Endometriosis Support--Welcome!

Tiggamoo · 07-14-2005, 05:14 PM

Many cysters deal with endometriosis in addition to the PCOS. I wanted to start a thread that would be a place for those having to deal with this diagnosis. I hope this will be a place for those who suspect endo, preparing for laproscopy, dealing with pain, medication/treatment, trouble with TTC, and just chatter.

Briefly, about me, I had laproscopy for suspected endo in May of 2004. I received my diagnosis at that time. I had endo that was attaching my left ovary to my abdominal wall-may I say OUCH! I also had endo in many other places.

Who else would like to join the endo thread?

leahdione · 07-14-2005, 05:21 PM

Yay! So happy to have this thread. I had laproscopy 3 years ago and was diagnosed. I am seeing the doctor to schedule surgery next week to see what is going on inside. Pain is sometimes unbearable.

Thanks for the thread!!!

Mazie · 07-14-2005, 05:25 PM

I would love to join you Tiggamoo.

I was dx w/ endo during my lap about 6 months ago. I had two spots of endo on the muscle holding up my uterus (I can't remember the name of the muscle) and my dr removed them. I also have internal endo (the lining of my uterus is growing into the uterine muscle) which can't be treated.

Mazie

Tiggamoo · 07-14-2005, 06:30 PM

Welcome, ladies! I'm excited about this thread and I think we'll all learn a lot.

Mazie, I didn't realize that internal endo couldn't be treated. Do you have pain from the internal kind?

Leah, I hate your pain is so unbearable at times. I've been there. Before my first lap, I was so miserable. It hurt to move and I was so fatigued. I hope your appointment goes well next week. Keep us up to date on when your surgery will be scheduled.

Mazie · 07-14-2005, 06:45 PM

Yes, I do get pain from the internal endo. I also get spotting and it's the main reason for all my m/c's (I've had several). The pain is usually in my back but sometimes it feels like my entire uterus is mad at me

. It's no fun!

Tiggamoo · 07-14-2005, 06:54 PM

I figured that the internal type would be painful. I'm so sorry for your m/c's and your pain.

Mazie · 07-14-2005, 07:26 PM

Thank you Tiggamoo! I am so sorry for your pain as well. Sometimes it stinks to be a woman! If men only knew how good the have it

!!

theflyingturtle · 07-14-2005, 08:26 PM

Hey

I had a lap to diagnose me last april or may. I was scared about surgery and put it off for awhile. My doctor said it was pretty mild. Spots were found and removed on my right ovary, right tube, and the cul de sac...

Thats about it about mine

Tiggamoo · 07-14-2005, 08:52 PM

Mazie, you're right! Men just don't know how lucky they are. DH has said he tries to understand as much as someone with a penis can.

Welcome Flyingturtle, did your lap reduce your pain? My lap did help but I do have occasional flare ups of discomfort. I see that you run. How long have you been involved in running races?

Owl · 07-14-2005, 09:38 PM

I hope this is the right place for this. I hoping someone can explain it to me in "normal" language.... What exactly is Endo.? I have tried looking it up online and all I can find is medical gobbly gook that I can't quite figure out.

If this is not the right place to ask - does anyone know where I can look?

THANKS!!!!

and

I also want to say that I am very sorry to hear that so many of you are in such pain. I wish I could help! I hope it gets better soon for you all. ((HUGS))

Rozlynn · 07-14-2005, 10:22 PM

HI!!! I have Endo and it stinks. Most days I am doubled over in my office in tears because it feels like someone shoved there hand up there and yanked all my equipment out. I am seriously thinking about going for another Lap because pain is unbarable most days.

I hope everyone here is doing well today. Keep your heads high take long hot baths and drink lots of green tea --

leenerbups · 07-15-2005, 01:18 AM

Ladies, I hope you can lend me some of the wonderful support and info I am reading here.

I am going in for a lap in 2 weeks. Never had one before. They think I have endo, and I'd rather that than cancer. My symptoms are very much what all of you are describing.

In any case, I was a week late for my period, which never happens. (I was not pregnant) and last night I got it. I am in so much pain, cramps like I have never had before and I am very dizzy.

The cramps I can deal with, it's the dizziness that worries me as I have to go to work in the morning. What is that from?

princess5 · 07-15-2005, 05:13 AM

Hi!

I was diagnosed with endometriosis in 2001 but i have been having pain and symptoms since i was 11. I was diagnosed by laparoscopy and then a year later i had laser sugery to remove as much of the endometriosis as possible. That helped a little in terms of some of the pain but unfortunately i still get horrendous period pains and also pains at other times. It's a great idea to have a support thread!!

paisleystar · 07-15-2005, 09:32 AM

Count me in! I was diagnosed via laparoscopy on June 13, 2005. I have a severe case according to my gyno.......I am scheduled to start Lupron Depot injections next week. I have been bleeding everyday since my surgery. Does it ever stop?

jennthediva · 07-15-2005, 10:03 AM

This is great!

In 2000 and 2001 I had ovarian cysts removed, along with endo. My ob/gyn offered Lupron at the time (this was before I was diagnosed with PCOS), but I turned it down due to the bad side effects.
In 2002 I found an endo specialist who diagnosed me with PCOS, he did a lap finding uterine polyps, endo and cysts.

I can tell you that endometriosis is NOT fun to deal with. Even the smallest patch, which I had in 2001, can cause HORRIBLE pain. I was literally living on pain killers daily before that was removed, and you wouldn't believe how small of a patch it was!

Other than that, I've dealt with heavy bleeding with uterine polyps. Does anyone else in here deal with polyps? Is that a part of PCOS?