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Old 04-04-2009, 07:56 PM   #1 (permalink)
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Default endometrial hyperplasia...?

Hi,
Any advice on at what point you should worry about getting endometrial hyperplasia? I have been on the pill mostly since I got my first period to regulate my periods, but I have gone for 6 months a few times without any periods when I stopped the pill. I asked my doctor and she said it has to be longstanding before you could develop this. Is she right? Should I be concerned about developing it? I stopped the pill again recently and it has been over 3 months since my last period and I worry about what kind of dangerous things could be going on inside me... lol. I am waiting to get in to a gyno/obgyn before I can request and provera or anythig to bring on a period, and my family doctor thought it would be good to say off the pill until I get in with her so I can give her info on any periods I may get between now and then. But it's going to be about 4 or 5 months still before I see her... if I don't get a period how dangerous is that?
Thanks!
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Old 04-06-2009, 05:10 PM   #2 (permalink)
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what is endometrial hyperplasia?
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Old 04-06-2009, 10:02 PM   #3 (permalink)
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Endometrial hyperplasia is an overgrowth of the uterine lining that can turn cancerous if left untreated. It is common in menopausal women due to the increased levels of Estrogen, but PCOS women can get it since we don't shed our lining every month due to the lack of AF.

I had endometrial hyperplasia last year, and the only reason I went to the doctor was for irregular bleeding and spotting. They did a saline infused vaginal ultrasound to check for polyps and sent me for a D&C to clear out what they thought were polyps. In fact, it was endometrial hyperplasia- simple non-atypic (the non-cancer kind). If you start spotting at random times, you might want to get in to the doctor sooner, but I think I was a very strange case. My doctor acted like I shouldn't be getting hyperplasia at my age, so I don't think it is overly common.

After the D&C, they had me take provera regularly for three months to bring on AF, and they did an endometrial biopsy to make sure it hadn't grown back. We were given the clear to TTC in January, and I actually ovulated this month after taking Clomid. Now I am just waiting to see it I conceived.
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DS- Born September 2006 prematurely at 29 wks
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Diagnosed with PCOS August 2008
Hyperplasia removed in October 2008
Clomid #1: 50mg in March- O'd CD 27- BFN
Clomid #2: 50mg in April- O'd CD 27- BFP!!

Last edited by SeminaryWife; 04-06-2009 at 10:06 PM. Reason: I wanted to add information to my post.
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Old 04-06-2009, 11:12 PM   #4 (permalink)
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Thanks seminarywife That's fantastic that you ovulated! Would you go for long periods of time without AF (like me ) It drives me crazy...
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Old 04-08-2009, 03:06 PM   #5 (permalink)
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I have never ever had regular cycles. Before getting married and starting bcp, I would go 3-6 months without a period and then have light bleeding for a few weeks. Thinking back on that time, I may not have even been ovulating.

I was on bcp for about a year and a half before my husband and I decided to try for a baby, and by God's grace we got pregnant the first time I ovulated off bcp. After giving birth to my DS, I had irregular bleeding, but I just figured it was because of breastfeeding.

After I stopped breastfeeding, I had a monster of a period. It was heavier than I had ever had in my life, and it lasted about a month. I think my hyperplasia must have began sometime after this. I would have random spotting and light bleeding for a few weeks at a time, which was not actually ovulatory bleeding, but was caused by the hyperplasia. I didn't go to the doctor until I had one period that lasted for a month and I started feeling absolutely terrible. They scheduled me for a Saline Infused Ultrasound, which led to a D&C surgery to remove what they later discovered to be the hyperplasia. I was also diagnosed with PCOS from that ultrasound.

We had been wanting to get pregnant for close to a year at this point. My doctor put me on Provera and told me not to get pregnant for three months until I came in for a follow-up biopsy to make sure the hyperplasia hadn't come back. The provera worked to shed my lining, but I never ovulated on it. The biopsy came back fine, and we have been given the clear to TTC again. After a few months of trying on our own, I started Clomid last month and ovulated late on CD 27. I am currently 5 DPO and hoping for a pregnancy.
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DS- Born September 2006 prematurely at 29 wks
Not preventing since Summer 2007
Actively TTC #2 since March 2008
Diagnosed with PCOS August 2008
Hyperplasia removed in October 2008
Clomid #1: 50mg in March- O'd CD 27- BFN
Clomid #2: 50mg in April- O'd CD 27- BFP!!
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