Mothercrow

I tell EVERYONE. Not only am I happy to finally have some proof to wave around that my weight isn't all my fault, but I am also trying to spread the word. I was undiagnosed for twenty years (!!! Still angry about that) and I was in a very dark place before the diagnosis. I don't want other women to spend their lives in that place if I can help!

lynaeducky

i told my mom, sisters (even though they don't understand it), a few family members and close friends but i never really talk much about it to anyone

lazybones

Well i got diagnosed at 10 years old so erm my mum was the one who done the telling , at first people got in way to deep with me telling me i would be ok with having children later ect , doctors forgot my age and would always talk about TTC in a good few years time.. my mum would have to say look she is 14 years old( thats when i last saw a doc who kept forgettin my age)

I am and i am not open about it , the word ovary makes me cringe not sure why , and when people say what is it i try to explain but i feel i use it as a excuse at times..

I vent on forums for pcos including my own forum.. and it helps to talk to people in the same boat as me and get advice and things
Jess x

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kaelva

I shared with all my people when I found out and I still tell the people who come into my life. I just feel that it will help them understand me better and it lets them in on another part of my life that they wouldn't otherwise know about.. The more I learned about what I had the more information I shared with them all.. I'm sure they are all tired of hearing about it but I don't want to feel ashamed about something I have no control over.. My way of dealing with it is to share what I know.

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Me 27 -=- DH 32 -=- DS 2

DX March '99
Rx met 1500mg start jan '04 end may '04 -=- BFP May '05 -=- DS born 2/2/06

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TTC #2 April '08
RX Met 1500mg start 4/30/08


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Please keep my mom in your prayers as she continues with her battle with breast cancer

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Mariposa2008

I was diagnosed when I was 19 and didn't think about TTC. We have only been married for a year and a half, so people have been asking when we are going to have kids. Anyone who asks I kind of jump at the chance to tell them about PCOS. First they stop asking questions about it unless they are genuinely concerned and it can bring light to situations maybe other people are having and don't feel comfortable bringing it up. Especially because IF is so frustrating and emotional, some people may think twice about asking stupid questions that might be none of their business. Not everyone is as open as DH and I about out IF.
I have let my mom take the reigns with the family thing. She really understands it and can explain it well to others.
I had an aunt who had to take Clomid after a miscarriage and one of my cousins didn't conceive until after a year, which I think they have some infertility issues, but have never discussed them.

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Amanda V
Prenatals/Folic Acid
Metformin 1500 mg

SA in April-motility low-DH to quit smoking!
1st round Clomid-May CD 3-7-No O
2nd round Clomid- June CD3-7

HSG May-all clear



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AmandaMqn

Thank you ladies, it's nice to know I'm not the only one who struggles with revealing this to people. I've become more accepting of my PCOS and have told a few more family members. It's so nice to have this forum for support!

Gwenneh

I've told a few people; mainly close girlfriends who knew that we were thinking of TTC in the near future. My mom knows, but she's been following the diagnosis as it could be something she has as well. And of course, DH knows.

Popcorn

I haven't been diagnosed yet, as I am still struggling to get an appointment at a clinic where I know they are specialized in PCOS. I am fairly sure that I have it though, since I have a majority of the symptoms.

If (when) I get a diagnose, I plan on only telling my mom, my older sister, and one of my very close friends.
I am very protective of my integrity, and I really see no need for other people to know my diagnosis. I also don't think that people know what it is (I didn't until I started looking it up on the net) so by telling I will also have to do a ton of explaining, revealing humiliating details such as excess hair and stuff, so I'll just keep quiet.

metsgirl

My DH and I have kept it quiet for the most part. I told my sister because I needed a girl friend the day I found out. I asked her about telling my parents, and for now she agrees that maybe we should just keep it to ourselves. I will probably tell them eventually, but I also wanted to avoid the questions every month about the fertility treatments, and whether or not I had a bfp. I have days when I really want to tell my Mom since I think my grandmother may have had it as well, but just haven't felt motivated to tell yet. I have only gotten a few of the "aren't you guys trying yet" comments from some friends, I usually either just ignore them, or tell them depending on the person. So a few people here and there know, but as few as possible really. I'm ok with that.

stacy_xo

My mom was in the room when I got the dx, so she knew and on the way home I was crying so she told me stepdad. But they both treat it like just hormone problems and blame my overweight as just being lazy. I haven't been able to bring myself to tell my dad, he wants me to have kids, and Im scared telling him might break his heart or make him lose all hope.
I told a couple of my best friends for some support, they were very understanding.
As for my bf, I told him I was on the pill and explained it's because I have cysts on my ovaries and hormonal imbalances. But he doesn't seem to understand the risks of infertility. He just always says "Anybody can have babies nowadays" or "I just know we'll have kids" and its SO upsetting.

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Start May 6, 2008 at 223 pounds.

June 4, 221.5 pounds.

ttotays

I was recently diagnosed when I visited a OBGYN specializing in fertility after my husband and I spent over a year TTC. He told me I had PCOS and handed me a tri-fold pamphlet like he was telling me I had strep. I didn't think it was a big deal at all. The pamphlet said that PCOS made trying to conceive hard but it didn't go into all the details. We discussed using chlomid to help me conceive and he told me to get more exercise and try something like weight watchers.

I told my husband and my close family and friends who have all known that we were trying to conceive but none of us knew about it and it didn't seem like a big deal.

The next month we were ELATED to find out we were pregnant! No need for chlomid! My DH and I went to the OBGYN for our 8 week appointment and the baby was measuring a little small but we saw the heart beat and things were looking good. We jumped the gun and told EVERYONE we were prego. At 12 weeks, I miscarried. I had NO idea that PCOS may or may not have played a role in that. My doctor never mentioned it again after that initial appointment.

At my follow up appointment post miscarriage. He did the examination to "make sure everything was out" then he told me, "we'll see you when you are pregnant again." and left the examining room. No. He won't.

I think it was important that I told people about the PCOS because it may help them understand why I struggle with weight loss and conception. But I think it is even more important to know that people may dismiss it as insignificant because they don't know what it is.

I am now in search of a doctor who is familiar with PCOS and will be proactive in helping me live a healthy life and have a healthy baby (or 2... I am greedy, ok?)

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Tiffany (30)
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s Michael (34)
Married 7-7-7 | TTC since March 2007
bfp 2-17-08 - m/c @ 12 weeks
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the little hyphen

I haven't been fully diagnosed but haven't told anyone yet. I might tell my mum but other than that i'll probably keep it to myself unless I have any complications. I'm only 19, so it seems more embarassing than serious to me at the moment as I don't have to worry about TTC or anything, but I will definitely tell future DHs about the problem. At the moment I'm just trying to work up the courage to tell my friends, probably will chicken out though!

wanting22

I'll tell anyone who wants to know. I get some crazy questions and reactions but I want to educate people too.

ImKiki

Hello ladies. This is my first post. I was just diagnosed March 3rd... TOTAL shock to me, altho in learning more and more about this, it all makes sense. Things I've complained about for years, and no Dr would do anything {Lack of knowing I'm sure} just saying, well, not much at all..

I thought I had finally found a group about 2 1/2 years ago that could give me answers. I confess tho, at the time I thought it was just screwed up hormones, and they had been for years. OK, well, yes, that's true. Who knew...LOL Anyway I was also hypothyroid.. During my time with them I kept stressing I wanted my hormone numbers to be high in range, not just 'acceptable' for my age or lab ranges. As time went by, my hair was still falling out, I was still very tired, just not feeling well at all, and gaining weight, no matter what I did! At one point I started spotting, then that progressed as time went on, to bleeding very heavy, passing clots, and not when I should have been..

They did an ultrasound {I've also complained for years about the pain in or around my ovaries.. No one even blinked} and said I had fibroids, but they aren't big. Thinking as I'm older, they are growing smaller.. Okie dokie.. They made no changes in my thyroid meds, or Progesterone.. I knew something was still wrong..

I finally got fed up, tried one last time to get them to listen to what I was saying. They took blood, and said the exact same thing, with one new thing.. They wanted me to do this Bio Meridian machine thing {out of pocket no less, as it's not approved here in the US} Then and only then, would they look deeper into what I wanted.. Ummmm, I don't think so!!!!

I went to the Suzanne Somers website {remember, I just thought it was messed up hormones and nothing else} looking for someone in Colorado, that had a great Dr.. A lovely poster gave me the name of her clinic, that she's very happy with. I emailed back and forth with one of the office staff and found out my insurance would cover their 'VIP' physical. A requirement.. I wasn't thrilled at having to do this, but OK. We all need this type done anyway.. It covers everything!

When I went back for my appt. to go over results, my NP. was telling me things I kinda knew, but when weight was brought up, I did get the, you need to exercise, and saying I was probably eating more than I realized... And she was wanting me to come back and do some sort of blood test. Sorry can't remember what it was called... All I could think about was, I DO workout, and if you only knew about my eating {I suffer from ED} My hyopthyroid was also now full blown Hasimotos.. Side note, she is switching me to Armour!! My other Drs have always refused...So when she's done, I asked about my hormones, which was what I was there for in the first place.. She didn't have the paper, and went to track it down... As soon as she came back in the room, she told me to forget everything she had just said. I had PCOS, and had for YEARS.. I blurted out, how can I, I have kids.. And we had no trouble having them, in fact, neither were planned, they came with in 14 months of each other... I had even gotten pregnant as soon as we were married, but lost the baby... That was all I knew about PCOS, the trouble conceiving...

I went home and started to read, but was so upset, I just went into denail. I took everything she told me to, but that was it.. I broke down a lot..

So here I am, reading everything I can find, and joining sites.. I've found out so mcuh. All my complaints all these years are all part of it.. The pain, the wonky periods. Tho they were regular, they were irregulary, regular and super light. No complaints tho! My misscarriage was most likely caused by that. At 19 I had a uterous full of precancerous cells that they had to burn out.. To name just a couple.. I have never had a big weight problem, but that was probably due to the ED.. Now, I'm fat, fuzzy, thinning hair, and know I'm not complaining to hear myself complain...

I've told my parents and a few friends, and they all seem to think it's no big deal. I don't blame them, as it's not a 'well known' thing... My husband and daughter are great. .Husband is a nurse, and is making sure I do what I'm sposed to do, taking my meds., etc.. I'm sure my daughter has it too.. But she has no insurance at the moment, and we can't afford to take her in right now. Hopefully she'll have insurance soon, and she's ready to go find out as well.. She's been great, knowing if she does, we can do something, and she hopefully will be able to have kids, when that time comes...

I'm so sorry to have gone on and on.. Believe it or not, I even left stuff out...LOL 2 months is not enough time for me to digest all that I was told, and am learning about this and more... But it is a kind of therapy to have written it out.

Thank you for reading IF you made it all the way thru.. If not, I sure don't blame you...ROFL

So that's my story....

**I'm sure there are typos, sorry, it's all a part of the wonderfullness that is me...ROFL

She more than doubled the tiny amount of Progesteron I had been on, and started me on Met..1000 twice a day, from the get go..

ttotays

ImKiki - What doctor did you go to?

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Tiffany (30)
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s Michael (34)
Married 7-7-7 | TTC since March 2007
bfp 2-17-08 - m/c @ 12 weeks
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