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Old 08-14-2006, 09:03 PM   #31 (permalink)
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Originally Posted by Smile04
Hey, im from the UK, I originally had a doctor from my local hospital but he didnt know what to do with me so I asked to be refered to the Womens hospital in Liverpool and now have an appointment in sept. Im hoping they will have better ideas about treating me!
Hey good luck and well done for getting a referral to hospital. What kind of a doctor are you seeingt at the Women's Hospital?

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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-14-2006, 09:11 PM   #32 (permalink)
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Originally Posted by Mallory
I'm so glad to hear that you are getting some kind of treatment!

Perhaps Natural USP Progesterone cream would help, too. Many women with PCOS have low progesterone levels, and low progesterone levels encourage the shedding of scalp hair. Best of all, you don't need a prescription for progesterone cream.

However, USP is an American standard, and I don't know what the UK version of "bioidentical progesterone cream" would be called.....
I will and should try that - good point. I have bought it before - just not for myself. I have the cash to afford it now so I should give it a go.

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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-15-2006, 12:57 PM   #33 (permalink)
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Quote:
Originally Posted by Vlal
Hey good luck and well done for getting a referral to hospital. What kind of a doctor are you seeingt at the Women's Hospital?

Vicky-Louise
My GP has refered me to a gynaecologist (sp?)
I looked at this website: http://www.specialistinfo.com/directory.php
to find myself a new doctor and saw that the Womens Hospital does have consultants who specialize in PCOS, so I'm looking forward to seeing someone who will know what they're doing!
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Old 08-15-2006, 03:04 PM   #34 (permalink)
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Quote:
Originally Posted by Smile04
My GP has refered me to a gynaecologist (sp?)
I looked at this website: http://www.specialistinfo.com/directory.php
to find myself a new doctor and saw that the Womens Hospital does have consultants who specialize in PCOS, so I'm looking forward to seeing someone who will know what they're doing!
Thanks for the link - I am taking a look. Unfortunately my GP doesn't take me seriously about the PCOS, he just thinks it's fine to leave it, though I feel like I am physically falling apart. Sounds like you will get somewhere if the consultant is specialising in PCOS.

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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-16-2006, 12:45 PM   #35 (permalink)
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Sorry guys been on holiday so this is back tracking a bit ..

Quote:
I go through phases of being totally fine about it and then there are other days when I feel very down about it. I
I am very much in this phase some days I can cope others I cant ... as for hair transplants .. if, like me, you have diffuse hair loss as well as male pattern a transplant will not work. .. you need to have hair for a transplant to look effective and for me I dont .... extensions have not ruined my bio hair one bit .. I have had them for over two years and I go back for maintenance every eight weeks .. and I have to say I look 100 times better with them n ... dont get me wrong I still struggle as my hair thins I am having to look into alternatives as in a wig ...... but If you find a proper stylist who delas with the fragile hair assosiated with AGA I would highly recommend it.

I go to www.wattzinternational.co.uk which is in Kent in the Uk .. I would highly highly recommend her for both price, quality of hair, and beleive it or not she has councelled me through this hair loss better than a therapist...

I say go for it afterall if your hair is going anyway why the worry about it !!
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Old 08-17-2006, 01:38 AM   #36 (permalink)
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Quote:
Originally Posted by Vlal
Thanks for the link - I am taking a look. Unfortunately my GP doesn't take me seriously about the PCOS, he just thinks it's fine to leave it, though I feel like I am physically falling apart. Sounds like you will get somewhere if the consultant is specialising in PCOS.

Vicky-Louise
Vicky-Loiuse demand to see a endocrinologist. If you have had a PCOS diagnosis there is no way your GP can refuse you the referal. Ring your local hospital and speak to the endo section and ask them what you need for a referal.
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Old 08-17-2006, 12:33 PM   #37 (permalink)
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Originally Posted by flubby
Vicky-Loiuse demand to see a endocrinologist. If you have had a PCOS diagnosis there is no way your GP can refuse you the referal. Ring your local hospital and speak to the endo section and ask them what you need for a referal.
I am getting up the guts to do that. I have been about the PCOS before and I find that I come out feeling worse because they do not take me seriously and will not do anything - it does nothing for my self-esteem and makes me feel depressed. I hate the way everything is such a fight - like even to get a doctor to help me I have to fight and push... and I just feel so tired and drained that all I want to do is curl up in a ball and go to sleep forever.

VL
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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-17-2006, 01:09 PM   #38 (permalink)
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Aw VL I know exactly how you feel. It took me years and years to get my GP to even run blood tests, well she never did actually, I changed practices and got tested at my new practice nurse induction check!!! Look online to see which local hospital has an endocrinologist department. Speak to the secretary explain you have PCOS but your GP isn't interested ask what you need to get an appointment. Then go back to yuor GP and tell them you have spoken to the endo department and you want your GP to write you a letter of referal as you do not want your PCOS to go unchecked any longer and you don't want to be at risk of diabetes.
Go on, VL, do it, be pushy if you feel like **** after we will all be here.
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Old 08-17-2006, 01:21 PM   #39 (permalink)
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Quote:
Originally Posted by flubby
Aw VL I know exactly how you feel. It took me years and years to get my GP to even run blood tests, well she never did actually, I changed practices and got tested at my new practice nurse induction check!!! Look online to see which local hospital has an endocrinologist department. Speak to the secretary explain you have PCOS but your GP isn't interested ask what you need to get an appointment. Then go back to yuor GP and tell them you have spoken to the endo department and you want your GP to write you a letter of referal as you do not want your PCOS to go unchecked any longer and you don't want to be at risk of diabetes.
Go on, VL, do it, be pushy if you feel like **** after we will all be here.
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Hehe you made me feel all riotous now - I have assertiveness deficiency related to my lack of self-esteem... it takes a lot for me to get myself worked up enough to fight for my rights!
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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-18-2006, 12:39 AM   #40 (permalink)
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I had to fight like hell just to get my testosterone levels checked at my (now former) doctor's office.

You have to be your own primary health care advocate. No one is just waiting around to help you, and no one else cares as much as you do.

You have to do it yourself.
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Old 08-18-2006, 09:13 PM   #41 (permalink)
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Originally Posted by Mallory
You have to be your own primary health care advocate.
Yes, that is true.

Quote:
No one is just waiting around to help you
I hope I didn't give that impression.

Having said that, I do think doctors should be "waiting around to help us", after all that's why they trained to become doctors (I would hope): that they wanted to help people and to transform people's lives. Unfortunately my GPs services are controlled by government targets, primary healthcare trust budgets and IMO are a glorified shop front for pharmaceutical companies (even my doctor agrees to this), but then that's just my opinion and I am sure other people would differ with me on this point.

I am currently looking into going to see a private healthcare practioner in London, however I have to save up the money to do that (comfortably) as I don't want to go to the initial consultation and then find I cannot pay for treatments etc.

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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-19-2006, 07:05 PM   #42 (permalink)
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I just wanted to say, that's sad that even in socialized medicine countries the docs are still puppets for the pharmaceudicals. Thought that was only in the US.

But I agree--you have to take charge of your own health, do your own research, and decide what's best for yourself and yourself only...had I listened to my doctors without listening to myself I'd be:

1) still bleeding 30 times a year
2) in the nuthouse from chemical birth control
3) completely bald
4) broke from IVF I didn't need, and still no babies likely either
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Old 08-20-2006, 05:55 AM   #43 (permalink)
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Quote:
Originally Posted by Vlal
Having said that, I do think doctors should be "waiting around to help us", after all that's why they trained to become doctors (I would hope)
I agree! But in my experience, which I believe is all too typical, they aren't. Most doctors will just do what is easiest for them and their hectic schedules, and unfortunately for us, that often means scratching their heads and taking the path of least resistance. Very few doctors will rise to the challenge and do research on a condition or symptoms that elude their full understanding or confuse them. There's also an ego aspect involved: they don't like admitting that they don't know something. They will lead you astray before they admit they don't know something.

Being your own health care advocate is critical.
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Old 08-22-2006, 06:02 PM   #44 (permalink)
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Originally Posted by Mallory
There's also an ego aspect involved: they don't like admitting that they don't know something. They will lead you astray before they admit they don't know something.
That is very true and sadly my own experience. I find it very frustrating that doctors have that mentality because it really is self-defeating in a way... why study all that time and become a doctor if you are going to have that kind of attitude to your work? However, I do know that it is the prevailing trend amongst the medical profession and I doubt there is much that will ever change it - which is unfortunate.

I am definitely considering paying for my treatments/investigations ASAP because I feel I will be taken better care of and have more treatment options accessible to me. It will take most of my money, but then if I could get my health better I could make more money and feel better about myself.
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I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.


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Old 08-23-2006, 03:08 PM   #45 (permalink)
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vlal, *hugs* i am sorry for what you are going through with your doctors. as a healthcare professional, it saddens and angers me to no end the attitudes from some of these so-called... well, it's too early in the morning for me to get worked up into a rant.

i do agree with the general consensus that you have to be your own health advocate; physicans and their treatments are designed to help us out (ideally) but in the end, we are responsible for directing our treatment. and i know what you meant by "waiting to help"; healthcare professionals are *supposed* to care and are *supposed* to go that extra mile to help the people that place their very lives in their hands. but for a variety of reasons, many often do not.

i totally understand your feeling worn down and tired of having to fight for every bloody intervention... i've run into a bit of it here myself in the u.s and it's so frustrating. some people look at us like it is all in our heads; and even though it isn't just having to justify it to everyone can be a huge mental drain.

good luck and keep us updated!
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