Lucygirl

Hi
I just registered on this site an hour ago and this is my first blog so bear with me....I may be doing this wrong.
Just wondering if there is anyone out there with a similar story........I am 42 yrs old and was misdiagnosed for years. I always had HORRENDOUS cramps my whole life....when I turned 30 my body started to change. I thought I was depressed and gaining weight b/c I was going thru a divorce so I didn't pay attention to the mood swings and weight gain. As the years rolled by I developed dandruff, hair on my chin, my hair texture went from smooth and straight to dry,curly and thinning, my peroids were irregular and more painful. I felt like I was living in somebody elses body. It wasn't until I was 38 yrs old that I was properly diagnosed. I was rushed to the hopital with a ruptured cyst. They found out that the cysts did a ton of damage to my reproductive system because they grew very large and ruined my fallopian tubes and my left ovary had to come out. Now I am left with one ovary My endocrinologist and gyno put me on the birth control pill zovia and I take it every day at the same time and never stop therefore I never get a period. When I ovulate I seem to develop cysts and the doctors don't want to do anymore laproscopic surgeries b/c of the scar tissue surgeries leave behind. I also take 1000 mg of met daily which made me sooo sick to my stomach in the beginning that I would take breaks from the medication. I guess I just feel a little sad today and was wondering if anyone out there has gone thru a similar experience?
Thanks

aj1785

Lucy,

It makes me sad to admit that your story sounds very similar to many of the women on this site. It seems that pcos is a commonly misdiagnosed condition and women have to lobby for the proper diagnosis.

Personally, I basically knew that I had it at the age of 15, didn't get AF for the first time until I was 17, and went through many doctors trying to get the proper diagnosis before finding the RIGHT (and my current doc) at the age of 22.

As far as the met goes, I've worked with a dietician on trying to control the side effects. I've found, that for me at least, the fewer carbs I eat/drink, the better I feel. It has also helped me to lose 20 pounds, which is also helping me to feel better. Maybe eating fewer carbs would work for you too?

I'm happy that you've finally got the correct diagnosis and are being treated. Hopefully the doctors will be able to help you to manage your condition. I know it stinks, but there is hope! Try to keep your chin up and you'll make it through!

Good Luck!