to get back to normal I thought I'd have tests done. My dr referred me to gyno, gyno ran tests and referred me to endo -- endo says yup, PCOS. | |
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12-05-2007, 12:29 PM
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#11 (permalink)
| | Registered User
Join Date: Jan 2006 Location: North Texas
Posts: 595
My Mood:  Points: 47,903.82 Bank: 206,931.34 Total Points: 254,835.16 |
I doubted the first doctor's diagnosis after learning more about it. But when we started TTC my dr did a blood test to look at the ratio of the hormones and she confirmed PCOS. I also had a sono done and the tech looked at my ovaries and said, "Oh, look at that - classic PCOS ovaries". So, I voted "NO" - my doctor was right on the money.
__________________ Melissa (28), DH (32)
DS - Grant William, born on 2-2-07
Dx Aug. 1998
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12-05-2007, 04:45 PM
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#12 (permalink)
| | Registered User
Join Date: Nov 2002
Posts: 3,596
My Mood:  Points: 111,094.90 Bank: 6,823.84 Total Points: 117,918.74 |
I did doubt at first, but the Met has worked so well, I figure he's probalby right..
I'm thin, never been tested for IR
lab work comes back mostly normal
I have cysts in my ovaries (string fo pearls)
no excess hair and I don't think hair loss,
mild acne
irregular periods
trouble concieving
So... not exactly text book, but I believe it now. | |
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