Mariela

DiamondLynn,

I haven't been properly diagnosed. I had an ultrasound that revealed no cysts so my GP refused to do any bloodwork until I reached a "normal" weight. Dropped him and all other GPs about two years ago anyway.

I also suffer from excess hair, thin hair on top, acne, hidradenitis suppurativa, and belly fat even though I have never considered myself an overeater.

Two years ago, I started treating myself naturally with diet and exercise mainly. I also take .5 grams of cinnamon with my dinner.

All of my symptoms have improved immensely and I am very happy.

The only advice I can give you, is that before you look for medical treatment (BCPs, hormone regulators, etc.) you try a lifestyle change, it's so less invasive and also if you read the research papers posted by Kat, you'll see that it is the best way forward. It has worked for me anyway.

__________________
M.

Meds: Only natural supplements, healthy eating & exercise


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Lakhesis

This is amazing- I was going to post something very similar and was surprised to see it already posted.
I have had this condition since I was 5 years old, predominantly in the groin and underarms. I have also had cysts on my buttocks in the past (a really nasty cluster of 3 once that yeilded a full cup of pus after minor surgery... Sorry or the gross out factor!), and tendency for swellings in the underarms, and if not cystic stuff, then ALWAYS deep, deep blackheads. I also have the fissure thing going on. The condition has been much worse in the past, tends to improve OVERALL when I'm looking after myself but is still a definite issue that I'm desperate to tackle.
I'm CONVINCED that there is a link between this and blood sugar problems, and that my childhood onset on HS was like my first symptom of insulin resistance and a forerunner for PCOS. I know that problems like this tend to abound for folks with diabetes.
I'm a fully trained naturopath and work in a position in the industry that gets me loads of training on an ongoing basis, but I'm still totally flummoxed by this connection.
I'm sure there's some kind of blood sugar/inflammatory/susceptibility to infection connection here, and I'd bet a million that many, many PCOS ladies also have this symptom but are too embarrassed to raise it.
I'm convinced that by dealing with IR I'll deal direct with the cause. Not quite sure HOW it works, but I'm sure it WILL.
Has anyone had any positive results for HS with nutritional/herbal treatments?

pcos_ate_my_life

I've suffered from these cysts for years now & have the scars to prove it. Especially my inner thighs. I've had a terrible outbreak lately so I did some research & it's definitely HS. They are so painful. The most painful are on my thighs, but I also get them behind my ears/along neckline & the outside of my breasts. I've been on Doxycyline for a couple years now which really helped so I couldn't understand what caused the recent outbreak. The only change in diet has been more milk---non-organic milk. I'm 100% convinced that the hormones in milk aggravate my condition. When I drink organic milk, I'm fine. When I drink non-organic milk, I get hot flashes, acne, etc.

Best wishes