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Old 12-03-2008, 12:08 AM   #1 (permalink)
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Cool Guess I should share my story

Hey there, gals. I'm KT. I am a 22 year old college student.

I was diagnosed when I was 12. I was having facial hair problems so my mom took me to see an electrolysist. She took one look at me and started asking questions like if I had hair on my stomach (yeah) and how regular my periods were (I had had 2 or 3 like clockwork and then they just stopped). She told me that she had this thing called PCOS and that she thought I did too. She said, "You need to get to a doctor." That scared the crap out of me.

I did go to my doctor and he referred me to a gyno who put me on birth control pills and got me an ultrasound that showed several cysts. I felt really weird being on birth control at 12. The pills forced periods for a few months and then stopped, so the doc kicked me up to a different kind. Again, they worked for a bit and then nothing. I went to my GP and got a referral to an endocrinologist. He put me on metformin and spironolactone along with the BC. It worked for maybe a year or so, and then stopped. >

After that, I was on met, spiro, premarin, and provera, along with prozac for depression/the crazies and allergy/sinus/asthma stuff. I was taking handfuls of pills a day. I know I am not alone here in being frustrated with taking zillions of pills. I was good for awhile, but eventually got fed up and was feeling really sick all the time, so I stopped.

Thankfully, my endo is a really great guy and understands my frustration. I'm now only on spiro and BC. He even is cool about my desire to get gastric banding surgery. If only my GP were on board. I am going to call his office pretty soon because I am interested in Byetta. Then maybe I could avoid being cut open.

I've been on the new meds for 5 or so months and there's still no change. I have not had a period in over 3 years. I'm hoping that if I get on Byetta that I can lose some weight and my hormones will sort themselves out.

Anyway, that's my story. Thanks!
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-KT

The power of accurate observation is commonly called cynicism by those who have not got it.

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Meds: Spironolactone 50 mg 3X daily, Ortho Tri-Cyclen Lo, Prozac 40 mg every other day and 20 mg alternate days, plus random allergy, sinus, and asthma drugs


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Old 12-06-2008, 11:34 AM   #2 (permalink)
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thanks for sharing. it sucks that there is even such a thing as pcos. anyway you rock. keep on treckin on
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Old 12-07-2008, 11:05 PM   #3 (permalink)
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Default New to PCOS as well

Hello, I am new to PCOS. I was diagnosed with it about 3 months ago. I had gotten pg'd and lost the baby. We found out when I went in for my 8 week checkup and was told and saw there was nothing there. There was no period to signal that anything was wrong. I then went in for a pelvic ultra-sound and saw my ovaries, which I described to my husband as a mine field. I was immediately put on Metformin and just last week the medicine started working. We are trying to conceive and being we are both 28 we are hoping all goes well very soon. I still have terrible side effects from the medicine, especially if I eat any fatty foods or alot of sugary foods. I am 5'6 and weigh about 125lbs. There are good days and bad days, but try to remain hopeful and beleive that everything happens for a reason, we may not know why today, but as the future goes on I may find out - which is starting to get harder to believe as time goes on. All in a matter of two weeks after finding out I had PCOS and 1 day after I lost the baby, two of my husbands gradmas died. I think it will be nice to give and receive advice. I find it difficult to talk to people who have no idea what I am up against. Sorry so long.
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