I have fatigue... can't tell about the pee cause I take a b-complex.... loss of appetite, hot flashes, muscle cramps?, and just tired, tired and tired....
btw, my endo has already given me lab request for liver checks for the next six months starting in 1 month.... did your doctor talk to you about liver toxic tests?
Kat, are you still taking Flutamide? I'm on 150 mg of spiro and after 8 years it's not cutting the mustard anymore. I'm going to an endocrinologist next month and I'm going to ask him about Flutamide.
Did you find that you could stop Flutamide after significant weight loss? Also, how is your hair growth now that you're not taking it? I'm currently experiencing hair loss as well as really, really bad hirsutism on my body. I'm really hoping my head hair will grow back and that the stuff on my body will go back to being fine and light (that's quite a stretch). I'm just curious to see how Flutamide helped you.
Kat, are you still taking Flutamide? I'm on 150 mg of spiro and after 8 years it's not cutting the mustard anymore. I'm going to an endocrinologist next month and I'm going to ask him about Flutamide.
I'm not on it anymore. It's been about 9 years since I've taken it (or anything) for pcos. I only stayed on spiro for less than a year...Flutamide worked WAY better for me.
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Originally Posted by AnnieC
Did you find that you could stop Flutamide after significant weight loss?
Yes. I stopped taking it shortly after I hit my 90 pound weight loss.
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Originally Posted by AnnieC
Also, how is your hair growth now that you're not taking it? .
I still have some hairs turn terminal if my weight creeps up, but as soon as the weight is off, everything is back to normal.
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Originally Posted by AnnieC
I'm currently experiencing hair loss as well as really, really bad hirsutism on my body. I'm really hoping my head hair will grow back and that the stuff on my body will go back to being fine and light (that's quite a stretch). I'm just curious to see how Flutamide helped you.
I only had thinning at the temples, and that filled in nicely. My hair is currently very long (not as thick as you see it on tv - if you've seen me - since that's a 'fall'). It's not as thick as it was in my 20's, but I think some of that is age...the 'volume' of hairs is still thick, my individual strand density is lower. But by anyone's standards, I have a LOT of hair.
I had to fight HARD to get an Rx for flutamide, but it was worth it for me.
Just be sure to play by the rules: get regular liver testing, don't TTC, and don't drink alcohol.
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Hey, SoulCysters! Need to eat more veggies, but can't find recipes??
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Thanks for your fast reply Kat. My gyno has never prescribed flutamide before, so I figure I'll see if the endocrinologist can do it. I have a feeling he'll say no too. I just don't understand why getting an Rx is such a big deal...
RE: About fighting for an Rx, what exactly did you have to do? I'd like some advice before I go into "battle."
Thanks for your fast reply Kat. My gyno has never prescribed flutamide before, so I figure I'll see if the endocrinologist can do it. I have a feeling he'll say no too. I just don't understand why getting an Rx is such a big deal...
For any doctor who hasn't read the research on PCOS, when they look up flutamide, all they see is that it's FDA approved for treatment of PROSTATE CANCER, and is contraindicated for use in women.
End of story.
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Originally Posted by AnnieC
RE: About fighting for an Rx, what exactly did you have to do? I'd like some advice before I go into "battle."
Back when I was fighting, there was VERY little research on PCOS and Flutamide. I stumbled upon a french study, as well as, a few more, and printed them out and took them to literally EIGHT doctors. Most were simply too afraid to Rx it.
The experience described in that article was the inspiration for SoulCysters. I wanted to make it easier for women to find research that they could take to their doctors, in the hopes that they would receive better treatment.
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hi Sally,
You said you tool Flutamide for a year on some other thread, didn't you have any side efects then?
I am planning to start it as well, and I am searching for a doc to prescribe it to me...I am also scared of the side efects..
hiya yeah was on it over a year ago not for long couldnt stand the fatigue forgot about the cramps and the rst but coz my symptons are worse and worse and I was taken of Diane35 coz of high blood pressyre I HAVE to do something to help myself and I am determined to push on through with this ..it was such a long time ago I forgot how rough it was .. saying that the fatigue is much better today so thats promising been taking it at 5pm and I think I am sleeping off the effects
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I remember being tired the first few days and a little nauseous. That passed after a few days. Flutamide began to work quickly on my body, My hair loss cycles stopped almost immediately and my period cycles became exactly 28 days. I have had amazing head hair regrowth. I hope that it will work for you. Please speak to your doctor if the symptoms haven't subsided. I suffered with hair loss for 20+ years and it has grown back, not completely-yet, but enough for me to work with. Remember to be patient with it. I didn't have major regrowth until after a year on it, but not having the hair loss cycles anymore made me more than happy. Good luck.
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I have to exercise in the morning, before my brain figures out what the hell I am actually doing To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. . Traditional PCOS - Anovulatory, increased androgens, no insulin resistance
Medications and Supps listed on my profile.
Flutamide and side effects 
Side effects 
