This site has a compilation of information taken from research abstracts that may help you better understand thyroid testing and diagnosis (as well as management), and there may be some info here that you can print out and share with your docs. I am copying the intro, the summary of the diagnosis section, and the link:
Over the years we have been asked by thousands of people to explain thyroid function tests in the contexts of both diagnosis and the management of therapy. A significant proportion of these correspondents and callers have found that despite having thyroid hormone levels within the laboratory reference ranges, they still suffer debilitating symptoms. Our counselling has included providing these people with reliable information from recognised medical authorities to inform them of the nuances of thyroid testing and to provide them with a basis for discussion with their doctors.
This document is an extract of the pertinent elements of the information we have provided. It is technical in nature and may therefore not be suitable for those who have not yet developed a basic knowledge of the thyroid and hypothyroidism. We have tried to help, by including a glossary of medical terms at the end of the document and comments in [square brackets] throughout the text.
The information is suitable for discussing with your doctors. The quoted material is sourced from well known international authorities on the thyroid and from peer reviewed medical journals. Make your doctor aware of this if you present this material to him or her.
References are provided for all quoted material and links are provided for material which can be found on the internet. Citations are presented as Author(s), "Title", Publication Name, Date; Volume(Issue): Page Numbers. You will need to set up a free account to view the Lancet material on line.
Summary for the "Should You Be Treated" section:
Summary
*The Reference Ranges for the TSH test currently being used routinely are too wide at the upper end. There is clear evidence that adverse medical outcomes occur at TSH levels within the current reference ranges.
*There is some debate about what a better upper range should be. The candidate values lie in the range of 1.9 to 3.5 mIU/L. Upper limits of around 2.0 mIU/L are suggested by evidence of adverse clinical outcomes above this level. Pure statistical analyses suggest upper limits of between 2.5 and 3.5 mIU/L.
*Screening by means of a TSH test alone using the current reference ranges is not able to detect all cases of hypothyroidism.
*Testing Free T4 is necessary to detect hypothyroid conditions which cannot be detected by TSH testing alone.
*Testing for antibodies, especially Thyroid Peroxidase antibodies (TPO Ab), should be carried out because high titres are highly predictive of developing thyroid failure. The higher the titre, the more rapid the progression.
*Serious consideration should be given to therapy when TSH levels are >2.0 mIU/L and anti-thyroid antibody titres are elevated especially if symptoms are present.
*The consequences of not treating mild thyroid failure can be significant. There are risks to under treatment and non-treatment just as there are risks to over treatment.
http://64.233.167.104/search?q=cache...hl=en&start=25
Linda