Endo.. bladder issues??

babebelle06 · 08-04-2009, 05:37 AM

I had posted a blog not to long ago on my bladder issues but didnt get many replies from women who actually had endo.. they THINK this is what is causing my UT symptoms.. here they are..
*UTI or so they say
*blood in urine (not seen with the human eye)
*protein in my urine which is probably from my type 2 diabetes
*lower abdonmen pain which could be from the endo and PCOS
*KIDNEY PAIN and when I say kidney pain I wanna shoot myself it hurts so bad but its mostly my left kidney you cant even touch where my kidney is located. I cant lay on my left side or anything its horrible.
*I use to bed wet I havent done that in about 3 months
*Frequency and Urgency

Could the endo be the cause of all these things? After finally getting an answer 3 months ago after 6 years of being sick I still feel like some of my questions are being left unanswered. I dont have insurance so after the dignosis of Endo and Pcos I have yet to seen a specialist I just feel like Im just stuck in this point where I have no where to turn and the pain and fatigue is causing a major problem in my life.. I cant function without having to take a nap.. and my headaches are horrible and my eye sight is freaking out.. i know some of this has nothing to do with endo but I'm just so sick of being sick.. help please.

Ashleystar · 08-04-2009, 08:45 PM

Yes definitely sounds endo-related. You must press for an appointment with a gynaecologist and u can't go on like this! I am sorry you are having these problems. Here are some websites which might be helpful to you:

www.endometriosis.org.uk

www.endo-resolved.com

www.endometriosis.org

All these websites have info on symptoms. It really sounds likely that you need a laparoscopy to have a look what's going on in there, and to treat any endo if found.

I find it very tiring too, and have had a laparoscopy and laser treatment which has helped, but I know what you mean about pain, though mine isn't/wasn't so much to do with urinary area.

Perhaps one of the women has a similar experience??

Hope you get helped very soon, and don't be scared to push for more! xx

babebelle06 · 08-05-2009, 01:10 AM

Thank you so much for the websites.. it sounds just like me.. My question is.. what if they get in there and its everywhere?? what will they do go ahead and take it out or just wait?? Another question is.. are they painful?? Im so nervous about having it done.. right now i dont have insurance so i cant have it done.

Also.. can it be seen on an ultrasound???

jacquiej · 08-05-2009, 05:19 PM

Usually from my experience you can't see endo on an US. Laps are uncomfortable but you do feel a little better in about 1.5 to 2 weeks and then you feel fine until the endo comes back - which is most likely will. I have had three and when I recently found out I had more uterine fibroids I decided that I didn't want to have surgery again so I have been doing acupuncture which has helped a lot with pain and discomfort. GL!

KatieJo · 08-20-2009, 01:32 PM

Hi Babebelle,

I've had bladder symptoms from my endo. I don't really have urgency, but I do sometimes have frequency because I have pelvic pain when my bladder gets too full. It also hurts when I urinate, but not like a UTI; it's pelvic/bladder pain from things moving around.

My doctor checked me for Interstitial Cystitis before I had a lap. It might be worth looking into. The symptoms mimic endo - it's called endo's "Evil Twin." I didn't have it and ended up having a lap in April. I had endo on the front of my uterus which was irritating my bladder. It's been better since the lap, but I'm still having some pain.

The lap itself isn't too bad. It took me longer than I thought it would to feel a lot better, but I'm definitely feeling better now. Make sure you ask a lot of questions before you do it. Find a doctor who will treat any endo that is found during the first lap so you don't have to do it twice.

Good luck - I hope you get some answers soon!