I was just wondering if anyone else with Fibromyalgia gets the sore skin symptom i was dx with this about 2 years ago and my Fibromyalgia only plays up every so often (thankfully) but latley i have noticed i have really sore to touch skin and so i googled it and it came up that its a symptom of the fibro. Just wondering if anyone else gets this and / or what they do about it. does anything help? my brother patted me on the back today when i hugged him and i burst into tears!
TIA
glowingpurpleaura
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I have Fibro and sometimes the various trigger points will become so tender, especially in my upper back (a trouble spot for me), that I won't even be able to let a chair back lightly touch me. They don't always hurt when this happens, they'll only hurt with the lightest of pressure. It's definitely a very sharp "OW!", like being poked very hard with a stick
But if your entire skin is hurting all over, I'm so very, very sorry, but I've never had that particular symptom. It sounds horrid!
I hope it eases up for you soon!
Dana
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yes I have had that..but havent it quite sometime. I waz Dx very very young and around that time was in the worst pain of my life from it, lasting years. Lately either I've learned to live with it and became used to it, or its gotten a lot better. But I do know and sympathize with that sensitive skin pain.
I get the same symptom, but usually only in very small patches. My upper back and the outside of each hip are usually my problem areas. DH knows better than to ever touch my hips (the area right over the pelvec bone), and my upper back acts up anytime I put a lot of stress on those muscles. With a baby, that means almost every day. The only thing that helps me at all is some light stretching (I love yoga!), and a good nights' sleep.
I hope you find some relief soon!
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i have fibro and cfs and sometimes my skin gets so sore i can even hold my little newphew, because hes only playing around but it hursts like hell as if you have a huge bruise that can be seen.
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Hi! Just wanted to tell you that I also have sore skin. At first I thought I had the flu or something but apparently it is one of the many symptoms. Unfortunately when I get it I don't have any good way of helping it. I find if I put on soft slippery fabrics like satin or silk it does help but only a little. Do you have a lot of symptoms other than the sore skin? I have more trouble with general achy feeling like I have pulled muscles. My trigger points are not always the worts part of this darn UGGGHHHH! affliction. Most people don't understand how bad it really is because they can't see it. I do a little painting from time to time and I keep thinking about how ugley my self portrait would be if you could see it. Some kind of wizened up old lady with swollen juints and twisted bones with skin that looks like someone took sandpaper to me. :Q( . I wouldn't wish this on my worst enemy. How old are you? I am 57 and I have had this condition for more than 20 yrs but the doctors started treating the many symptoms and decided that because their treatments did not help that I was a hypochondriac. Trust me it is a relief just to get someone in the medical community to acknowledge that my pain is REAL. I am always sorry when I hear about someone else with this thing but at least I am not alone. Hoping you are pain free. capebretongal
Hi. I have the same problem around my trigger points. Yet Ihave noticed that if, I hurt my body in anyway, The pain comes and goes in that spot all the time. Also my scalp gets very sore.
It is getting old, ya know. Hopefully with weight loss some of my aches and pains will go away.
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It's one of the worse effects of fibromyalgia. One of my friends deals with it on a daily basis, and she read that tart cherry juice can help with the side effects. She's going to try it soon, and hopefully it will help.
I, too, have fibro and I do have sore skin from time to time. My fibro tends to flare up rather than being bad all the time. I have so much widespread pain that the pain usually feels deeper than my skin. However, sometimes I do get a really sharp pain on a small random patch of skin. It tends to go away as mysteriously as it appeared. I'm not sure what (other than time) will help it since my doctors have been absolutely no help in treating the fibro.
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I will have occasional flare-ups of symptoms, usually after days of not sleeping well (I have a 3 year old)but have the fibro under control for the most part. I was diagnosed about 16 years ago, and all that they could offer me then were muscle relaxers and sleeping pills. Doctor told me (based on what was known then) that fibro develops or worsens when we don't get enough deep sleep and our daily injuries and usage of our body can't properly heal. Over time we develop the fibro. Having a 2 year old at that time, I just couldn't take all the pills offered and function properly. I pursued alternative remedies and stuck with them. One, get as much sleep as possible. Two ,take the best multi vitamin you can. (I take GNC womens Ultra Mega, because after researching what was needed by women in a vitamin, I found this to have everything except calcium, which i take separately,but am sure many other good choices are out there) and MOST IMPORTANTLY I take MALIC ACID. I take Source Naturals Magnesium Malate, it is a natural fruit acid, also found in apple cider vinegar I believe. Apparently many people with fibro are deficient in this. I have passed this regimen along to other women over the years and they too found much relief....... I hope all of you are able to find relief for your pain.
I have a different autoimmune disease - Sjogren's, and I'm having a really rough time right now with sore joints, and stiffness.
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Hello! I do not have fibromyalgia but I work for a pain doctor (who actually does NOT treat fibromyalgia) but we get alot of information of a new drug called Lyrica.. We do have one patient with fibromyalgia and it has really helped her...
Just thought I would let y'all know about it if you didn't already hear about it the drug is called Lyrica and it is by he Phyzer drug company..
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2/4/2009- Positive HPT, total shock!!
2/5/2009 Beta 370; Estrodiol 250, Progesterone 10.2
2/7/2009 Repeat Beta 785, Estrodiol 377, Progesterone 24, and get to learn how to give myself progesterone shots
2/9/2009 3rd Beta 2077. Estodiol 308, Progesterone 44.3
Hi guys! The dr just put me on gabapentin for the pain. Does anyone else take this? does it help? I just started it and I ahve to build up to the right dosage slowly. the dr says it will take at least a month before I feel any results???? I am hoping.
Gabapentin is the same as Neurontin for those of you who don't know. We do have someone in our clinic with fibro and we had to put her on the Neurontin to try before her insurance would approve the Lyrica, although Neurontin really isnt indicated for Fibro.. And in her case, the Neurontin did NOT help her as expected but Once she was on it for one month we were able to get the Lyrica approved with no problem, and The lyrica really helps her...
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2/4/2009- Positive HPT, total shock!!
2/5/2009 Beta 370; Estrodiol 250, Progesterone 10.2
2/7/2009 Repeat Beta 785, Estrodiol 377, Progesterone 24, and get to learn how to give myself progesterone shots
2/9/2009 3rd Beta 2077. Estodiol 308, Progesterone 44.3
Fibromyalgia - sore skin 
Painful skin with fibro 
Hi! Just wanted to tell you that I also have sore skin. At first I thought I had the flu or something but apparently it is one of the many symptoms. Unfortunately when I get it I don't have any good way of helping it. I find if I put on soft slippery fabrics like satin or silk it does help but only a little. Do you have a lot of symptoms other than the sore skin? I have more trouble with general achy feeling like I have pulled muscles. My trigger points are not always the worts part of this darn UGGGHHHH! affliction. Most people don't understand how bad it really is because they can't see it. I do a little painting from time to time and I keep thinking about how ugley my self portrait would be if you could see it. Some kind of wizened up old lady with swollen juints and twisted bones with skin that looks like someone took sandpaper to me. :Q( . I wouldn't wish this on my worst enemy. How old are you? I am 57 and I have had this condition for more than 20 yrs but the doctors started treating the many symptoms and decided that because their treatments did not help that I was a hypochondriac. Trust me it is a relief just to get someone in the medical community to acknowledge that my pain is REAL. I am always sorry when I hear about someone else with this thing but at least I am not alone. Hoping you are pain free. capebretongal
