Don't know what to do next...not sure it's Endo...

Taffabella · 07-17-2009, 09:47 PM

Well, I was back at the gyno yesterday, because he had previously put me on primolut N and I have spent the last 4 days in bed with a headache (to the point where half my face went numb).

I went to my GP - he told me to go back to gyno and get the primolut n tablets changed as they can cause headaches. I don't think my GP was happy the gyno had just prescribed something without doing anything actually having a look inside to see what is going on.

So I go there, first the gyno tells me that the primolut tablets can't cause headaches - I then politely said 'but in the consumer information it says they can - did you want to see the leaflet' (lucky I had it in my bag)...and then he says, "I don't think you have endo".

So I asked him what my other options were - BCP's or Provera, or do NOTHING.

Well I started to get a little upset - I have spent the last 8 years doing nothing, with extreme to extreme, either really heavy, clotty yuckky period with cramps that nearlly kill me, or really light non-existant periods that I'm lucky to see blood with.

I was on the pill YEARS ago - I don't want to go back on it.
I don't know the pro's and con's of taking provera. I will do research on that.

In the end, I started crying and said "so I'm back to square one? there's no way this is endo, and no way you want to check", and FINALLY, he agreed to do a laproscopy and a D&C.

I go in within the next 2 weeks.
Please pray that they find endo in there, as this is my last chance at being diagnosed with anything - and I am sure that that part of me doesn't function right.

Ashleystar · 07-18-2009, 07:54 PM

So sorry you have been though all this. Most of us endo girls know exactly the same things. I think you should complain to be honest.

It sounds pretty likely they will find endo to be honest.

I'm on bcp to manage mine, it's not always helpful, and I have changed brand quite a few times as they don't always help with pain etc...however I prefer them to taking Provera which seriously doesn't agree with me!

Good luck, keep us updated xx

Try to be calm. The drugs they will give you make you emotional after surgery. Have you got a friend/partner or relative who can go with you and take you home? The threads about laparoscopies are very helpful on here.

Tbh it sounds like your gyn was trying to cut costs if he then changed his mind when you (rightly) made a fuss and said you could have a lap and d&c!!!

Taffabella · 07-18-2009, 11:07 PM

I don't get it, as I do have private health insurance. So it's no big deal to me.

Anyway, since seeing him Friday, my headache has been relieved (told to no longer take primolut n tablets) but I have had an upset tummy, as in urgent to go to the loo and do # 2's (nothing wrong with bowel as I had a colonoscopy about 5 weeks ago).

Warining - TMI here - Then I noticed that my cervical mucous is blood stained with bright red blood. This was twice last night. Went to the loo this morning (#1's) and there was no mucous. Went half an hour ago, and there was a big like stringy mucous, white in color and blood stained again on the loo paper.

FFS, this is really sad, but I am now freaked out that it may be more serious than endo - even though I have had blood tests that have cleared me of cancer, I still get this 'sick' feeling in myself that I have ovarian cancer and that's what he'll find when he goes in.

Thank god it's only two weeks away.

Please keep me in your thoughts and pray that they find endo which can be at least treated and managed in there!

Taffabella · 07-18-2009, 11:08 PM

Oh forgot to mention - I don't have kids yet.

Not that we're trying. But if I get put back on BCP I just feel like we will never try, and I was hoping that one day, I'd be a good Mum.

Tikki · 07-20-2009, 10:51 PM

Hey, I went through this a year ago... sounds like you just might have endo. Drs are a real pain soemtimes. Dont feel you have to take BCP or Provera, I've been on both and they didnt work well for me at all!.... I went natural (Naturopath) and am having the BEST results in my Endo/PCOS---and everything else ever!! Ive never felt so good. I have a thread in this Endo section about what Im going through if you decide its something you'd like to try!

Taffabella · 08-08-2009, 11:47 PM

Well the surgery has been and gone now. I am recovering at the moment.

He found endometriosis and polycystic ovaries -which he 'golf balled'. He also said he burnt the endometriosis off. Which is somewhat comforting.

I am going back to see him on the 1st of September. At the moment he has not prescribed anything.

How do others cope with working and having endo / polycystic ovaries? I was finding I was extremely tired all the time during the working week (I work full time (40 hours a week)) and I have been doing research saying that I need to increase my exercise and watch my diet significantly. But I am not sure how I will find the time given I am always so tired.

I will keep you posted on meds etc when I know more.

Thanks for being interested in my dramas.
Taff

PuppyLove · 08-10-2009, 04:23 AM

Taffabella, thank goodness you have a diagnosis now, the relief is immense to just know WTH is going on with your body.

I had the same op as you 2 weeks ago. I hope you're recovering well, I was super emotional afterwards, apparently anesthesia can make you depressed.

As for the tiredness, well I can really relate to that. The doc has told me that the Ovarian Drilling should help with all those symptoms, time will tell.

Make sure you have enough Vit B and eat lots of protein. I'm only able to work part-time right because my health is so debilitating.

Here's hoping both of us feel much better soon (((hugs)))

PuppyLove · 08-10-2009, 04:25 AM

Oh wow, I just noticed you're also from Melbourne Australia. What gyn do you see??