Endometriosis & PCOS both or just one?? - Page 2

Sarrah · 05-09-2008, 08:21 AM

I have heard they often go together and I have heard from Ultraound (see my other post) that because I get no pain I have asymptomatic endo...
Doctors have not mentioned anything more about it and not even mentioned on the PCOS report (ultrasound was done to diagnose PCOS primarily).

Ihavfaith · 05-10-2008, 01:10 AM

I have not officially been diagnosed with endo but I believe I have it because I have all the symptoms. The doctor wanted to do laproscopy to give a official diagnosis.

chrissytina1 · 05-20-2008, 05:20 PM

I have both. Diagnosed Endo 2001, PCOS April 2007

Acupuncture, herbal supplements helped me tremendously. I was given birth control to control when diagnosed w/ Endo initially...but after 9 months of my sypmtoms rapidly increasing...i stipped and have never used birth control or other methods to control either since.

lecroy30 · 08-27-2008, 01:09 AM

I Have Both. My Endometriosis Was So Bad At One Time That I Had My Left Ovary Attached To My Uterus With It. I Have Stage 3 And 4. I Have A Massive Amount Of Scar Tissue In My Pelvic Area. I Was Infertile Until 27. I Concieved Naturally, But Only Through Hard Work And Dedication. The Pain And Vomiting Is Really Bad At Times.my Tubes Are Completely Open.

Renee3600 · 08-28-2008, 07:04 PM

I have both, Stage I endo, PSOC as well as hypothyroid and God only knows what else. The endo had messed up my left tube pretty good. My right tube is pretty good. It's weird, but I never had any pain except when I Oed out of my left side around the time of ovulation.

christianlea · 08-29-2008, 10:02 AM

I may have both. I was diagnosed with PCOS last September and then have much timing and clomid was able to get pregnant. At my first ultrasound, they found a 5 - 6 cm cyst on my left ovary. I went back at 10 weeks to have the cyst checked on to make sure it was going away, and it wasn't, and looking at the ultrasound, the doctor now thinks it is an endometrioma. With all the troubles I have had for quite some time now with getting (or not getting) periods, getting mysterious side pains that doctors couldn't figure out, and the troubles we had getting pregnant, I wouldn't at all be surprised. I won't know for sure though until they remove the cyst, which hopefully won't be until after I have the baby (or when I have the baby if I end up needing a C-section because of it...) We'll see.

Danni_Baby · 08-29-2008, 11:39 AM

I too have both. I was DX with Endo in 1994 and had to have emergency surgery due to scarring and unbearable pain. I then had another surgery after that for Cone Biopsy , because the scarring scarred my cervix as well. I was DX with PCOS in 2006, can you believe it. I believe I had it longewr than that, but docs didn't do anything, because I wasn't trying to concieve at 17yo....Ha! Strangely enuff I have had no Endo flare ups since 2002. PCOS on the other hand is ALWAYS there. I am completely Anovulatory.

I never been preggy in my entire life until I did IVF 2 yrs ago. Too bad I can't fall preggy without assistance. Bless all of you that did! We are going to do another IVF cycle next month for #2. God is truly gracious.

rholborn · 09-03-2008, 10:53 AM

I began with ovarian cysts at age 14 discovered accidently during a surgery to remove my appendix. 10 year later, i got dx with endo. God works in mysterious ways, because i got pregnant at age 23, so i have a beautiful 12 yr old daughter now. i had a partial hysterectomy at age 27, and the endocrinologist (my 5th one) is going to start me on metformin. i can't say for sure, but maybe there is a common denominator between endo and pcos?

OliviaLeigh · 09-05-2008, 06:54 PM

BOTH.

I suspect my underlying reason is autoimmune problems. I have scleroderma and postive ANA & Rheumatoid Factor.

Endometriosis has been linked to autoimmune problems (AARDA). Just a thought.

God does work in mysterious ways...*sigh* I had always thought it wasn't hard to get pregnant. So many people around me did and young girls seem to so easily, I always thought it was easy. Until I tried.

Sadness.

Renee3600 · 09-05-2008, 07:15 PM

Rholborn - I agree with Olivia. It seems to boil down to having a crummy immune system that just decides to attack your own organs and tissues.

Olivia - I always thought it would be easy to get prenant too. 7 of 8 of my female cousins got knocked up by the time they were 20. I'm the fertility freak of the family! Luckily they don't know how long we've been trying. Hang in there girl! Are you taking any fertility meds like Clomid or Femara? I'm going to start Femara again next week.

OliviaLeigh · 09-05-2008, 07:31 PM

Thanks Renee - Yes I feel like a fertility freak too! It's just that you are always good - find the right man, get married, then have kids. It's not that easy! I guess I was naive to think I'd be like my friends and get pregnant 1-4 mos of trying. Instead I got surgery and more complications. *sigh*

I do think it is autoimmune. I think many inflammatory diseases are related. Usually if you have one...you have multiple.

I def feel the the "genetic freak" in my family as no one seems to have autoimmune issues (or fertility for that matter..)

I guess when it is harder and you must work harder - the reward is sweeter? I do hope so.