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Old 09-24-2007, 04:26 PM   #1 (permalink)
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Post Got to ask this...

I am wondering if an enlarged uterus can be a part of PCOS, or is that just a fluke thing? My uterus is enlarged, I do not know as to what degree but my periods are very painful even with being on the pill to assist with pain management. I may be having a hysterectomy to remove the uterus only next year. If anyone can give any insight, I would greatly appreciate it.
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Old 09-24-2007, 05:53 PM   #2 (permalink)
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My uterus is slightly enlarged, but I have a septated uterus. My gyno made it sound as though it was enlarged due to the PCOS, but she didn't outright say that.
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Old 09-24-2007, 06:11 PM   #3 (permalink)
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Originally Posted by lovemychris View Post
My uterus is slightly enlarged, but I have a septated uterus. My gyno made it sound as though it was enlarged due to the PCOS, but she didn't outright say that.
lovemychris - Hi. A uterine septum will often make the uterus APPEAR to be enlarged because it artificially holds the front and the back of the uterus closer together than normal, and this causes the uterus to spread side-to-side. (Imagine taking a balloon and pressing it flat - it will get wider side to side). I had my uterine septum removed and Voila! all of a sudden, my "slightly enlarged" uterus popped back into a normal shape (more rounded from front to back) and no longer appeared to be enlarged.

gstump - there may be other things that are causing the pain - I would resist having a hysterectomy as the first line of action. There are a TON of other things which could be causing the pain, which can be dealt with without resorting to removing a major organ. Also, you need to find out WHY your uterus is enlarged. If your uterus is just normally a little bigger than usual, that's one thing, but many things could make it enlarged that can be be dealt with. For example, you may have fibroids, which could certainly increase the over-all size of your uterus and lead to pain during your periods (been there, done that).

Or, the pain could be totally unrelated to the size of your uterus. Endometriosis could certainly cause excruciating pain during your period, and can be removed via simple laparoscopic surgery (been there, done that too). Also, you could have adhesions, which can cause terrible pain during ovulation and period, but it can also be dealt with via laparoscopic surgery (sigh. . . been there, done that as well).

hth,

dk
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Old 09-24-2007, 06:13 PM   #4 (permalink)
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My doc never said one way or the other that it was PCOS related. She mentioned that I may need to have it removed due to the fact that it is so big. Do you have a lot of pain with your cycles?
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Old 09-24-2007, 06:17 PM   #5 (permalink)
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I do not have endometriosis. Been checked for that. I really want the uterus removed. I've had 3 kids, my husband is fixed and I don't have need for it. My periods are normally so painful that I may have to pop a darvocet once or twice a day for the first 1-3 days. You can't live like that. If you have given birth, its about 20 times worse than birthing pains.
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Old 09-24-2007, 06:37 PM   #6 (permalink)
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I was diagnosed with adenomyosis after years of 'enlarged uterus' and 'enlarged ovaried' noted during my annual exams. It was ID'd in an MRI and a recent HSG.

I found this list helpful.

For those with pelvic pain or non stop bleeds

Erin
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Old 09-24-2007, 06:50 PM   #7 (permalink)
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Originally Posted by gstump7694 View Post
I do not have endometriosis. Been checked for that. I really want the uterus removed. I've had 3 kids, my husband is fixed and I don't have need for it. My periods are normally so painful that I may have to pop a darvocet once or twice a day for the first 1-3 days. You can't live like that. If you have given birth, its about 20 times worse than birthing pains.
Ouch. When I had my first fibroid (went from nothing to softball sized in a matter of months), I was on darvocet several times a day - sure made going to class and taking exams umm. . . interesting!

Did they do a lap to check you for the endo? The worst thing about both endo and adhesions is that you can have tons of either and have NO pain, or just little tiny bits of either, and be in excruciating pain. I had surgery in February to remove a uterine septum, and my surgeon found microscopic bits of endo all over the place, and some concentrated (hard to find if you weren't looking for them) spots of adhesions. I shouldn't have been surprised, though, as my periods for about the last 6 months prior to surgery had become so painful that I was incapacitated for several days each cycle, and even darvocet didn't make much of a dent (crying, cold sweats from the pain, countless heating pads - it really sucks. I'm sorry). I've been pretty much pain-free since the surgery.

Since you've made up your mind, make sure that you have a thorough discussion with your doctor about how much you want "left" - i.e., you probably don't want to have a radical hysteretomy. Maybe a partial (where the cervix is left in place)? And talk about whether you want to keep your ovaries or not.

Also, make sure you discuss all of your options for the procedure itself - via laparatomy (abdominal incision-recovery usually takes four to eight weeks), laparascopically, or hysteroscopically (through the cervix) (the latter two generally have a 2-3 week recovery time).

good luck,

dk
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Old 09-25-2007, 12:40 PM   #8 (permalink)
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As far as I know, I have no fibroids, no endo, nothing. I am so new to this that in some ways, I am like just take my uterus, I don't want the damn thing anymore. I know I want to keep my ovaries. Just wish it would all go away, even though I know it won't.
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Old 09-25-2007, 12:42 PM   #9 (permalink)
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The only pain only hits during my period btw.
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