So, I just found this site today, and i was diagnosed on October 31, 2008. I sort of gave up looking up info on PCOS for a month or so, because I just felt so hopless.
I didn't start my period until I was 13, and ever since I've only had between 2 and 4 periods per year. I've been off and on bc since I was 15 and some kept me regular and some didn't. Finally, when I was 18 I would make doc. appts and see if they could figure out what was wrong with me, because i didn't want it to affect me when I was ready for a family. 3 of the docs made me feel like i was crazy, and told me to just keep taking the pills. The next April, I forgot my pills when I went out of town, and before I started the next pack I was just waiting around for my period. Eight months later (still no period), I worked myself up enough to go to the doc, and she told me to just start the new pack and everything will be fine. I started them and they worked for a few month, then instead of a period once a month, i was having spotting for a week on , one week off , and then back on again. I went back to the doctor and told them that something was wrong, and they told me that nothing was wrong, and just started me on the neuva ring. It worked for a few years, then I moved and couldn't afford it, so i dc'd. I then went to a new doc for bc rx and i tried to take it for a few months and never had a period.
In the mist of all this, i started planning my wedding. I made another appointment 3 months later and the doc. gave me a preg test (which was neg) and told me that since i was not married that she should not be having this conversation with me about my period irregularities. I went home in tears and never wanted to go back to a doc again.
Within the next year i had 3 period, and finally got married but feared that i wouldn't be able to have kids. Finally my husband got me to make an appt with a diff. doc and i was dreading it. The day finally came and the doc told me that I had PCOS after two diff. appts and plenty of testing.
At times i feel like i'm handling it ok, but the next day, i can't stop crying about it. The few people i've told tell me they know how i feel, and they've had thier children. No, you don't know how i feel, and i can't just get over it.
People think that i've moved on, but really, everytime i take my meds it reminds me how defective i am.
My most recent breakdown was when my cousin had a baby (unplanned) with his girlfriend. I was so jealous of them, and didn't even want to go near them. I'm slowly moving on and reallizing that i just need to take everything one day at a time. And hopefully i can learn to talk about it instead of holding it in. I am so thankful that i have this site to talk to people that really know how i'm feeling.
Thanks for your time, I'll try and shorten it up next time
I feel your pain! Sometimes I feel like everyone can have a baby but me. But when I really think about it I realize everything happens for a reason. I'm getting treatment and my time will come. Who knows where I would be if I had a child or children right now. I'm just thankful for the chance to rectify my situation.
I just wanted to share with you that having children is not hopeless!
Like you, I get 3 to 4 periods a year when I'm not medicated. Bc also worked for me on some occassions then didn't on others. I thought it was a lost cause to try to have a baby after I got married cause my cycles were SOOO irregular, I never knew if or when I was ovulating. Finally after years of my mom and dh telling me to go to the drs I went. Doc said my cycles were irregular due to my weight, which was around 240 at that time. But put me on provera to induce af and clomid to make me ovulate. After 5 cycles on clomid I got my bfp! But I knew something wasn't right. I learned at 8 weeks that it was an ectopic and had to have emergency surgery. What an experience, huh?
Well dh and I discussed it and after 9 months, decided we were ready to try again. I went to a different dr this time and was diagnosed in june with pcos. We decided on using the provera again followed by the clomid. After a failed first cycle with no O I was nervous. Being that this time around I only had one tube I didn't foresee a baby any time in the near future. I went on to round 2 of 100mg clomid the end of july beginning of august. Low and behold, I got my BFP on 8-30 and I'm now currently almost 20 weeks pg with a baby boy who's due in may!
So ladies, please don't give up hope on someday having a child. If I had, I woulda missed out on the lil boy growing in my belly as I type this.
If you have any ?s or just want to talk, please feel free to pm me.
Tat2edprincess and I have similarities that abound. I thought I would post and give you hope as well. I was diagnosed with PCOS when I was 22. I wasn't totally devastated at the time because having a family was far from my mind. It lingered in my thoughts every once in awhile because I would notice that AF and I were no longer acquainted. I would have maybe 4 periods a year. Sometimes I would go for 7 or 8 months with nothing. BC didn't help me. I would spot on and off throughout the pack. It was extremely frustrating. Well, I refused to take any meds bc I didn't believe that I needed them. When DH and I got married we tried to have a baby for several years and it never happened. I broke down and felt broken down. I went to the doctor and asked them to help me. They weren't very helpful. I ended up getting a referral to an RE who listened and helped me inmensely. All in all I was able to get pregnant by taking 150 mg's of Clomid and 2000 mg's of Metformin through the first 12 weeks of pregnancy. There is hope. Don't lose it. I was so convinced that I wasn't going to get PG that I took 5 additional tests within the first two weeks just to see that it didn't change. I got my BFP on 9/30/05. I now have a healthy boy. He was born in May of 2006. Take the meds and stay positive. There is always hope. I'm TTC #2 right now so I'm staying positive too. Baby dust to you.
I feel your pain! Sometimes I feel like everyone can have a baby but me. But when I really think about it I realize everything happens for a reason. I'm getting treatment and my time will come. Who knows where I would be if I had a child or children right now. I'm just thankful for the chance to rectify my situation.
Thank you very much for your reply, every bit of encouragement helps!
Thank you, thank you. You ladies really lift my spirits, and it finally feels so good to hear these things from people who really know what I'm feeling like!
Thank you for your reply, every bit helps me get through and have a good day. I teared up the second I read the "baby dust" and it means so much. thank you!
Htr12 keep your spirits up ..
I like you have PCOS, and was diagnosed in 2007 after ttc for about a year. I had always had irregular periods and had been told to used bcp to ensure that I had periods, but other than that nobody seemed to care about it. It took 3 visits to my doc to convince her to take bloods, and then she said that they were all fine (which they weren't)...... so I like you went to someone else. I am thin and have a pretty low body mass, and love to exercise, so I kept getting told that I wasn't eating enough and I was over exercising, anyone who knew me, knew that this was not true. Because I was thin, nobody would entertain the idea that I might have PCOS ..... even though I was convinced it could be the problem, as I had lots of the symptoms. Eventually a work colleague did an Ultrasound scan for me and that showed the classic pearl effect cysts on both ovaries, and both were enlarged. While I was gutted to be told I had indeed got PCOS, and the repeat bloods also confirmed this, I was delighted to finally have a diagnosis and to know that while it could take a long time it was treatable.
The fertilty specialist I went to see, made a 2 year plan for me, starting with 6 months on metformin, then moving onto clomid x 6 months, then IUI, then IVF as a last resort .... you will be relieved to hear that after 10 weeks on metformin and a good diet, and no sign of a period, I discovered that I was pregnant, in fact it transpired that I was 6 weeks pregnant. I now have a gorgeous little boy who will be 10 months old at the end of the week. I appreciate him so much, and I will always think that he is so special, because I was so afraid that I would never get to live my dream.
Luna22maria,
Do you mind me asking how you managed your PCOS since your last pregnancy. Everything improved so much after being pregnant, but now 10 months post delivery I am seeing things start to slide again. I don't want to take the bcp, but I am not sure that I want to stay on metformin indefinitely either. We are not ttc at present, we just want to enjoy our little fella growing up for the moment. Any suggestions would be welcome.
i just read your post and i can relate to you. my hubby and i have been trying to concieve for 3 years (1 of those with fertility drugs) and still have no bun in the oven. My brother in law just had a baby with his fling that was unplanned, my stepsons 17 year old sister is having her baby this weekend and took one of my baby names, a family friend told us a week ago that he and his new wife are expecting and yesterday my neighbor came over to tell me that her daughter is preggo as well... so i feel your pain and right now it is worse than ever. my husband informed me today that he doesn't want to try again until after the first of the year. that was a shot to the heart. but things will get better i keep telling myself. you are lucky to have come across this site. it has helped me out a lot and the friends that you make here understand what you are going through. good luck.
Kellyanna -- After I had my son I had very regular cycles and no problems whatsoever. I was like clockwork. After about 10 months (same as you) I started to downslide and became very frustrated. My GYN put me on Yasmin and Metformin. The BCPs were miserable because of the mood swings and loss of libido, but my periods were regular. I was on them for about a year and then I became so depressed that DH asked me to stop taking them. I went on Metformin but it did not fully regulate my period. Some months I'm on time and some I'm not. I never go for more than two months without a cycle though. In my world that is good. Metformin makes me feel less moody and irritable as well. If I were you I would stay on the Metformin and use a barrier method. Ironically, every time I tell my GYN that I'm on Metformin and not on a BCP he says that I could get PG. Well, it hasn't happened. In 10 years of trying the only thing that helped me was a combination of Clomid with Metformin. We cysters know that having a cycle is better than not having one.
On a side note, I won't be ttc #2 after all for now. DH is getting deployed to Iraq in February and I'd rather not be PG while he's gone. Having the two year old is enough for this mommy.
And a warning for all of us. On this cycle of Clomid I had one of my ovaries become inflamed. It was extremely painful and all I wanted to do was be curled up in a ball. I was told that Clomid can cause overstimulation of the ovaries to produce an egg and that what probably happened was that one of the eggs didn't mature fully (common PCOS issue) and it just swelled up and was causing the inflammation. I don't know if that applies to this particular post (sorry). I figured I would just throw it out there.
here we go....my story 
I'm there with you now 
