Help Me! I'm Bleeding!

Iwant2BFree · 01-28-2008, 05:22 PM

Ok, here is my story so you can understand where I am now!
March 2007 I had a period that never stopped! When I say it never stopped, I mean I am still bleeding! It was consistent and light. So after about three weeks of bleeding I went to the Doctor. I have now been to three doctors and many many tests. I was finally DX with PCOS December 2007. They wanted to stop the bleeding so they put me on Yazmin. I took it for 2.5 weeks and my bleeding went from light to VERY HEAVEY! They then switched me from Yazmin to Ortho-Novum. I took two a day for tens days then went to one. I have been on one for 8 days and have now had heavy bleeding for 8 days. On top of everything the 9 months I was bleeding I never had cramps. Now they are so bad I can sometimes hardly walk. I have called my doctor this morning, I am waiting to hear back.

Has anyone else had this experience? What did you do?
I am totally open to questions. I want to be free from the bleeding!!!!!!!

Side Note: I want to have a baby but I have to get this under controll first.

ShyChicagoGirl · 01-28-2008, 05:31 PM

Sorry I don't have an answer for you, but I wanted to stop by and

you to SC. I'm sure another Cyster will have an answer for you.

Iwant2BFree · 01-28-2008, 05:39 PM

Thank you. I hope so too!

mummynootnoot · 01-28-2008, 05:51 PM

I cant believe you have been bleeding for that long and they havent admitted you into hospital to find out whats wrong with you. Did the doctors look at or rule out endometriosis?? http://www.nhsdirect.nhs.uk/articles...?articleID=150 - read this if you want to find out more.

Vino191 · 01-28-2008, 06:14 PM

a good friend of my mothers had that problem...well a similar problem she had very heavy periods that lasted 3 weeks at a time and had to wear adult diapers because pads were not good enough.

unfortunately the drs never were able to solve her problem. in the end she asked her dr for a hysterectomy because she is 40 and doesnt want kids and knows she doesnt want kids.

i really hope that the dr is able to help you out. I had a friend in highschool who had no cycle to speak of and she would get her period every other week, or gone for a month. it was crazy she never knew when to expect it. her mother didnt believe in taking medication and put her on herbs for it. they didnt work and eventually she went to another dr behind her mothers back and got the birth control pill and that sorted it out for her.

im really sorry that you have to go through that, the women that i know that had similar sounding problems had a really rough time with it and its not fun

my heart goes out to you!

steph4567 · 01-28-2008, 11:05 PM

A couple of years back, while on birth control pills, my period would not stop. I ended up going to my gyno, and she had to give me estrogen pills to help mine finally stop. After that, she did a transvaginal ultrasound, and all they said was that my lining wasn't shedding enough throughout the year, so it just decided to shed all at once. Not sure about all of that, but I had already been diagnosed with PCOS. At least though, I was finally able to stop having my period nonstop. I wish you the best of luck.

debir · 01-29-2008, 03:35 PM

First, I want to say I have done exactly what you are doing! My longest bleed was for over a year.
Second, go see an Endocrinologist, someone who specializes in hormones! Regular Dr's and even Gynecologists sometimes do not have enough training to deal with PCOS.
Third, as your Dr about getting on Metformin, a drug that has been proven to help with PCOS symptoms. You can read a ton about metformin on this website and I am hoping that someone else will chime in with more knowledge than I have.
Metformin is the only thing that stops my continual bleeds. I even went on a double-dose of non-stop birth control pills for 6 months and bled the whole time. Most Dr's use birth control pills as a "quick-fix" to control bleeding because it is fast, easy, and simple and doesn't require them to actually figure anything out!
Fourth, get on some iron pills! I got so anemic they almost admitted me to the hospital and put me on IV's!
Lastly, don't settle for a Dr who just wants to pass it off, insist that they figure it out and get it under control. I have gone through so many Dr's until I finally found one who would listen to me and be a pro-active partner in my health care.
By the way, Naproxen Sodium (i.e. Aleve) really helps with cramps!

P.S. Though metformin did not help me get pregnant, it has helped alot of women with PCOS have a baby... just something to keep in mind

Jennifer15226 · 01-29-2008, 10:33 PM

Hi I am brand new to this site and as I was reading through the message board your post caught my eye. I am a nurse and worked with hemophilia and bleeding disorder patients. Have you ever been tested for von willebrand disease. A lot of the women who have this disorder often complain of prolonged bleeding, often they have to go on a very high dose estrogen replacement or take a drug called stimate or Humate P, both help stimulate the release of a clotting factor in your blood. It may be something that you can ask your obgyn or even a hematologist. Bleeding for that long should not go unlooked or untreated. I hope everything works out and you find some answers.

collieflower · 02-03-2008, 08:41 PM

Jennifer -
Good suggestion. I am also new to this site. I was diagnosed with Von Willebrand as a young child and have always had heavy, long, and irregular periods. It's hard to know whats the cause the PCOS or the Von Willebrand's!! I have bled for up to a month at a time. I would be concerned about anemia at this point. Good Luck!