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10-26-2006, 03:02 AM
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#1 (permalink)
| | Registered User
Join Date: Feb 2006 Location: California
Posts: 30
Points: 3,812.42 Bank: 0.00 Total Points: 3,812.42 |  Going OFF Spironolactone??
For those of you who have been on spironolactone before and have since gone off it, can you tell me what your experience was like to go OFF it (both good and bad)?
Also, does anyone know of the negative effects of taking spironolactone long-term (say, for years)?
I've been on it for over 4 years now. I can't imagine it's great to be on medication for that long, but honestly, I'm terrified to go off it. It has helped me with acne and hair. | 
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10-26-2006, 05:57 AM
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#2 (permalink)
| | Proud Mama to Ani Rose
Join Date: Jul 2006 Location: Connecticut
Posts: 965
My Mood:  Points: 12,726.98 Bank: 42,441.30 Total Points: 55,168.28 |
Sorry I can't give very good advice since I only took it for about two mos and then went off. I decided in case any little miracles happened in the meantime that I didn't want to have to worry about birth defects. I didn't really notice any side effects other than less bathroom breaks.  I'm sure someone will have more knowledge than I do! Good luck!
__________________ Dustin, Kristina & Ani Rose
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Our angel baby will always be in our hearts and thoughts... we love and miss you little one who was not yet meant to be.
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"I do it for the joy it brings Because I'm a joyful girl Because the world owes me nothing And we owe each other the world I do it because it's the least I can do I do it because I learned it from you" 12/1/08 Starting 200 mg of Prometrium & 50 mg of Clomid CD 3-7! | |
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10-26-2006, 02:35 PM
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#3 (permalink)
| | Registered User
Join Date: Jul 2004 Location: California
Posts: 711
My Mood:  Points: 4,579.33 Bank: 3,913.31 Total Points: 8,492.64 | Spironolactone
I lowered my dose from 200mgs to 50mgs, when I began Flutamide. I experienced a lot of edema (swelling).
I am taking the combination of Spironolactone(50mgs) and Flutamide (250mgs). Flutamide has stopped my hair loss and Spironolactone keeps my skin nice. (Even at the low dose)
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Allison
I have to exercise in the morning, before my brain figures out what the hell I am actually doing
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Traditional PCOS - Anovulatory, increased androgens, no insulin resistance
Medications and Supps listed on my profile.
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10-28-2006, 08:29 AM
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#4 (permalink)
| | Registered User
Join Date: Feb 2001 Location: France
Posts: 37
Points: 5,585.90 Bank: 0.00 Total Points: 5,585.90 |
Hi,
I have been off Spiro for a bit more than a month now, because I want to try for a baby, and I was worried about what would happen too. I haven't noticed any edema, and maybe i put back on a pound or two of water, but the side effect I notice the most is that... AF is a week late! Took a pregnancy test, which was negative, so not too sure what's going on. Anyone have any thoughts?
Thanks! | |
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10-28-2006, 04:03 PM
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#5 (permalink)
| | Registered User
Join Date: Jul 2004 Location: California
Posts: 711
My Mood: Points: 4,579.33 Bank: 3,913.31 Total Points: 8,492.64 |
Quote: |
Originally Posted by mischka I notice the most is that... AF is a week late! . Anyone have any thoughts?
Thanks! | Maybe it's just a simple adjustment your body is making right now.
Do you have your Testosterone levels checked? When mine go up, my cycles are crazy. The Metformin regulated my cycles. I hope that you are able to conceive soon. Good luck!
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Allison
I have to exercise in the morning, before my brain figures out what the hell I am actually doing
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Traditional PCOS - Anovulatory, increased androgens, no insulin resistance
Medications and Supps listed on my profile.
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10-28-2006, 06:38 PM
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#6 (permalink)
| | The truth is out there...
Join Date: May 2006 Location: VA
Posts: 932
My Mood:  Points: 112,830.13 Bank: 606,392.53 Total Points: 719,222.66 |
I stopped Spiro for about two years in college because I was too lazy and forgetful to take it. Well my hair got SO MUCH WORSE and now I'm stuck with it all. I developed so much new hair growth in that time period that it was unbelievable. I think if you stop taking it for TTC and then go right back on it you shouldn't experience any problems. | |
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10-29-2006, 12:04 AM
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#7 (permalink)
| | linni linni bo binni ba..
Join Date: Aug 2001 Location: Pennsylvania
Posts: 379
My Mood:  Points: 1,554.35 Bank: 0.00 Total Points: 1,554.35 |
I've been on spiro total for about 6 years now. I stopped for the same reason AnnieC mentioned.... I stopped for a bout a year/ year and a half in college, because I was too lazy and forgetful to take it. Well man did my skin break out terribly! and the hair growth was awful. I'm back on it now, and loving it, my skin has cleared up again lovely... and I'll deal with the hair
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10-29-2006, 12:31 AM
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#8 (permalink)
| | Curvacious SoulCyster :D
Join Date: Jul 2003
Posts: 3,335
My Mood:  Points: 8,750.17 Bank: 633,377.22 Total Points: 642,127.38 |
I'm on 150mg a day, I've only taken it once in the last 3 weeks (because I'm off work and out of my routine so I keep forgetting to take it), but over this time I haven't noticed a bit of difference - but then, I've been on it for over a year and haven't noticed any positive difference since I've started on it. I HAVE however noticed that my hair has been thinning since I went on it  dunno if thats a coincendence.
I got IPL lazer treatment on my facial hair and my skin was has been ok since before I started it, so I'm not sure why I'm on it.now, it was my endo's idea because of the facial hair, but I think the IPL has pretty much dealt with that problem. I really don't know why I bother filling the prescription....I'm seeing my endo in December and I'll need to discuss this with him. | |
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11-01-2006, 04:13 PM
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#9 (permalink)
| | Registered User
Join Date: Jan 2006 Location: California
Posts: 88
My Mood:  Points: 7,093.87 Bank: 0.00 Total Points: 7,093.87 |
I was on Spriro for about 7 or 8 years before I quit cold turkey. My hair growth and acne was out of control and cleared up while on Spiro..HOWEVER..I was taking BCP's at the same time. I did not notice any negative side effects after quiting Spiro..no hair growth or acne. Its only since I've quit my BCP's that I've been having problems. The hair on my face and acne has come back with a vengence!I hope this helps. Good luck with whatever you decide to do. Keep us posted!! | |
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11-08-2006, 12:04 PM
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#10 (permalink)
| | Registered User
Join Date: Nov 2006
Posts: 2
Points: 342.03 Bank: 0.00 Total Points: 342.03 |
I sometimes forget to take my spirolactone (for days) and I notice my blood pressure gets higher than normal, I read that can be a temporary side effect | |
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