SouthernGirl

That's interesting about the bleach...I have never heard that. But I have heard that tampon use by women with heavy periods, especially during those first few days is not recommended. Yeah, right like I could function without it....just change them VERY OFTEN.

When I first began researching endometriosis many moons ago, I read how the disease was once called "The Working Woman's Disease". Back in the dark ages when women were expected to stay home and raise children, doctors were beginning to recognize the development of the disease amongst working women......I see the big stress factor, don't you?

*~April S~*

I need to be checked for endo, I have had the pain you ladies are describing for over a year really bad. My worst pain is in my lower back and everytime that acts up my ibs acts up too. I have appointment for my yearly exam in April but I think I will try and get in a little earlier.

From what I have read about the tampons, if you feel you need to use them, it is recommended that you use tampax naturals, I read it doesnt contain dioxin's (sp?)

April

__________________
Pcos controlled with diet and glucophage


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SouthernGirl

April...you mention the IBS....when I had my lap/laser surgery done years ago....my ovary and bowel were connect via endometrial tissue, very common amongst the sufferers (I even have the photographs from the surgery). The lower back...I remember. I could never walk fully upright. It felt like my lower spine would snap if I did.

Good luck with you doctor!

*~April S~*

Thanks southerngirl

Hopefully my doctor will be able to get me in sooner, I am sick of dealing with it. Does it take longer to recover from your lap if the have to laser it from your bowel too?

__________________
Pcos controlled with diet and glucophage


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indiana_troll

Southerngirl,

I had the IBS because of endo too. It was wrapped around my bowel. Diarhea with every AF was not fun.

Patty

__________________
visit
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to find more info on PCOS

diagnosed with endometriosis 1998, pcos 2000
married to wonderful man
1 daughter born 1994
hysterectomy Oct. 28,2002
LOCAH Nov. 2003
Glucophage XR 2250mg
Esclim estrogen patch 0.1mg/day
spironolactone 100mg
dexamethasone 0.5mg/day

SouthernGirl

April...the recovery time is about the same no matter what sort of procedure they do while they are in there. I was black and blue around my middle for more than a week...I had tissue lasered, cysts removed as well as the tube dye test done. I'm sure they roughed me up a bit. I went home that afternoon, had a script for some pain pills and took it easy for a few days. I had 3 holes in my abdomen, one in my belly button and the other two on opposite side of my lower pelvis (bikini line). I think I had one stitch and a bandaid for each hole.

And Patty...yeah I remember...waiting for the inevitable. I'd turn white and break out in a cold sweat...just from the pain. Once again, I'd hit or pinch myself in hopes of distracting my nervous system. Somehow we manage. I look at it this way. The suffering has made me a stronger person.....If you can live through this and still mantain my sanity....I can handle just about anything.

Hang tough, ladies.

Pattyannruss

Today is really bad for me.
I was told if you stay on the pill through AF time is makes it less painful. Not for me. I still hurt real bad.

I still have another month to go for my surgey and just yesterday I poped my stitches from my surgery a few weeks ago.
So thay hurts like heck.

IBpro is not cutting it either.


Patty

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


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SouthernGirl

Patty...sorry to hear of your suffering. You really got it bad, my friend. Good luck with your surgery. Hang tough...if you look at the big picture, it won't be long before your pain (and misery) will be in your past. I wish you the best.

*~April S~*

Southerngirl- Thanks for the info

Patty- Im sorry your feeling so bad. Hopefully you will feel better soon.

indiana_troll

Patty,

You will feel so much better after your surgery. I know that I feel like a totally new woman. Are you going to use the estrogen patches? They are great. And, since you won't have a uterus, you won't have to worry about the cancer effects it has. Good luck and if you need any advice about your hysterectomy, let me know. I'll be glad to help.

Patty

__________________
visit
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to find more info on PCOS

diagnosed with endometriosis 1998, pcos 2000
married to wonderful man
1 daughter born 1994
hysterectomy Oct. 28,2002
LOCAH Nov. 2003
Glucophage XR 2250mg
Esclim estrogen patch 0.1mg/day
spironolactone 100mg
dexamethasone 0.5mg/day

JodyGirl

Patty, you're in my prayers - I will send you some healing energy and good thoughts.

__________________
JodyGirl
======================
"Because I got the motive which is money and the body which is dead!" (In the Heat of the Night) 1967


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Pattyannruss

Thankyou everyone.

I had another horrible day today.
I told DH he needs to re evaluate his flipping schedule because I can't take it anymore.
I actually took a percocet at work today!

DH said to call and see if I could get in earlier.
So I will call Monday.
I'll let you all know what happens.

It is so good to know so many others have endo to know I'm not mental! (OK I would be mental anyhow...just nice to have others join me!)

Sorry Jodygirl I took over your post,

Good day girls,

Patty

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


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Arlyn

Hi Jody. I'm 13 days out of a lap for endo. I have stage 3 endo, as we just discovered, and the doc lasered out as much as she could. My ovaries were the worst. I was in constant pain for a few months, and the doctor kept me on Celebrex for it. For me, it helped a lot. The surgery went really well (I actually woke up smiling because I didn't hurt that badly!) and I was back at work in a few days. I had my post op yesterday and had the stitches taken out and saw the pics. It wasn't a pretty sight.

I wish I could help you, but my doc is totally different. It can take several months to get in for an annual, but if I'm in pain she gets me in immediately. I wish you had that...

Keeping you in my thoughts, girl.

Amy

__________________
DX in June 2001. Sent to endo, who told me it was all in my head.
DX again April 2002. New endo, good doctor, although the staff is not the greatest. Very unorganized!
SX: Hypertension, ovarian cysts, overweight around the middle, infrequent cycles, acne, skin tags.
DX June 2002 as diabetic. Argh!
DX February 2003 with endometriosis.
Current meds: Avapro, Glucophage, OrthoEvra, Lescol, Prandin.
Glad to be here among those who understand!

JamiesHope

I debated whether or not to post a reply, but then my big mouth got the better of me so here it goes (LOL) :

I agree with almost everything that was said for seeking relief from the pain of endo except one thing. I really strongly advise against using heating pads. I realize they seem to offer comfort, but endo is inflammation.. heat adds to inflammation (similarly to when you pull a muscle in your back etc. and they tell you to ice and NOT heat) and though it seems to help temporarily, I believe that it makes things worse in the long run as it accumulates even more blood to the area. That is just my personal opinion. If you can get by with celebrex and tylenol or ibuprofen I'd really try to do that. Icing the back helped me quite a bit too when I suffered from endo. The only thing that cured it for me finally was a total laparoscopically assisted vaginal hysterectomy with the removal of my ovaries. I take NO HRT by MY choice much to the chagrin of my gyne because endo is fed by estrogen. This is not something that I would recommend for everyone, but it works great for me (7 months after hyst).

Again, I only post what works for me.. everyone has to go by what works best for them! I wish you luck in achieving pain relief!


Jamie

__________________
Jamie
seeker of medical truths
(when my head isn't on the verge of blowing up that is!)

IR
Menopause - natural remedies
Hypothyroid - Armour Thyroid
Trigeminal Neuralgia - turmeric
Hidradenitis Suppurativa - donut pillow!! LOL
and so on and so forth!

Pattyannruss

Thank you Jamie for your imput.

I quit taking the IB because I felt it wasn't helping but be causing problems.(IT can make you bleed more)

Patty

__________________
Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)

Check this link out for more information!!


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