shelokay

Hi everyone.

I am really looking for experiences people can share with me.
As over the years i have researched pcos i have come across many things. i know there is a very strong link to it being hereditary, and this shows from my nan to my dad down to me. I am diagnosed severe PCOS for the last 12 years.
Also I have discovered that PCOS has only recently been linked with insulin resistance and shows that there is so much more research needed in these fields.

ok fact is insulin resistance produces higher levels of insulin in the blood. that then causes problems with the pituitary gland, and thus secretes incorrect amounts of hormones, resulting in eggs beginging to mature but dont mature enough to be released, then they become foriegn obects, so the body makes them surrounds them by fluid, hence making them a cyst.

right... so the actual effect from the insulin to the pituitary gland doesnt have to be of a major degree.. but the effect on the female reproductive system becomes catistrophic.. as the female repoductive system is so sensitive..

therefore - if i have genetically passed down my condition and the whole insulin resistance to my son then surely having an effect on his pituitary gland could result in one of the other hormones, such as tsh, being effected?

I ask this and ask if anyone else has had the same experience with maybe not just their children but also siblings?

It is just my 2 yr old son has had constipation and muscle cramps and i have been told it is not unusual in children. basically growing pains and i am not feeding him correctly! but i know it is more as i have tried everything to relieve his constipation and it is not working.. so my Dr sent him for blood tests and the tests have come back that he has a slightly higher than normal tsh reading but a normal free t3,t4 reading. so he doesnt have an underactive thyroid altho constipation and muscle cramps are symptons of it. When i discovered the link between tsh and pituitary my alarm bells rang die to my PCOS and the defenant link down my family.

I asked when i went to see the dr about the cramps, and i saw him at the time this 4 month bout of constipation he has, had started, so i asked if we had taken the same blood test then could it have shown a different reading. he doesnt think so but cant say for sure.. but i pushed to be referred to a specialist. which he has done. altho he says insulin resistance is not present in infants.....

As i say all this has so much more research needed.. and so much of this info is new. So i think a link hereditary and to other pituitary hormones as not been made known. (am i making myself clear?) :S

I also remember reading a while back that they thought insulin resistance started in childhood as the pancreas over producing insulin, and as insulin is a poison, the body then builds up a resistance to it.. but they didnt know why the pancreas would start to over produce slightly.. we are not talking high levels of insulin that would cause low blood sugar, just high enough for the body to not like it and build a defence, a resistance.

So i fear the higher tsh level he had, shows he has inherited my insulin condition and he is at the stage where is body is working up a defence and resistance to insulin and maybe if he has tests they can find a cause for him...

to me this makes sense.. mabe i am being ignorant and nieve.
so please anyone else had a simular experience.. or has what i said made a light go on about a child or sibling that you never thought of before.. maybe there pituitary has been effected with the growth hormone or breast milk hormone.... but i think it would be in a mild way, not severe enough for a dr to make a total diagnosis... maybe they had high readings at some point and had to be monitored..

thank you all for reading this.