scarlet

Recently I have begun to wonder whether or nor I have endometriosis. I got some books from the library to read up on it and I seem to have a lot of the symptoms. I suffer from:

PMS

Back pain

Bad period pain that painkillers and the pill do nothing for

Occasional IBS

Painful Bowel movements during my period

Painful sex

Pelvic pain

What do endo sufferers think? Where can I get more advice? Any good websites? Do you think I have it?

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A soulcyster member since 2001. Former alternative remedies moderator. Back into the community again!

Arlyn

It's possible, but not conclusive. It's my understanding that you can have all the symptoms of endo or none at all. I didn't have everything on the list...and other symptoms I did have but I attributed them somehow to something else.

The best way to find out is to see your doc. Unfortunately, the only way they can truly diagnose endo is through a laparoscopy - ultrasound will not show it. I just had one a month ago, and it honestly wasn't bad at all. She lasered out most of it and I've been feeling better most of the time.

Good luck!

__________________
DX in June 2001. Sent to endo, who told me it was all in my head.
DX again April 2002. New endo, good doctor, although the staff is not the greatest. Very unorganized!
SX: Hypertension, ovarian cysts, overweight around the middle, infrequent cycles, acne, skin tags.
DX June 2002 as diabetic. Argh!
DX February 2003 with endometriosis.
Current meds: Avapro, Glucophage, OrthoEvra, Lescol, Prandin.
Glad to be here among those who understand!

Pattyannruss

You need to push your DR for a DX.

Thats how I found out.

I have stage 4 endo and adenomyosis.

I will be having a full hyst on the 18th,

Never give up, keep searching,
Patty

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


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princess5

It sounds like a strong possibility to me. I have all the same symptoms you describe and I was diagnosed with endometriosis.

You must go and get an appointment with your gyno and suggest they book you in for a laparoscopy.

If there is anything else you would like help with or to ask questions then just e-mail or pm me. I'd be glad to be of help.

__________________
Princess5
diagnosed 1999
all the symptoms :-) plus endometriosis
Weight loss so far:
Start: 288lbs
Current: 288lbs
Goal: 182lbs
Trying to lose weight

scarlet

I've booked an appointment with my gyne for April 1st. I wish it was sooner cause right nwo I am suffering with very bad ovary pain. It hurts and I've run out of iboprufen.


I've looked everywhere for a good endo quiz but can only find one on a stupid website with a description of some girl's symptoms. Anyone reccomend any good sites?

__________________
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patriciacontos

Hey,


I was wondering if I can have it also. I have no pain or symptoms, I don't even have periods. My ultrasound is clear. What made the doctor suspect you had it.

Tricia

Pattyannruss

Try this site,,,


http://my.webmd.com/content/article/4/1680_51156

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


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scarlet

I'm waiting to see my doctor, he didn't suspect it. It's just that my periods have been getting more and more painful and I was at the library and something led me to pick up 2 endo books. I'm reading them and seem to match the symptoms.

Right now I've got real bad PMS even though I am on the pill

__________________
A soulcyster member since 2001. Former alternative remedies moderator. Back into the community again!

Pattyannruss

Some women don't have pain with endo.
Others do.

The main symptoms of endo are...

Heavy,clot fill periods.
Severe cramping.
Infertility
Bladder issues.


For me though it went into another form of endo called Adenomyosis. It attacks the uteris and causes pain 24/7.
I found info on regular endo while searching info for bladder issues. After having a urologist rule out issues in his end, I made an appt with a GYN surgen. By this point I had a CT scan, IVP scan 2 vag ultra sounds and lots of blood drawn.

The CT showed possible fibroids and a reverted uteris.
But I was still peeing blood tissue. This is how I went to a urologist. I asked him about endo. He couldn't answer. But after that precedure he suggested a GYN and for me to follow my hunch.

I took all the test to the surgen and he odered the Lap.(surgery to DX endo)
All went good.

DX stage 4 endo (worse kind to have)
Adenomysis(form of endo that attacks the uteris muscle wall)
Severe scar tissue binding tubes to the bowel!!


So gee, no wonder I have so much pain!

But the surgery is right around the corner now and I'm looking forward to a healthy recover and a future pain free life!!


SEVERLY PAINFUL PERIODS ARE NOT NORMAL LADIES!!

BUT YES, I HAD TO DO THE RESEARCH MYSELF!
I am the one who suggested endo to the surgen.
So yes, I DX myself, again. He just gave the "official" dx.

Good luck to all!

Patty

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.