Hi, i am so bummed lately, ever since i stopped my bcp yasmin my symptoms of acne and cyst pain have come back with a vengenance thats why i am asking about the pill so much!! i need a new one. but i have been avoiding my usual big family get togethers onthe weekends due to cyst pain, and abdominal swelling. it hurts and im moody and all i want to do is lay in bed i get the cysts that fill with fluiud and rupture, they hurt sooo bad. like stabbing pains. my family thinks because im thin i dont have pcos, and im not bald or have very thin hair... they think my acne is due to makeup or not eating well...so i get no sympathy. to make matters worse my aunt is a nurse and swears that only bearded, heavy , bald women have this. do any of you girls get this kind of treatment? no one listening to you? thimking your making up a disease? that you want attention? I was diagnosed via ultrasound at 15 but have always been on some bcp for it. so no one knew. but after stopping now im getting ugly. so any advice to tell my family? to get them to belive me.
Are your getting your testosterone levels checked?
When is the last time that you had an ultrasound? I had one cyst, on my ovary, that grew large. It was a dermoid cyst. It caused pelvic pain. I had to have it surgically removed.
__________________ Allison
I have to exercise in the morning, before my brain figures out what the hell I am actually doing To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. . Traditional PCOS - Anovulatory, increased androgens, no insulin resistance
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I was the one that didn't believe I had it at first. I only have mild acne and no other physical symptoms and just have irregular periods. Everyone has been very supportive, however, I don't seem to have any of the other problems that you have. When I'm not trying to get pregnant it doesn't effect me at all. Are you sure the ones that are causing you pain are the same types of cysts?
I read your post and couldn't help but share my experience. I am thin, have had terrible, debilitating cysts, and moderate to severe acne. I'm 37, so this acne stuff is really frustrating - makes me feel like I'm 14 again. My acne had been under control until I went off BCPs at the age of 34 - then it just gradually got worse and worse.
Because I have large cysts that rupture, I was told by Drs. at the Mayo Clinic that I do not have PCOS - the morphology of the cysts is not correct.
Plus, I'm thin...and I don't have anything that really shows up on bloodwork. However, I have an extensive family history of diabetes (both parents, aunts, uncles on both sides...no siblings -YET!). I found a Dr. that believed that I could be IR even though it doesn't show with labaratory results. He prescribed Met which I just started last week. We'll see what happens.
I'm sorry that your family won't believe you. Sometimes I wish this PCOS disease was named something else, because really it is a hormonal imbalance resulting in a wide variety of symptoms for many different women. For so many women the hormonal imbalance has been triggered by IR. I think the challenge for women who are thin is to find a doctor who will prescribe met or something like it as a therapeutic approach - either it will work or it won't. But don't assume because you're thin that you don't have a hormonal imbalance which could be rooted in IR. If you can't get family support, forget them and find some places, like this website, where you can get support. You are not alone.
My husband was the one who didn't believe it. He said I'm just psychosomatic. I told him that my doctor verified it was PCOS. I don't talk about it much with my family but they've been pretty good about understanding because I haven't been able to get pregnant. As for my husband, I told him to knock it off because every time I've gone to the doctor with a problem, it has turned out to be something not nothing.
I also have cyst pain a lot of the times, kind of a dull ache for more than half of my menstrual cycle. I have mild acne, but metformin has defiantely helped. I also had more problems not being on BCP. Matter of fact, never had a cyst or any pain until I went off of it.
Introduce your family to all of us. I've actually read that thin women with PCOS tend to have worse hormonal imbalances than larger women with it.
Have you been tested for insulin resistance?
Carrie
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I am in agreement with the idea that sometimes thin cysters can have very severe hormonal imbalances. The problem is that doctors are dumbfounded by a woman that presents with hormonal imbalances that cannot be camouflaged by BCPs. And they are reluctant to try different approaches. I figure, what the heck? Give things a try and see if they work.
For years people had thyroid problems and tested in the "normal" range for TSH. It was not until the labs developed tests for T3, T4, Free T3, and thyroid antibodies that doctors and scientists began to get a clearer picture of thyroid problems and then realized that many people may test in the normal range for TSH, but in fact are hypothyroid.
This is my hope for PCOS:
1. The medical community renames this disease. It is a hormonal imbalance. Sometimes it has metabolic complications, sometimes it has gynecological complications, sometimes it has both. But to name a disease by one of its symptoms is a bit silly. How about Insulin Resistance with Resulting Endocrine Imbalance. Drs. do seem to be getting more precise with their description of PCOS based on the cluster of symptoms. Whatever it takes, I don't care what they name it as long as it is more exact and encompasses the range of issues that women have, not just one symptom.
2. Labs develop tests that more clearly indicate IR and/or how the ovaries produce imbalanced hormones. So many women don't get diagnosed because the lab work does not indicate any abnormalities. Just because it doesn't show in lab work doesn't mean that everything is OK!
3. If IR is not the only trigger for multiple endocrine imbalances, I hope they find the other triggers. Many Drs believe that IR is not the only cause of PCOS, and that if a woman is thin she does not have IR, and therefore the imbalance of hormones produced by her ovaries must be caused by something else. If it is true that this multitude of symptoms is caused by a variety of endocrine triggers resulting in a cascade of imbalances, lets find the answers.
To bridge the gap between your reality and their understanding, why don't you email and/or print out some articles about PCOS for them - ensuring you highlight the parts that relate particularly to you.
Mez.
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Thanks for all the support and ideas...you all made me feel alot better, as for my family i am going to print out some resources and let them see the thin cysters board on here. its hard because most my family is really heavy and i am the thin one they always say what do you eat ? how do you do it? so when i say i have a hormone problem they just look at me like okay? yeah right? anyhow I have never had my testosterone checked my dr. just said the ultra sound keeps showing cysts and i have to take the piil untill menopause if i want my cysts to shrink. its truly sad because im 28 now and hear the horror stories of blood clots and the pill. but the cysts keep growing whenever my body tries to ovulate? or drop an egg it gets a cyst so i guess ill be on the pill forever....
family wont belive I have pcos!!! 
thats why i am asking about the pill so much!! i need a new one. but i have been avoiding my usual big family get togethers onthe weekends due to cyst pain, and abdominal swelling. it hurts and im moody and all i want to do is lay in bed
Cysts 
Think cysters with severe hormonal imbalances... 
