PCOS Message Board - Newbie Issues... http://www.soulcysters.net Just diagnosed with PCOS? New to SoulCysters? Check in here, first! en Sat, 21 Nov 2009 03:12:41 GMT vBulletin 60 http://www.soulcysters.net/images/styles/soul/misc/rss.jpg PCOS Message Board - Newbie Issues... http://www.soulcysters.net <![CDATA[Newbie Here! :]]]> http://www.soulcysters.net/newbie-here-295898/ Fri, 20 Nov 2009 23:14:27 GMT
Hello :]
I'm fifteen, and have been diagnosed with PCOS.
My doctor said to just continue losing weight, because my hormones aren't balanced.
I've been having horrible stomach cramps for the past 8 days, and this is only my second period. My first period was in June on fathers day, and was only one day.
]]> Newbie Issues... RememberTheName http://www.soulcysters.net/newbie-here-295898/ was an ultrasound done to confirm PCOS ? http://www.soulcysters.net/ultrasound-done-confirm-pcos-295893/ Fri, 20 Nov 2009 20:31:31 GMT Hello All, Did your doctor do an ultra sound to confirm PCOS ? How long after suspicion did he/she do it ? My doctor feels that i have PCOS mostly due to the following symptoms hirsuitism adult acne obesity high testosteron level Should i ask her for an ultra sound myself? i have not been trying to concieve. my main problem had been hair fall (androgenetic alopecia) since i was 18 (10 yrs back n been on 5% minoxidil w/ good results) so this could be merely hormonal imbalance too right ? Please let me know if u took an ultra sound to confirm it and if u had to ask your doctor for it thanks!!!! Hello All,

Did your doctor do an ultra sound to confirm PCOS ? How long after suspicion did he/she do it ?

My doctor feels that i have PCOS mostly due to the following symptoms
hirsuitism
adult acne
obesity
high testosteron level

Should i ask her for an ultra sound myself? i have not been trying to concieve. my main problem had been hair fall (androgenetic alopecia) since i was 18 (10 yrs back n been on 5% minoxidil w/ good results)
so this could be merely hormonal imbalance too right ?

Please let me know if u took an ultra sound to confirm it and if u had to ask your doctor for it

thanks!!!! ]]> Newbie Issues... anu_health http://www.soulcysters.net/ultrasound-done-confirm-pcos-295893/ Just Diagnosed http://www.soulcysters.net/just-diagnosed-295852/ Fri, 20 Nov 2009 04:29:16 GMT Hi everyone, I am 23 years old and was just diagnosed on monday with PCOS. I was wondering if anyone else has had cases of on and off pelvic pain? I am unsure if this is something that goes hand in hand or a different issue. I have not read to much about pelvic pain being a symptom. Any input would be great as this is all new to me and I am on information overload, and I am super worried about everything and my future! Hi everyone,

I am 23 years old and was just diagnosed on monday with PCOS. I was wondering if anyone else has had cases of on and off pelvic pain? I am unsure if this is something that goes hand in hand or a different issue. I have not read to much about pelvic pain being a symptom.

Any input would be great as this is all new to me and I am on information overload, and I am super worried about everything and my future! ]]> Newbie Issues... Cyndral http://www.soulcysters.net/just-diagnosed-295852/ 18 w/ PCOS http://www.soulcysters.net/18-w-pcos-295851/ Fri, 20 Nov 2009 04:17:20 GMT I was diagnosed with PCOS in May & I'm totally freaked out and I feel horrible. I wanted to know if anyone knows any specialists in Cookeville, TN or anywhere near Smithville. I need someone who knows ALOT about this lol. Or if anyone on here can help me it would be greatly appreciated! (I'm new to SoulCysters btw)

-Martha ]]> Newbie Issues... miss_neverland09 http://www.soulcysters.net/18-w-pcos-295851/ Diagnosed with PCOS today http://www.soulcysters.net/diagnosed-pcos-today-295845/ Fri, 20 Nov 2009 03:19:29 GMT Hello all!

Newbie here, I was just diagnosed with pcos today. Not really sure what to think of everything. I do not really even know what to say yet. Glad I found this place, seems like I will be able to gain a lot of info from it. That's all I got for now...still not sure what to say about everything. ]]> Newbie Issues... BrittanieMarie http://www.soulcysters.net/diagnosed-pcos-today-295845/ Hi http://www.soulcysters.net/hi-295822/ Fri, 20 Nov 2009 00:39:53 GMT I registered a while back but am just posting now. In 2005 I was diagnosed with PCOS, I thought this was my first diagnosis but i just found out that I was originally diagnosed in 1996 when I was a teenager, but was never told I just happened to find out by getting my old medical records. Anyhow I have a 7 year old boy who is my life. My husband and I have tried to concieve since the birth of our son to no avail. GOD meant for my son to be mine, I was on BC when I got pregnate. Husband and I wanted to wait for kids but God sent our little miracle just 2 months after we were married. I am happy having a child, my heart yearns to give my son a sibling he so asks for. Lord willing we will add to our family someday. I registered a while back but am just posting now. In 2005 I was diagnosed with PCOS, I thought this was my first diagnosis but i just found out that I was originally diagnosed in 1996 when I was a teenager, but was never told I just happened to find out by getting my old medical records. Anyhow I have a 7 year old boy who is my life. My husband and I have tried to concieve since the birth of our son to no avail. GOD meant for my son to be mine, I was on BC when I got pregnate. Husband and I wanted to wait for kids but God sent our little miracle just 2 months after we were married. I am happy having a child, my heart yearns to give my son a sibling he so asks for. Lord willing we will add to our family someday. ]]> Newbie Issues... mady http://www.soulcysters.net/hi-295822/ 7 months no period http://www.soulcysters.net/7-months-no-period-295818/ Thu, 19 Nov 2009 22:47:47 GMT I was diagnosed PCOS in august. My periods have always been irregular. When I went 9 months 7 years ago without a period my dr put me on the pill. I was then fine but now ive come of it my periods are irregular again and Ive not had one for 7 months. My blood tests were normal but ultrasound showed cysts all over my ovaries so I was diagnosed. My dr has said it doesnt mean I wont be able to get pregnant and not having periods isnt dangerous. I dont feel so relaxed about it though. Im not TTC but I want to start trying soon. Im 30 and am worried its too late for me though and thatI will never have a period again. I'm not overweight and I suffer low blood sugar. Ive read that metformin could help people to ovulate, would that be an option for someone who isnt insulin resistent? ]]> Newbie Issues... invisiblelady http://www.soulcysters.net/7-months-no-period-295818/ newly registered... very scared http://www.soulcysters.net/newly-registered-very-scared-295816/ Thu, 19 Nov 2009 22:12:51 GMT Hello Everyone,

My name is Dawn I am 23 years old and was diagnosed with PCOS this past summer. I have never had a regular period in my life and no matter what treatment was given my cycle was always off. I have always had very painful periods. In the begining I was told that my periods we a result of my body trying to regulate itself and that all young girls had the same problem. However, by the age of 19 nothing had changed so I decided to see my doctor again and try to find something. I was sent to a OB that was very rude to me and told me that there was nothing wrong. When I went see her I had just turned 20 and had also just gotten married and she told me the only thing wrong with me was that I was not on birth control and was to young to be married and be thinking about children. I was so hurt by this woman that I did not go back the doctor for several years. at the age of 23 I was having periods that lasted for anywhere from a few weeks to a few months and it just kept getting worse. I went back to my doctor and was sent to a differnet OB that within 15 minutes of seeing me and hearing all of my symptoms was able to tell me that I had PCOS and that I had been showing signs sense about 15. He told me that the best thing for now was to take Yaz and that fertility treatments would have to be done in order for me to have children. However, he does not really want to talk to me about anything conception related. The hardest part for me has been the fear that I will not be able to have the family my husband and I have always dreamed of and I am scared that this will hurt my marriage. My husband is wonderful and tells me we will get through this together no matter what happens. I am not sure what to do from here. I don't even know who to talk to. Any advice is greatly appreciated and welcomed with open arms.

Dawn Pomaville ]]> Newbie Issues... dpomaville http://www.soulcysters.net/newly-registered-very-scared-295816/ confused newbie http://www.soulcysters.net/confused-newbie-295799/ Thu, 19 Nov 2009 19:02:08 GMT i have recently registered for this site and i am just cruisn around checkin things out. i was officially diagnosed with pcos oct 30th of this year. still trying to sort thru all the emotions that seem to be coming from this. i am glad to know i am not the only one out there and that others have gone thru what i am going thru. i swear i have damn near all the symtoms i have seen listed. irregular af, hair growing where it shouldnt be, overweight, severe acne, depression, skin tags, oily skin, high cholesterol, sleep apnea, multiple ovary cysts, occasional pain during sex and infertility. i dont feel like a woman anymore, i dont feel attractive, and i worry about how this is all going to affect my relationship with the hubby. there are things i just feel i cant share with him because he is a guy. so here i am looking for others that feel like i do. and if anyone knows of any support groups in the harrisburg, pa area i would love info on that. i just need to know that i am not alone and that there will be hope i have recently registered for this site and i am just cruisn around checkin things out. i was officially diagnosed with pcos oct 30th of this year. still trying to sort thru all the emotions that seem to be coming from this. i am glad to know i am not the only one out there and that others have gone thru what i am going thru. i swear i have damn near all the symtoms i have seen listed. irregular af, hair growing where it shouldnt be, overweight, severe acne, depression, skin tags, oily skin, high cholesterol, sleep apnea, multiple ovary cysts, occasional pain during sex and infertility. i dont feel like a woman anymore, i dont feel attractive, and i worry about how this is all going to affect my relationship with the hubby. there are things i just feel i cant share with him because he is a guy. so here i am looking for others that feel like i do. and if anyone knows of any support groups in the harrisburg, pa area i would love info on that. i just need to know that i am not alone and that there will be hope ]]> Newbie Issues... bugsbear75 http://www.soulcysters.net/confused-newbie-295799/ Frumpy,bloated,crying mess http://www.soulcysters.net/frumpy-bloated-crying-mess-295774/ Thu, 19 Nov 2009 15:07:27 GMT Hi All

I've just registered and am so happy to meet you all!

7 months ago I started noticing something strange was happening to me:

1. After 20 years of incredibly regular, pretty painless periods (exactly 28 days cycle ) my periods started coming every 21 days, and were so painful and heavy on the first day that I couldnt stand up.

2. Close family noticed that my new hair was a different consistency and colour- from very fine, mousey color to dry, coarse, wavy and black (kind of like pubic hair..!)

3. I noticed very thick, black hairs coming out under my chin - fast growing but only 1 at a time

4. My breasts were agony for 3 weeks of the month: so painful, heavy and huge that I went up 3 bra sizes and couldnt bear my boyfriend to even cuddle me

5. My weight, which has been gradually increasing for years (around 30 kilos in 10 years) suddenly jumped 6 kilos in a week...and going up 1.5 kilo a day, despite not eating considerably more

6. For the last month Ive been bursting into tears consistently and it's getting worse. Today I burst into tears at work before an important meeting and was so distraught that I couldn't attend the meeting for 3 hours...it was so embarrassing but i couldnt control it. It keeps happening...

7. Feel down - none of my clothes fit, I feel so depressed, especially when i see recent photos of myself or myself in the mirror. I want to stay in and hide (this is so different to my normal extremely outgoing self)

8. Nine months ago I was told I had 2 x miniscule 1.5cm fibroids which had probably been growing for around a year. In my mind I linked these to the heavy, painful periods starting. Don't know if this is relevant too?

9. Sex? What's that?

10. Sleep apnea - often wake up 'choking' and believing Ive swallowed household objects

11. Night sweats

12. Very puffy, swollen bags under my eyes which look awful

13. Bad constipation (for many years)

14. Acne for 20 years, changed to cystic in the last few years

15. Extreme sensitivity to the cold

Last week I decided to visit an Endocrinologist after realising this is somehow hormone related. I believed from lots of 'google-ing' that it was likely i had something like hypothyroidism and he tested my TSH, T3 and T4, as well as Estradiol, LH and FSH levels.

When he told me happily that all my results were fine and I had nothing wrong with me, I promptly burst into tears and couldn't be consoled for 10 minutes. Mainly because I was so sure there was a hormonal imbalance and I wanted something to be wrong to answer my symptoms at least.

So here I am, wondering what on earth to do and wondering if I am going totally mad? Maybe Im just fat and getting old and am in denial? Maybe it's very early menopause (I'm 36) Im so confused and exhausted from keep crying with very little instigation.

I feel like PCOS is something that could answer my symptoms so wanted to ask you all if you think so too? And if, like me you've had all those blood tests, are there any that can help confirm PCOS. Or can only an Ultrascan do that? If so, im happy to go private and just get a scan to be done with it. I really want to know what is wrong with me before I lose my sanity (and my job and boyfriend)

If it helps, these are my lab results:

Estradiol 195.9 pg/ml
LH 3.82 mIU/ml
FSH 1.5 mIU/ml
TSH 1.910 uIU/ml
T3 3.12 pg/ml
T4 1.17 ng/dl

Anyone with any advice at all I will be so grateful. x ]]> Newbie Issues... bobbygirl http://www.soulcysters.net/frumpy-bloated-crying-mess-295774/ Hi, just registered today!!!! http://www.soulcysters.net/hi-just-registered-today-295764/ Thu, 19 Nov 2009 13:02:37 GMT Hi everyone. I'm Ro-Jashan, I was diagnosed with PCOS just July this year. I am 25 yrs. old. I always had irregular menstruation. My period occurs every other month and the duration is almost two weeks. So instead of having like a normal 28 day cycle -- it is times two.

I consulted an OB/GYN last July and tests were done. It was found out that I have multiple cysts on my left and right ovaries....

My treatment is metformin and contraceptive pills and it seems to be working. I now have regular menstruation. The downside is I now experienced cramps during my first two days and it never happened before.

My struggle right now is my weight. It is hard to loss weight. But what is the most annoying thing of having this disease is the hair growth:sad:.

I am glad I found this forum, so that I can learn ideas, tips and in a way share with everyone my journey of having PCOS.

Until later.... :wave: ]]> Newbie Issues... ysayandchuck http://www.soulcysters.net/hi-just-registered-today-295764/ Hi, Newbie from UK http://www.soulcysters.net/hi-newbie-uk-295738/ Thu, 19 Nov 2009 02:17:09 GMT Hi All,

I'm Carly, I found this site earlier but was abit nervous about registering lol I thought I would bite the bullet and come and say hello :hello:

I was diagnosed with PCOS in 2007, I also have a cyst on my left fallopian tube. I have not had a period since August 2006 but was never regular before this however I do get clear CM most months if not all but not sure what this means, if anything.

I was tried on metformin for approximately 6 months but nothing happened apart from making me feel quite poorly :sad: so I was taken off it but nothing else was tried and I am not on any meds at the moment.

Me and my partner would like some help TTC but not too sure what our options would be.

:flowers: ]]> Newbie Issues... *Baby*Bee* http://www.soulcysters.net/hi-newbie-uk-295738/ Can you help me understand? http://www.soulcysters.net/can-you-help-me-understand-295625/ Tue, 17 Nov 2009 23:18:15 GMT Ok so im im ttc for 10 years now without meds , i mean i did 1 round of clomid 7 years ago but thats it .. So im im older and my body has changed alot my period has been cut down to 3 days now .. So i dont even no where to begin on how to figure my cycle out .. Can any1 help? Ok so im im ttc for 10 years now without meds , i mean i did 1 round of clomid 7 years ago but thats it .. So im im older and my body has changed alot my period has been cut down to 3 days now .. So i dont even no where to begin on how to figure my cycle out .. Can any1 help? ]]> Newbie Issues... Delicate Soul http://www.soulcysters.net/can-you-help-me-understand-295625/ <![CDATA[I'm new to the site, not to PCOS but I have some questions]]> http://www.soulcysters.net/i-m-new-site-not-pcos-but-i-have-some-questions-295609/ Tue, 17 Nov 2009 21:11:21 GMT Hi all!

I hope that you are all well.

I was wondering what people had to say and what their experiences were with the condition.

I have been told by several doctors to lose weight and to exercise, which has never been an issue. I know more about physical fitness then the so called gurus with the gargantuan muscles at the gym. And I generally look overweight.

However, I was wondering what other people did for exercise, how they continuously changed it up. Was there something that worked for you that may help me out?

As well, I suffer from the unsightly body acne that comes with the condition and while I am lucky to find someone who likes me enough to see past that, I was wondering what there was out there to do about it.

And finally, my OBGYN put me on Glucophage. I really don't like it, all it has done is stopped me from wanting M&M's. I have noticed no weight loss from it because if I don't exercise, I don't lose weight. If I exercise, I lose weight. I think that's why she had me on it. Has anyone else had similiar experiences? I have an appointment with her soon to discuss the option of getting off of it since I can no longer even have a glass of wine without wondering what the side effects are going to be.

If you lovely ladies could help me out, that would be great. It's so great to see a website like this where people can talk about this!!! I'm excited!

:notworthy ]]> Newbie Issues... charlestongirl85 http://www.soulcysters.net/i-m-new-site-not-pcos-but-i-have-some-questions-295609/ Newbie needs help/advice about the pill and PCOS http://www.soulcysters.net/newbie-needs-help-advice-about-pill-pcos-295585/ Tue, 17 Nov 2009 18:14:53 GMT Hi everyone-- I hope I'm posting this in the right place! I'm new to this website and new to PCOS (diagnosed 2-3 weeks ago). I really need advice about the pill and PCOS. :worried:

I have been on the pill for about 4 years. Up until this recent year I never had any major issues with my periods (other than horrible cramps/throwing up prior to the pill). So anyways, I wasn't happy with my pill after 3 years so my doc switched me to a higher dose pill (wasn't happy again), so I went back to the low hormone pill.. after that switch I've never been the same. I bled for 2 weeks straights, had erratic bleeding between periods & had really long periods. My doctor then tried to give me a different pill yet-- still didn't help.

I started going to an OBGYN because of the issue and he did an ultrasound showing lots of little ovarian cysts and said I should see good results from YAZ. Well my periods ended up being 8-9 days long on YAZ and I had constant spotting/breakthrough bleeding and pelvic pain-- he took me off the pill all together (after a 3 month trial of YAZ) to see how my body would respond.

In the 4 months I was off the pill, I only bled once, my skin was/is a disaster, I now sweat excessively when it's cold, etc... I went back to the OBGYN and he diagnosed me with PCOS and said I should start taking the YAZ again to correct the other problems.

WELL now that I've been on the pill for 8 days I'm having break-through bleeding again. I had HORRIBLE pelvic pain yesterday right before the bleeding/thick discharge happened... Every time I've gone to the bathroom since then I've had bloody discharge.

What gives? Why can I not bleed when I'm off the pill, yet I bleed too much when I'm on the pill?! Anyone have advice/similar experiences??? I feel so sad and alone... ]]> Newbie Issues... kimberly687 http://www.soulcysters.net/newbie-needs-help-advice-about-pill-pcos-295585/