Help with our Fight IC website

LaurAnnHere · 04-04-2006, 10:45 AM

I know many of you have expressed interest in helping with the Fight IC website that Viv and I have created. We created this site in January and it has been a wonderful source for information, but that is only part of what we want to do with it. We want to add campaigns to our agenda. Ideas for how we could spread IC awareness and even lobby for research would be greatly appreciated. Also, we have been working on a questionaire that would aid in our quest for research. I'm just stumped at the appropriate questions to ask. I want it to be pretty thorough and include suspected cases of IC as well as confirmed cases of IC. Please give me some more ideas. It seems that there is just too many questions to ask and too many long responses required for what I want. I haven't gotten very far and don't really like what I have so far. Thank you so much for taking the time to help out. If you haven't seen our site it's located at www.fightIC.com. I have a link in my siggy, but out of respect for my cysters in mourning I do not post my siggy in the loss forum.

LaurAnnHere · 04-04-2006, 10:48 PM

bump...

Phoenix Rising ^^^ · 04-10-2006, 02:37 PM

LauraAnn,
I'd like to help I'm just not sure what I can do. I do believe awareness is key. When I lost my first baby, went back to my pregnancy books to read about the topic of IC, there was only one small paragragh about it. When it happened to me a scond time, I still knew very little about it. I didn't know I was at a higher risk of because of procedures I'd had done years ago.
I think maybe, links to the fight IC site on Goggle searches for things like colposcopy,cervical biopsy, and cryosurgery,you know, like the little ads you see on the sides of the web pages with links to other sites.

I'm interested in what you already have for the questionaire. Maybe once I see it I could offer suggestions.

I really wish I could help.