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View Poll Results: Have you been dxed w/an autoimmune disorder?
Yes (please specify which below), but close relatives have not been 36 55.38%
No, and close relatives have not been 15 23.08%
No, but I think I have one or more (specify which below) 8 12.31%
No, but my parents or siblings have one or more (specify which below) 4 6.15%
Not sure 2 3.08%
Voters: 65. You may not vote on this poll

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Old 04-28-2008, 11:10 PM   #31 (permalink)
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I have psoriasis, as does my sister. I also have eczema and when my psoriasis flares up, the eczema tags along.

Has anyone noticed a connection with flare-ups in their autoimmune disorder and flare-ups with their PCOS?

I've noticed that I tend to get more patches of psoriasis when I'm suffering with the most amount (and most painful) cysts. During the time when my ovaries are almost normal, my is often completely clear.
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Old 04-29-2008, 07:20 PM   #32 (permalink)
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I have vitiligo (although thankfully its limited to a fairly small area on my arm at this point) and I'm currently undergoing testing for what my doctors suspect is some sort of autoimmune issue that's affecting my joints and muscles...
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Old 05-15-2008, 07:39 PM   #33 (permalink)
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I have ulcerative colitis, diagnosed last year. No history of it in the family
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Old 05-17-2008, 12:17 AM   #34 (permalink)
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I've had Crohn's disease for years. I also have rheumatoid arthritis, but it didn't come into play until after treatment for metastatic thyroid cancer, and from what I've heard, a lot of cancer survivors end up with RA.
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Old 05-17-2008, 12:19 AM   #35 (permalink)
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Quote:
Originally Posted by KeyGoblin View Post
Has anyone noticed a connection with flare-ups in their autoimmune disorder and flare-ups with their PCOS?
I most certainly have! I have more pelvic pain, bad complexion, and increased hair growth when I'm having a severe Crohn's or RA flareup.

I can't help but wonder if the pain caused by the autoimmune issues causes stress, which then causes a chemical reaction that worsens the symptoms of PCOS?
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Old 05-17-2008, 03:02 PM   #36 (permalink)
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My cousin was just diagnosed with either lupis or fibro. She is now dying of NAFLD. Be sure to get periodic liver screenings for you and your close relatives. It could save a life.
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Old 05-17-2008, 07:26 PM   #37 (permalink)
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hashimoto and celiac
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Old 05-17-2008, 07:31 PM   #38 (permalink)
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Alaskaflygirl, If you have an autoimmune disease, sometimes you end up with two. My son had crohn's disease and his doctor is keeping an eye on him. She says that he could get RA or something else too...

I have psoriasis and it flares up with I'm stressed out and when my sugar levels aren't in control...which is most of the time...
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Old 06-04-2008, 02:23 PM   #39 (permalink)
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I have been Diagnosed with Crohn's disease and chronic Pancreatitis with secondary RA.

My doctors have all said that there must be a link between the PCOS and autoimmune disease especially since my Pancreas is being affected by both.

FYI for anyone else battling IBD, I take Humira for Crohn's and it is helping me stay off of Prednisone. It may seem like a scary drug but it has given me my life back.
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Old 06-04-2008, 02:30 PM   #40 (permalink)
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Quote:
Originally Posted by alaskaflygirl View Post
I most certainly have! I have more pelvic pain, bad complexion, and increased hair growth when I'm having a severe Crohn's or RA flareup.

I can't help but wonder if the pain caused by the autoimmune issues causes stress, which then causes a chemical reaction that worsens the symptoms of PCOS?
I am totally with you, same thing happens. When it rains it pours for sure. Is it a flare causes the PCOS to act up or the other way around? Sometimes I feel like PCOS gives me a flare.
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Old 06-04-2008, 04:05 PM   #41 (permalink)
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Lacking insurance, I am currently undiagnosed. However, I want to get myself checked out for Selective Immunoglobulin A Deficiency (Selective IgAD)-- which is not an autoimmune but an immunodeficiency disorder--as well as Celiac's Disease once I get insurance. These two occur often together and I display the full set of symptoms as well as similar symptoms through my mother's side (it seems to prefer maternal transmission).

However, without testing, I obviously can't say for certain.

**Important Note for Anyone Who Suspects Celiac's Disease:


You should also get yourself checked for IgA Deficiency as you're getting checked for Celiac's, because if you test positive for Selective IgAD you may get a false negative for Celiac's using the traditional blood test. SIgAD can affect antigliadin levels which are the typical indicator of Celiac's. So a different type of test would need to be used to make sure it isn't Celiac's.
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Old 06-23-2008, 04:22 PM   #42 (permalink)
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I have celiac and PCOS. My mom has miltiple auto-immune issues. I checked the first one.
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Old 06-23-2008, 07:57 PM   #43 (permalink)
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I checked 'not sure'. I've been dealing with elevated WBC Count, specifically neutrophilia, for a little over a year now. 6 months of testing with a hematologist, and still haven't figured out what's wrong. I have a standing order for Prednisone at the pharmacy. Any sign of a cold, I have to take 5 days worth to keep it from turning into bronchitis or pneumonia again.
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Old 06-26-2008, 10:31 PM   #44 (permalink)
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I have hashimotos thyroiditis. My sister has celiac. My mom and grandma also have hashis. I think I may have chronic fatigue syndrome and am going to the doc to hopefully rule it out.
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Old 06-29-2008, 03:26 AM   #45 (permalink)
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Psoriasis.

The psoriasis didn't begin until the year my period went bye-bye... age 20. I am now 25 and years 24 & 25 (when my PCOS has been the worst) my psoriasis has been out of control. Nothing like being fat AND having crappy skin!
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