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Old 09-17-2007, 08:32 PM   #1 (permalink)
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Question Has anyone ever had their ovaries removed or a hesterectomy to beat PCOS?

I was always wondering if anyone has ever had their ovaries removedor even a histerectomy in order to rid themselves of PCOS?

Isnt that what PCOS is?Problems with cysts on the ovaries?

I would really like to know more about this..

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Old 09-17-2007, 08:50 PM   #2 (permalink)
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Cysts on the ovaries is just a symptom of PCOS, not the cause. They don't know what the cause is...helpful I know. Removing your uterus will only prevent you from getting uterine cancer since that can be one of the things women can get with PCOS. However, you can still get all the other problems with PCOS with a removed uterus or ovaries.
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Old 09-17-2007, 09:05 PM   #3 (permalink)
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I don't think that would help me, since my issues are insulin/hormone related. So all I can do about that is lose weight. I know that some women experience a lot of pain from cysts bursting but my cysts have never bothered me.
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Old 09-17-2007, 09:33 PM   #4 (permalink)
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But what Im wondering is if when you have your ovaries removed which set off the hormonal imbalance from the cysts,if that would help???
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Old 09-17-2007, 09:35 PM   #5 (permalink)
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Quote:
Originally Posted by Embassy Embroidery View Post
But what Im wondering is if when you have your ovaries removed which set off the hormonal imbalance from the cysts,if that would help???
The ovaries do not 'set off' the hormonal imbalance. Neither do the cysts.

Hysterectomy will probably not help, which is why it's not ever considered as a treatment for pcos.
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Old 09-17-2007, 10:02 PM   #6 (permalink)
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Apparently even if you have ovaries and uterus removed - One still have polycystic ovaries.
It is a condition not just involving ovaries... but I can see how you would think that removing ovaries would fix it as i thought the cysts in the ovaries were what caused more androgens and testosterone and less estradiol to be produced..

Hormones are very complex.
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Old 09-17-2007, 10:37 PM   #7 (permalink)
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Hysterectomy will probably not help, which is why it's not ever considered as a treatment for pcos.
Sadly, it sometimes is. One cyster I know IRL was told to hurry and have kids since she had cystic ovaries (though she didn't know the term PCOS when she had her surgery IIRC), then they would do a full hyster to fix things up. She was not yet 35 I think at the time, and no where near menopause. I've seen other cysters post that their docs wanted to do a hyster because they had PCOS. A few ladies on this board have said their docs claimed hysters were cures for PCOS.
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Old 09-17-2007, 10:43 PM   #8 (permalink)
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Quote:
Originally Posted by Jashobeam View Post
Sadly, it sometimes is. One cyster I know IRL was told to hurry and have kids since she had cystic ovaries (though she didn't know the term PCOS when she had her surgery IIRC), then they would do a full hyster to fix things up. She was not yet 35 I think at the time, and no where near menopause. I've seen other cysters post that their docs wanted to do a hyster because they had PCOS. A few ladies on this board have said their docs claimed hysters were cures for PCOS.

Hope fully some of them might reply to give more insight on this. Kat makes alot of sense also.
I feel like there has to be more in curing or help to cure PCOS,I just feel that noone has stumbled onto it yet.....
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Old 09-17-2007, 10:54 PM   #9 (permalink)
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Originally Posted by Jashobeam View Post
Sadly, it sometimes is.
Ok. I'll rephrase. Hysterectomy is not generally recognized as a 'cure' for pcos. While it might address some issues like 'pelvic pain', I'm unaware of any generally recognized studies that say is corrects other common symptoms.

Someone might want to check PubMed.
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Old 09-17-2007, 10:59 PM   #10 (permalink)
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I think it's used by docs as a "quick fix" when they don't want to admit they don't know about PCOS. I had to explain to one cyster IRL about PCOS, but her doc had never fully explained the cysts, PCOS, why the hyster did not solve her problems, etc. Thankfully as you said it's not a common surgery for PCOS, but it's missused enough to be something to look out for. I've even read of cysters online who had PCOS and no pain, no heavy bleeding, etc., but the docs wanted to do a hyster because they were not going to have any more kids. Makes me glad to have a doc who is up to date and level headed!
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Old 09-17-2007, 11:15 PM   #11 (permalink)
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Also might want to check hystersisters.com , to see if any women there had one specifically for PCOS.
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Old 09-18-2007, 12:33 AM   #12 (permalink)
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Quote:
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Also might want to check hystersisters.com , to see if any women there had one specifically for PCOS.
Thanks Kat,I like the fac that even with as busy as you are , you always make time to investigate and be informative.
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Old 09-18-2007, 04:31 AM   #13 (permalink)
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My mom and 2 of her sisters all had hysterectomies, yet they all still have varying degrees of PCOS symptoms. It helps if you have pelvic pain, excessive bleeding, etc. but does nothing for other symptoms(hair loss/growth, weight, IR, depression). I briefly considered it, but was told by my doc that was "too drastic" for what I was dealing with.
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Old 09-18-2007, 10:16 AM   #14 (permalink)
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I'm glad someone brought this up. I actually have been considering this as an option because I have non-IR PCOS. I figured if it's not IR triggering my symptoms, it must be my ovaries, so removing them would solve that. Now I wonder...
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Old 09-18-2007, 12:23 PM   #15 (permalink)
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This is from Hystercysters.com when I searched PCOS:

I am so glad you found Hystersisters, but I am so sorry that you have been through so much.

I also have PCOS and have struggled with all of its complications for over 25 years now. My 23 year old daughter was also just diagnosed with it. It sounds like you have seen several Dr's. That is an important thing. If you are still confused there is nothing wrong with even seeing more. I am sure you are aware of the fact that there are few Dr's who really know how to treat the symptoms of PCOS other than the fertility issue.

I had a hysterectomy with ovary removal about 4 1/2 months ago, and can tell you that while some of the symptoms did go away, there are many that you will have to continue to deal with. Obviously, I don't have to struggle with the pain and heavy bleeding. My testosterone level was reduced, it is now in the mid-normal range. Insulin resistance is still a major issue for me and am currently trying to get control through a low-glycemic diet.
PCOS, contrary to it's name, is not a disease caused by your ovaries. It is an endocrine disease. Your ovary issues are a symptom of the bigger problem.

Have you, by any chance, seen a "Reproductive Endocrinologist"? If not, you would get more options from him/her than you would from another Dr. I would suggest that you consider trying to see someone who has had success in treating PCOS in other ways. My reason is this: While a hysterectomy and oopherectomy can take away some of your issues, it most definitely will cause others which may or may not be worse for you. With an oopherectomy you would be immediately thrown into "surgical menopause" which is much different than regular menopause. Some women do fine with estrogen replacement but others have serious problems. Hormonal balance seems to be more difficult to achieve for PCOS patients than for most. At 28 years of age, you would want to make sure that you have tried absolutely every option. My daughter has been getting treatment for only 2 months and has had very good success with medication she is taking for controlling the testosterone. She is also seeing improvement with her cyclic bleeding and cramping.
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