Educate & Spread The Word About PCOS! *please read*
Ladies, I don’t know how many of you ladies read Cosmopolitan Magazine, but I read it on a monthly basis. I have been a subscriber of the magazine for a few years now…I was thinking about this last night & ended-up getting pretty irritated. I have been diagnosed with PCOS since January this year & through all the articles I’ve read about abnormal periods, facial hair, weight gain…I’ve never once heard about PCOS. I had not had my period since February 2007 & finally in January of this year I was diagnosed after multiple tests. The magazine never once mentioned it could be a serious sickness, which could threaten reproduction, body image, weight and so many other things. Over the last few months I have read a ton of articles on PCOS using the internet, why couldn’t Cosmo do the same? This syndrome affects so many woman; it makes me wonder how many women have PCOS who are trying to conceive & can’t, how many woman can’t understand why they can’t loose the weight they so desperately want to, how many cant’ understand why they can’t have their period like ‘normal’ ladies…It makes me so sad & curious. Had I known about PCOS earlier on…could I have gotten some sort of meds early on to try and fight it, or at least not make it as bad…I guess, I’m just curious-how many woman wish they understood what was wrong-instead of blaming themselves. I have gone ahead & written a letter to the editors of Cosmo, I strongly urge you to do the same. Think about how much differently you would have felt, had you known what was wrong earlier on. Back before you hated yourself for your weight gain, your irregular periods, & physical/mental anguish. If you have time, please send an email to the links I have below. Maybe, if enough of us open their eyes & they see how many people this syndrome affects; they will help educate others, the way we wish we had been. It only takes a minutes & could change the life of at least one girl who needs a friend who understands. Thanks, Ness PS->So, I've taken a lot of what you ladies have offered on here...I've gotten the contact information for a few shows & magazines...I'm going to list them here & hopefully we can do something to educate others!!! The Montel Williams Show 433 West 53rd Street New York, NY 10019 Attn: Viewer Services
Women's Health Online 733 Third Avenue New York, NY 10017 Story Ideas: tellus@womenshealthmag.com CosmoGirl! Magazine Rachael Mount 300 West 57th Street 20th Floor New York, NY 10019 Story Ideas: susan@cosmogirl.com Seventeen Magazine Heather Baror 300 West 57th Street 17th Floor New York, NY 10019 Story Ideas: dearseventeen@seventeen.com Cosmopolitan Magazine Editorial Offices 300 West 57th St. 38th Floor New York, NY 10019 Story Ideas: cosmo@hearst.com.
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Vanessa-Rose (21) & Steve (DBF-26) Going Strong Since 12/25/2006
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Last edited by SlaveToTheCorps; 04-02-2008 at 02:45 PM.
Great idea. I just wanted to add in here that a couple years ago some of us did a media capaign where we sent postcards, letters, and/or e-mails to different shows requesting that they produce a show that acknowledges this condition.
Curious,
Did anything come of it-even a response from the show?
Kat,
Is there anything that you can think of that we can do to get the word out?
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Vanessa-Rose (21) & Steve (DBF-26) Going Strong Since 12/25/2006
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peeping in i want to know what can be done....It's amazing how many unimportant topics make the magazines, tv shows, and radio...where is our support...I constantly write to Oprah...
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I honestly have no idea if anything came of it. I know that we sent the bombardment out, then waited and from where I stand it seems as if we have just been waiting. Though to be honest that was a hectic time for me with moving out of state and everything, I may have missed any updates.
Kat was actually the individual who got all the information together (bless her!).
As for what can be done now? If someone is so inclined I'm sure another bombardment can be put together. I'd offer to do it/ provide assistance with gathering info, but I'm honestly not the most reliable person. I hardly ever meet deadlines or anything like that.
One Cycter mentioned something about myspace. Those of us with myspace can probably add some sort of PCOS comment to our profiles. One of teh gals I'm friends with on here has it in her profile and I keep trying to work up the guts to copy the image and paste it into my profile. My only issue is that 99.9% of the people (family included) who know me dont know I have anything wrong with me.
Linaa, not to be rude or anything, but I think we've some to teh conclusion that no matter how many of us write her or how oftern Opra will not be doing anything in relation to PCOS.
Curious,
Did anything come of it-even a response from the show?
No, but PCOS 'was' mentioned on the show a couple of weeks ago. It resulted in a HUGE uptick in traffic here at SC, so the mention did not go unnoticed.
Quote:
Originally Posted by SlaveToTheCorps
Kat,
Is there anything that you can think of that we can do to get the word out?
My brain is full, at the moment, with the board upgrades. Sorry
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I
One Cycter mentioned something about myspace. Those of us with myspace can probably add some sort of PCOS comment to our profiles. One of teh gals I'm friends with on here has it in her profile and I keep trying to work up the guts to copy the image and paste it into my profile. My only issue is that 99.9% of the people (family included) who know me dont know I have anything wrong with me.
But there are those options.
I have many times contemplated putting up stuff on myspace. But due to the nature of my situation..there are many friends and family that are not aware that I am TTC or the difficulties related to PCOS and infertility. I have such few close friends that I am comfortable disussing these issues. I am not saying I am right i feeling this way. But do you think that it is possible that other women are afraid or uncomfortable about speaking out about PCOS. Leading to less media and other public coverage. I will be following this thread to see what idea others have. Maybe I will come out of my shell and educate more of those around me.
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There is only one way to happiness, and that is to cease worrying things which are beyond the power of our will. Epictetus
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you know i have been reading some of the post on here and you know who might have a show is montel williams i know that he is a man but he is for helping people and helping them to understand different diseases it might be worth a try .
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there are many friends and family that are not aware that I am TTC or the difficulties related to PCOS and infertility
If you do decide to take the initiative to place something up on your myspace you dont have to be descriptive. The image I was looking at simply said "I have PCOS I'm allowed to be horomonal" another of the ladies here simply has the teal PCOS ribbon posted on her page. Should someone ask you about this PCOS thing, you wouldnt have to give out more details than you are willing to.
1) You could simply say its an endocrine (sp?) disorder
2) You could give the basics such as, it impacts your horomones, causes weiht difficulties, and produces certain uncomfortable physical symptoms.
3) You could tell people to come here and find info about PCOS. You wouldnt even have to tell them anything other than this website.
Quote:
But do you think that it is possible that other women are afraid or uncomfortable about speaking out about PCOS.
Without a doubt. I myself confessed being wary of posting information. There ahve been several posts over the years by many of the women here regarding how to tell people, if they should tell people, and what to tell anyone about it. PCOS isnt a comfortable condition to openly discuss since when you do discuss it and talk about the physical conditions assiciated with it peopel start to study your appearance for these things. I suppose mostly what we need to do is encourage ourselves. Some people will be receptive, some will not. For me personally, my mother is supportive and my sisters are unsuopportive so I've experienced both sides. In general the unsupportive people tend to ignore it.
Monica: I *Believe* that Montel was one of the individuals we sent mailings to. If not, we at least discussed it lol.
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Vanessa-Rose (21) & Steve (DBF-26) Going Strong Since 12/25/2006
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Hey ladies, I have these images on my myspace (myspace.com/littlemotivator: ADD ME!) page. I’m not flaunting my sickness by any means, but I’d rather educate people than hide it. I’ve had a few friends ask & it makes me feel good, almost sort of free to tell them about it. I feel like by putting the images there-it’s doing something. Also, the image in the post on top, with the guy holding the sign. I have that blow-up & on my office wall. People ask & I share; it makes me feel like one more person is a little more educated on a sickness that affects so many people, who don’t even know it.
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Last edited by SlaveToTheCorps; 03-21-2008 at 12:17 PM.
Educate & Spread The Word About PCOS! *please read* 
