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Old 06-02-2006, 02:10 AM   #1 (permalink)
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Hello Everyone!

I'm new to these boards, and thought I'd better start a thread with an introduction and a bit of personal background.

Some signs I've had since puberty, and just grudgingly accepted them as merely inconvenient - acne, dark/coarse hair on my arms and stomach, and a bit of a belly that I could never get rid of, no matter how athletic or slim the rest of my body was. My father stores visceral fat, so I just figured it was genetics.

My periods were regular throughout my teens (I'm now 25), and were sometimes so heavy and painful that I thought I had endometriosis. About 3 years ago, my job became incredibly stressful, and I descended into depression. I was so busy, I stopped exercising and ate out all the time. Not surprisingly, the pounds slowly piled on, until I became obese. I woke up one morning and decided enough was enough - I wanted my old, athletic self back. I joined a medically assisted weight loss program and was determined to get healthy.

That was a year ago - I now weigh 60 lbs less, and am within the normal weight range for someone of my height. However, I had lost the bulk of my weight about six months ago... and right about the time I began to plateau, my body started to change. My periods stopped.
Originally, I thought it was because I was much more physically active, and was operating at a calorie deficit. So I slowly cycled my calories up to about 2000 daily (instead of the 1300 - 1400 I had been on to lose the fat). But nothing changed. I was worried that my amenorrhea was being caused by overtraining, so I cut back. Still no results.

That's when I made an appointment with my doctor. She checked to make sure I wasn't pregnant (I wasn't), and did blood tests to see if my thyroid was functioning properly (it was). She offered to put me on birth control to get my cycle back to normal, but I have a family history of blood clots and reacted badly the last time I was on it, so I refrained. She told me to wait a month or so to see if my period came back - most likely, my body was still adjusting to the fact that I had lost 60 lbs in 6 months.

Well, I waited, and nothing changed. I went back and she ran another battery of blood tests. When she called me back a week later, I got a shock that I wasn't expecting. My DHEA levels were 1200, a level that is far above normal, and indicative of an adrenal tumor.
Fighting the urge to throw up, my mind raced and I realized that one of the many natural supplements I had been taking to aid my new athletic lifestyle was 7-KETO DHEA (a DHEA metabolite). I told her this, and asked if it could have affected my blood serum levels. She said she didn't know, and referred me to an endocrinologist.

The week I had to wait to see the specialist was long and stressful. I did research on the net, and the DHEA supplement I was taking isn't supposed to raise your DHEA levels. But then again, it isn't regulated by the FDA. If I didn't have a tumor, what the heck was causing such severely elevated results?
My appointment was last week. At that point, I had been refraining from taking any supplements for more than a week so that my tests would be completely clean.
They took my blood, and I finally got a call back this morning.

My DHEA levels are now normal (so it must have been the supplement that was artificially inflating them), but my testosterone levels were high... as well as my insulin. The endocrinologist said that my lack of periods, coupled with these results mean that I most likely am insulin resistant and have mild PCOS.

Which raises the question - why the heck were some symptoms around for years (bad skin, hirsitusm, visceral fat), while others (amenorrhea) appeared only after my weight loss?

It's interesting to note that while I'm no longer overweight, I still am carrying more body fat than I would like... it turns out that because of my insulin resistance, I still weigh 15-20 lbs more than any other women on my strict fitness and diet regimen would. I wonder if the Metformin the endocrinologist prescribed me will make any difference in this regard...

Anyway... nice to meet you all!
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Old 06-02-2006, 03:31 AM   #2 (permalink)
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well i know since i have been on metformin i have lost 15 almost 20 pounds in just under two months. i wasn't insulin resistant but my doctor won't try clomid without trying metformin first. also i was not obese but was on the heavier side of my weight range for my height. about 5 more pounds and i would have been considered border line overweight. so even though meds work diferently for each person it may help you lose that extra weight.
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Old 06-02-2006, 03:41 AM   #3 (permalink)
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Hi and welcome to S/C.
The question you raise about the symptoms you had early on but your periods not stopping until you lost weight is something other PCOS sufferers go through.
I was diagnosed in October last year because my periods had dwindled down to one every 4 months over the previous 2 years. That's when I found out what PCOS was. All during my teens I've had other symptoms such as acne (which you pass off as been a "teen" thing), tiredness (which I thought was due to going to school and an afternoon job everyday), and I also carried a lot of weight round my middle, which was also something I put down to genetics, cause my Dad has a big belly too. (funnily enough both my mum and younger brother are so unbelievebly skinny!).
The thing is, PCOS appears to manifest itself at different times in different people. While many of the symptoms stay the same, we find that it's all different when it comes down to diagnosis.
Personally I'm at 218lbs right now, and I'd love to get down to 150, and my endo has told me that as I lose the weight my body will start to regulate itself naturally. I'm not sure I totally believe that, but for now it's motivation.
So it's exercise and the IR diet for me, just as soon as I 'm able to ove about coz right now I'm stuck at home with a bad back!

It never rains, it freaking pours!!!!

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Old 06-02-2006, 03:56 AM   #4 (permalink)
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Thanks for the warm welcome, gals!


Quote:
Originally Posted by mmp
well i know since i have been on metformin i have lost 15 almost 20 pounds in just under two months.
Wow! Those are very encouraging results (especially after reading so many posts on these boards from women who had nasty reactions to Met). Did you see any improvement in other symptoms as well? I'd love to not have to do my body hair removal routine every few days. Ugh.


Quote:
Originally Posted by AudaciousFurball
The question you raise about the symptoms you had early on but your periods not stopping until you lost weight is something other PCOS sufferers go through.
That's interesting! I've got no doubt that my hormones are out of whack, and have been for years. I always knew that there was something different between me and the other girls... it's so great to finally put a name to it, and to know that I'm not alone.

Quote:
... and I also carried a lot of weight round my middle, which was also something I put down to genetics, cause my Dad has a big belly too. (funnily enough both my mum and younger brother are so unbelievebly skinny!).
That's exactly like my family! My mother and one younger brother can't gain a pound to save their lives, but my father and other younger brother store weight around their middle, like me. Heh.
Good luck with your weight loss goals! Losing that 60 lbs is one of my proudest accomplishments - it required so much discipline, but what a rewarding pay-off.
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Old 06-05-2006, 01:30 PM   #5 (permalink)
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Old 06-05-2006, 05:39 PM   #6 (permalink)
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Hello and welcome
love mel x
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Old 06-05-2006, 11:12 PM   #7 (permalink)
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